Re: Karen, I say 'Amen' to what you have shared....

From: Kathy (kathgill@gte.net)
Thu Jun 19 14:23:29 2003


Karen, Melissa and Helen, Your stories reflect what we all have been through. So many doctors make there mind up about us before we have a chance to say a word. It is so hard to hear "your tests/scans don't show any problem" and therefore it must be in your head. Thank you all for being so open with your struggles. We all grow stronger from the work that you do. This Board would not be the same if you didn't share your experiences. Thank you for being such a wonderful inspiration!! Now we know there is help maybe more doctors in the US will push for a change....I can dream can't I......Kathy

At Thu, 19 Jun 2003, Helen Dynda wrote: >
>Dear Karen,
>As I read your message about your ordeal in trying to find a doctor, who could/would help restore Melissa's health, I couldn't help but feel that you were writing about my ordeal too!!
>
>My ordeal differs from yours and Melissa's only in that I did NOT have anyone to advocate in my behalf. I've had to trod that path alone for almost half of my life--ever since a laparotomy in February 1970 caused massive adhesions that attached my omentum to my abdominal wall - 33 years ago!!
>
>I was age 39 when my ARD story began; and, at age 72, I am still searching for a resolution to my chronic pain. I'm not so sure that "Intertissual scarring from a laparotomy in 1970" is the cause of the chronic pain I endure each day.
>
>http://www.adhesions.org/forums/ADHESIONS.0208/0320.html
>
>When the time is right, I hope you and Melissa will want to arrange a meeting with the district senator or representative from your state - with the purpose being to seek his/her assistance in writing up a citation or resolution about ARD that will eventually be approved by the state of Texas.
>
>It is not my intention to downplay what you and Melissa have been through. What you have shared, is information that needs to be heard and "shouted from the rooftops"!!
>
>I say "Amen" to everything you have shared - especially at the following website:
>
>http://www.adhesions.org/forums/ADHESIONS.0306/0205.html
>
>Thank you for sharing!!
>
>Love, Helen


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