Re: Karen, I say "Amen" to what you have shared....

From: Karen Steward (kann@charter.net)
Thu Jun 19 21:28:00 2003


Dear Helen, Thank you so much for the nice reply.......I honestly do not know how people manage this illness without an active family member or friend fighting for them. I am soooo sorry you have walked this lonely, painful path alone........... I am currently working on different projects to bring awareness to ARD and the people suffering. Thanks for your encouraging letter! Hugs, Karen Original Message------- From: adhesions@adhesions.org Date: Thursday, June 19, 2003 12:59:57 PM To: Multiple recipients of list ADHESIONS Subject: Karen, I say "Amen" to what you have shared.... Dear Karen, As I read your message about your ordeal in trying to find a doctor, who could/would help restore Melissa's health, I couldn't help but feel that you were writing about my ordeal too!!
--
 
My ordeal differs from yours and Melissa's only in that I did NOT have
anyone to advocate in my behalf.  I've had to trod that path alone for
almost half of my life--ever since a laparotomy in February 1970 caused
massive adhesions that attached my omentum to my abdominal wall - 33 years
ago!!  
 
I was age 39 when my ARD story began;  and, at age 72, I am still searching
for a resolution to my chronic pain.  I'm not so sure that "Intertissual
scarring from a laparotomy in 1970" is the cause of the chronic pain I
endure each day.             
 
http://www.adhesions.org/forums/ADHESIONS.0208/0320.html
 
When the time is right, I hope you and Melissa will want to arrange a
meeting with the district senator or representative from your state - with
the purpose being to seek his/her assistance in writing up a citation or
resolution about ARD that will eventually be approved by the state of Texas.
 
It is not my intention to downplay what you and Melissa have been through.
What you have shared, is information that needs to be heard and "shouted
from the rooftops"!!  
 
I say "Amen" to everything you have shared - especially at the following
website:
 
http://www.adhesions.org/forums/ADHESIONS.0306/0205.html
 
Thank you for sharing!!
 
Love, Helen
 

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