ADHESIONS Messages for June, 2003: Re: ADHESIONS digest 2792

Re: ADHESIONS digest 2792

From: Spincon58 . (spincon58@hotmail.com)
Wed Jun 18 22:41:50 2003

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Next message: Karen Steward: "Re: Doctors in Chicago"
Previous message: Spincon58 .: "BIRTHDAY WISH"

Sherry,

We all need honest replies, just post what you feel and others will do the same. just like mine was. No harm intended only to learn and support one other. We are so happy that you found relief. I guess you were the small percent that the adhesions did not grow back, Unfortunately the odds are very high against us. We are all helping each other cope with ARD, and thank you for your support.

Connie

>From: Adhesions Society <adhesions@adhesions.org>
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
>Subject: ADHESIONS digest 2792
>Date: Wed, 18 Jun 2003 22:23:56 -0500
>
> ADHESIONS Digest 2792
>
>Topics covered in this issue include:
>
> 1) Re: Sherry you are wrong
> by Nameloc51@aol.com
> 2) Re: Doctors in Chicago
> by Nameloc51@aol.com
> 3) Re: Doctors in Chicago
> by <chiggerkat@futura.net>
> 4) BIRTHDAY WISH
> by "Spincon58 ." <spincon58@hotmail.com>
>
>----------------------------------------------------------------------
>
>----------------------------------------------------------------------
>Date: Wed, 18 Jun 2003 21:47:35 EDT
>----------------------------------------------------------------------
>From: Nameloc51@aol.com
>To: adhesions@adhesions.org
>Subject: Re: Sherry you are wrong
>Message-ID: <165.217f4c43.2c227037@aol.com>
>MIME-Version: 1.0
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>You are right...so, even though the people who has their adhesiolysis in
>Germany had a second look does not mean that adhesions may not be forming
>since
>then. Yes, I know what they say about adhesions forming very soon after a
>surgery and then quit...I'm just not convinced of that beings that so many
>people
>have adhesion problems years after a surgery. I just don't see that there
>are
>any clear cut, black and white answers here. I think it's wonderful that
>some
>have gone to Germany and have so far had good results...but how many of us
>can go to Germany for surgery? Let's just be practical here. The doctor
>who
>did my adhesiolysis was my gyn in St. Louis. As I said, I have no
>guarantees
>but I don't know who does.
>
>Sherry
>
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><HTML><FONT FACE=arial,helvetica><FONT SIZE=2 FAMILY="SANSSERIF"
>FACE>="Arial" LANG="0">You are right...so, even though the people who has
>the>ir adhesiolysis in Germany had a second look does not mean that adhesions
>ma>y not be forming since then.  Yes, I know what they say about
>adhesions> forming very soon after a surgery and then quit...I'm just not convinced
>of> that beings that so many people have adhesion problems years after a
>surger>y.  I just don't see that there are any clear cut, black and white
>answ>ers here.  I think it's wonderful that some have gone to Germany and
>ha>ve so far had good results...but how many of us can go to Germany for
>surger>y?  Let's just be practical here.  The doctor who did my
>adhesioly>sis was my gyn in St. Louis.  As I said, I have no guarantees but I
>don>'t know who does.<BR>
><BR>
>Sherry</FONT></HTML>
>
>--part1_165.217f4c43.2c227037_boundary--
>
>------------------------------
>
>------------------------------
>Date: Wed, 18 Jun 2003 21:53:51 EDT
>------------------------------
>From: Nameloc51@aol.com
>To: adhesions@adhesions.org
>Subject: Re: Doctors in Chicago
>Message-ID: <e4.39b5f8f5.2c2271af@aol.com>
>MIME-Version: 1.0
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>Oh goodness.. I certainly didn't mean to attack anyone's post. I knew I
>shouldn't have posted my true feelings here. I have just been feeling that
>there
>is so much talk about going to Germany for surgery and that is the only and
>best place to go that alot of people will feel hopeless because they don't
>have
>the way or means to go. My intestines was also involved in my adhesions.
>I
>was nauseated every day for a year and had all kinds of bowel problems.
>Pain
>was not my only symptom nor my worst symptom. I was unable to eat or enjoy
>what I did eat. I know the pain of adhesions on every day life. My
>surgery
>worked for me and I hope others will not give up on doctors in the US.
>
>That's all I meant
>
>Sherry
>
>--part1_e4.39b5f8f5.2c2271af_boundary
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><HTML><FONT FACE=arial,helvetica><FONT SIZE=2 FAMILY="SANSSERIF"
>FACE>="Arial" LANG="0">Oh goodness..  I certainly didn't mean to
>attack >anyone's post.  I knew I shouldn't have posted my true feelings
>here.&n>bsp; I have just been feeling that there is so much talk about going to
>Germ>any for surgery and that is the only and best place to go that alot of
>peopl>e will feel hopeless because they don't have the way or means to go. 
>M>y intestines was also involved in my adhesions.  I was nauseated
>every >day for a year and had all kinds of bowel problems.  Pain was not my
>on>ly symptom nor my worst symptom.  I was unable to eat or enjoy what I
>d>id eat.  I know the pain of adhesions on every day life.  My
>surge>ry worked for me and I hope others will not give up on doctors in the
>US.<BR> >
><BR>
>That's all I meant<BR>
><BR>
>Sherry</FONT></HTML>
>
>--part1_e4.39b5f8f5.2c2271af_boundary--
>
>------------------------------
>
>------------------------------
>Date: Wed, 18 Jun 2003 21:00:33 -0500
>------------------------------
>From: <chiggerkat@futura.net>
>To: <adhesions@adhesions.org>,
> "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
>Subject: Re: Doctors in Chicago
>Message-ID: <001301c33606$93f7cc60$032f1e43@net>
>MIME-Version: 1.0
>Content-Type: multipart/alternative;
> boundary="----=_NextPart_000_000E_01C335DC.A894B0E0"
>
>------=_NextPart_000_000E_01C335DC.A894B0E0
>Content-Type: text/plain;
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>
>HI,
>MY NAME IS SHERRY G. AND I'M GLAD YOU FOUND A DOCTOR HERE IN THE U.S. TO >HELP YOU. I DON'T THINK ANYONE MEANT ANYTHING MEAN TO YOU-WE'RE ALL JUST >LOOKING FOR THE RIGHT DOCTOR,TOO.
>GLAD YOU ARE DOING WELL!
>SHERRY G.
> -----Original Message-----
> From: <Nameloc51@aol.com>
> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> Date: Wednesday, June 18, 2003 8:54 PM
> Subject: Re: Doctors in Chicago
>
> Oh goodness.. I certainly didn't mean to attack anyone's post. I >knew I shouldn't have posted my true feelings here. I have just been >feeling that there is so much talk about going to Germany for surgery >and that is the only and best place to go that alot of people will feel >hopeless because they don't have the way or means to go. My intestines >was also involved in my adhesions. I was nauseated every day for a year >and had all kinds of bowel problems. Pain was not my only symptom nor >my worst symptom. I was unable to eat or enjoy what I did eat. I know >the pain of adhesions on every day life. My surgery worked for me and I >hope others will not give up on doctors in the US.
>
> That's all I meant
>
> Sherry
>
>------=_NextPart_000_000E_01C335DC.A894B0E0
>Content-Type: text/html;
> charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
><!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
><HTML><HEAD>
><META http-equiv=Content-Type content="text/html; >charset=windows-1252">
><META content="MSHTML 5.50.4134.600" name=GENERATOR></HEAD>
><BODY bgColor=#d8d0c8>
><DIV><FONT size=2>HI,</FONT></DIV>
><DIV><FONT size=2>MY NAME IS SHERRY G. AND I'M GLAD YOU FOUND A DOCTOR >HERE IN
>THE U.S. TO HELP YOU. I DON'T THINK ANYONE MEANT ANYTHING MEAN TO >YOU-WE'RE ALL
>JUST LOOKING FOR THE RIGHT DOCTOR,TOO. </FONT></DIV>
><DIV><FONT size=2>GLAD YOU ARE DOING WELL!</FONT></DIV>
><DIV><FONT size=2>SHERRY G.</FONT></DIV>
><BLOCKQUOTE
>style="PADDING-LEFT: 5px; MARGIN-LEFT: 5px; BORDER-LEFT: #000000 2px >solid">
> <DIV><FONT face=Arial size=2><B>-----Original >Message-----</B><BR><B>From:
> </B><<A >href="mailto:Nameloc51@aol.com">Nameloc51@aol.com</A>><BR><B>To:
> </B>"Multiple recipients of list ADHESIONS" <<A
> >href="mailto:adhesions@dns.obgyn.net">adhesions@dns.obgyn.net</A>><B>R><B>Date:
> </B>Wednesday, June 18, 2003 8:54 PM<BR><B>Subject: </B>Re: Doctors in >
> Chicago<BR><BR></DIV></FONT><FONT face=arial,helvetica><FONT >lang=0 face=Arial
> size=2 FAMILY="SANSSERIF">Oh goodness..  I certainly didn't >mean to
> attack anyone's post.  I knew I shouldn't have posted my true >feelings
> here.  I have just been feeling that there is so much talk about >going to
> Germany for surgery and that is the only and best place to go that >alot of
> people will feel hopeless because they don't have the way or means to
> go.  My intestines was also involved in my adhesions.  I was >
> nauseated every day for a year and had all kinds of bowel >problems.  Pain
> was not my only symptom nor my worst symptom.  I was unable to >eat or
> enjoy what I did eat.  I know the pain of adhesions on every day
> life.  My surgery worked for me and I hope others will not give >up on
> doctors in the US.<BR><BR>That's all I meant<BR><BR>Sherry</FONT>
></FONT></BLOCKQUOTE></BODY></HTML>
>
>------=_NextPart_000_000E_01C335DC.A894B0E0--
>
>------------------------------
>
>------------------------------
>Date: Wed, 18 Jun 2003 23:18:14 -0400
>------------------------------
>From: "Spincon58 ." <spincon58@hotmail.com>
>To: adhesions@adhesions.org
>Subject: BIRTHDAY WISH
>Message-ID: <BAY2-F20xJdQdSe9g4p00000a5c@hotmail.com>
>Mime-Version: 1.0
>Content-Type: text/plain; format=flowed
>
>To, Kim,Carolyn, Anthea, Karen , Lisa and Jo , and to all the supporters
>who
>fight ARD.
>
>I want to thank you for your well wishes. It's not an easy choice going to
>Germany. But it is a choice with no other options. But we have options as
>suffers.
>
>I believe in my heart that we have a right to receive medical treatment
>like
>anyone else suffering from a disease. I feel we have to ALL take a stand
>and
>educate the doctors , educate the government, inform family and friends to
>listen!!! So we can be recognized and maybe one day Spraygel and gasless
>lap
>can be available to us. We want surgery with 95 % chance to get better not
>80% chance you'll have this again!
>
>Why something so simple like scar tissue cannot be controlled?. My surgeon
>said adhesions are making me sick, so why isn't anyone in U.S.A.researching
>to help me get better. Everyone in this group should do one thing to help
>ARD suffers. I'm going to start by trying to get New Jersey to recognize
>that Adhesions can cause depilating illness. We sell girl scout cookies,
>help PTA, volunteer our time with charity, take care of elder parents, tend
>to animals,so LETS HELP OURSLEVES......
>
>Connie
>
> >From: Adhesions Society <adhesions@adhesions.org>
> >Reply-To: adhesions@adhesions.org
> >To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
> >Subject: ADHESIONS digest 2788
> >Date: Tue, 17 Jun 2003 14:19:34 -0500
> >
> > ADHESIONS Digest 2788
> >
> >Topics covered in this issue include:
> >
> > 1) Re: up- date on my 7 year old sufferer
> > by "Karen Steward" <kann@charter.net>
> > 2) Re: Doctors in Chicago
> > by "Karen Steward" <kann@charter.net>
> > 3) Adhesions ..&.. Photos of adhesions
> > by "Helen Dynda" <olddad66@runestone.net>
> >
> >----------------------------------------------------------------------
> >
> >----------------------------------------------------------------------
> >Date: Tue, 17 Jun 2003 09:23:39 -0500 (Central Daylight Time)
> >----------------------------------------------------------------------
> >From: "Karen Steward" <kann@charter.net>
> >To: <adhesions@adhesions.org>
> >Subject: Re: up- date on my 7 year old sufferer
> >Message-ID: <3EEF246B.000012.88241@vaio>
> >MIME-Version: 1.0
> >Content-Type: Multipart/related;
> > type="multipart/alternative";
> > boundary="------------Boundary-00=_FNQMDL51VA4000000000"
> >
> >--------------Boundary-00=_FNQMDL51VA4000000000
> >Content-Type: Multipart/Alternative;
> > boundary="------------Boundary-00=_FNQM8WA1VA4000000000"
> >
> >--------------Boundary-00=_FNQM8WA1VA4000000000
> >Content-Type: Text/Plain;
> > charset="iso-8859-1"
> >Content-Transfer-Encoding: quoted-printable
> >
> >Hi Evelyn and Zac,
> >
> > Illness and suffering have no favorites. From the youngest to the
>olde> >st,
> >in all nationalities, many, many people suffer. My heart goes out to you
>> >
> >both--there is never a rhyme or reason and our motherly, nurturing minds
>> >
> >can't comprehend why OUR child is the unfortunate one, the one in
>pain,
> >and robbed of the quality of life we see in other children. In our minds
>> >we
> >know there are other children that suffer also, but often it seems it is
> >only
> >our child dealing with day in and day out battles that never cease. Our
> >lives
> >can end up feeling like sad rainy days each and every day with very few
>
> >rays of sunshine and always another dark cloud looming ahead. The world
>
> >goes on, and we sit back and watch. We aren't a participant, only a
> >spectator,
> >stuck in a cruel, unkind, hopeless existence. Each day when we wake,
>our
> >minds immediately remember "oh, yes, another day in which to
>hurt".......> >..
> >We exhaust ourselves as mothers, trying to take their little minds away
>f> >rom
> >the
> >pain, if only for a little while. As they get older they begin to catch
>o> >n
> >to what
> >mom (mum) is doing and they begin to feel sorry for their mom (mum).
> >And a bond is formed that is more than a mother and her child, two
>broken> >
> >hearts are bound together each looking to the other as they both cry
>out
> >for help.
> >
> > Evelyn, I am so sorry for the pain that is heaped upon your son and
>th> >e
> >sorrow
> >you deal with each day. Cling to the hope that there is always
>tomorrow.
> >Each day truly brings new opportunity and new hope. It is so very hard to
> >see
> >it when you are in the middle of the battlefield. All your natural mind
>c> >an
> >see is
> >attack and enemy all around you..........I know all about those sparse
>ti> >mes
> >of "fantastic" days or years you speak of.........we are then lulled into
> >thinking
> >"It is over--we won" and then we are hit again......each time this
>happen> >s
> >we
> >begin to be afraid to ever rejoice, as we tighten up inside--knowing the
> >victory
> >won't last......... regardless, we must look beyond and believe, believe,
> >believe
> >the day WILL come for our child. Remain steadfast, unmovable,
>unshakeable> >,
> >strong and firm in YOUR hope for your child. Surround yourself with
>books> > of
> >
> >hope and healing and encouragement. This will help you keep from losing
>y> >our
> >mind. A special song in your heart will help you and your son too.
> >
> > I know these are mere words written on a page........they don't give
>yo> >u
> >what you
> >so desperately need...........I wish I could give that to you, as I know
> >many others
> >will feel the same as they read about your precious Zac boy..............
> >but know
> >today I shed a tear for you and many for that sweet Zac..........from one
> >mom to another,
> >I feel your pain and it tears at the soul.
> >
> > Blessings to you both,
> >You will be in my continual prayer.
> >
> >Karen
> >
> >
> >-------Original Message-------
> >
> >From: adhesions@adhesions.org
> >Date: Tuesday, June 17, 2003 03:40:39 AM
> >To: Multiple recipients of list ADHESIONS
> >Subject: up- date on my 7 year old sufferer
> >
> > My son Zac and I have not posted nor read for a while
> >and what alot of changes. Well done to all those concerned.
> >
> > IN brief Zac was born with a malrotation or a deformity
> >in his bowel and surgeon did life saving surgery to seperate
> >his obstructed mangled bowel. Adhesions formed and at 2 years old they
> >removed massive adhesions throughout his bowel.
> >
> > After about 1.5 fantastic pain/constipation free years
> >his pain/constipation has worsened gradually year by year.
> >He suffers almost daily from sore backs, neck, legs and
> >ofcourse sore tummies. With lots of medication he does go
> >to the toilet everyday but loading is always a problem.
> >
> >Right now we are waiting for another battery of tests to commence and
> >way up the options for further surgery.
> >He has difficulty concentrating and often daydreams at school. He is
> >well behind for his age so it puts pressure on us to want to improve
>his
> >current health status now.
> >We also worry about his pain level 20 years from now and the decisions
> >we make now will have a major impact on him later.
> >
> > I would love to have some support and feedback from anyone.
> >We were using lazer treatment for a year but had to stop it as long
>term
> >we did not know how it would affect him.
> >
> > Regards Evelyn
> > watsayyou@xtra.co.nz
> >
> >--
> >mums the word
> >
> > to the unsubscribe form at
>http://www.adhesions.org/forums/listcmds.htm> >
> >.
> >--------------Boundary-00=_FNQM8WA1VA4000000000
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> > charset="iso-8859-1"
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> >
> ><HTML><HEAD>
> ><META http-equiv=Content-Type content="text/html;
>charset=iso-8859-> >1">
> ><META content="IncrediMail 1.0" name=GENERATOR>
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> ></HEAD>
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>FONT-F> >AMILY: Arial" width="100%">
> ><DIV>Hi Evelyn and Zac,</DIV>
> ><DIV> </DIV>
> ><DIV>   Illness and suffering have no favorites. From
>the > >youngest to the oldest,</DIV>
> ><DIV>in all nationalities, many, many people suffer. My heart goes
>o> >ut to you </DIV>
> ><DIV>both<IMG id=INCREDIINSERTIMAGE
>src="cid:5E132140-04FA-4A86-976B-> >ABF591B9BB26"
>INCREDIIMAGEEXTENSIONS="INCREDIANIMEXTENSIONS,124,SU1CTDE> >sNDYsgUmBSTQkKCSZnY2BTZnBgYVNiSiVgU3BnTiNTSwkjZksgYmVhZWBiUmBSYFJgSxJTUJM> >MiwwLCxJTUJMMywwLCxUeXBlVmVyc2lvbiwzLDEuMCw="
>INCREDIIMAGEATTRIBS="IN> >CREDIANIM,CADA6750-6801-4D30-87F5-EA56E0431304,033102flo_1_prv.imi,Image,> >My Collection,My
>Collection,033102flo_1_prv,033102flo_1_prv.gif,,3.0">--t> >here is never a rhyme or reason and our motherly, nurturing minds </DIV>
> ><DIV>can't comprehend why OUR child is the unfortunate one, the one in
>pa> >in,</DIV>
> ><DIV>and robbed of the quality of life we see in other children. In our
>m> >inds we </DIV>
> ><DIV>know there are other children that suffer also, but often it seems
>i> >t is only </DIV>
> ><DIV>our child dealing with day in and day out battles that never cease.
>> >Our lives</DIV>
> ><DIV>can end up feeling like sad rainy days each and every day with very
>> >few </DIV>
> ><DIV>rays of sunshine and always another dark cloud looming ahead. The
>wo> >rld </DIV>
> ><DIV>goes on, and we sit back and watch. We aren't a participant, only a
>> >spectator, </DIV>
> ><DIV>stuck in a cruel, unkind, hopeless existence. Each day when we
>wake,> > our</DIV>
> ><DIV>minds immediately remember "oh, yes, another day in which to
>hurt"..> >.......</DIV>
> ><DIV>We exhaust ourselves as mothers, trying to take their little minds
>a> >way from the</DIV>
> ><DIV>pain, if only for a little while. As they get older they begin to
>ca> >tch on to what </DIV>
> ><DIV>mom (mum) is doing and they begin to feel sorry for their mom
>(mum).> > </DIV>
> ><DIV>And a bond is formed that is more than a mother and her child, two
>b> >roken </DIV>
> ><DIV>hearts are bound together each looking to the other as they both
>cry> > out</DIV>
> ><DIV>for help. </DIV>
> ><DIV> </DIV>
> ><DIV>   Evelyn, I am so sorry for the pain that is heaped upon
>> >your son and the sorrow</DIV>
> ><DIV>you deal with each day. Cling to the hope that there is always
>tomor> >row.</DIV>
> ><DIV>Each day truly brings new opportunity and new hope. It is so very
>ha> >rd to see </DIV>
> ><DIV>it when you are in the middle of the battlefield. All your natural
>m> >ind can see is</DIV>
> ><DIV>attack and enemy all around you..........I know all about
>those&nbsp> >;sparse times</DIV>
> ><DIV>of "fantastic" days or years you speak of.........we are then
>lulled> > into thinking</DIV>
> ><DIV>"It is over--we won" and then we are hit again......each time
>t> >his happens we</DIV>
> ><DIV>begin to be afraid to ever rejoice, as we tighten up
>inside--kn> >owing the victory</DIV>
> ><DIV>won't last......... regardless, we must look beyond and
>believe> >, believe, believe</DIV>
> ><DIV>the day WILL come for our child. Remain steadfast, unmovable,
>unshak> >eable,</DIV>
> ><DIV>strong and firm in YOUR hope for your child. Surround yourself with
>> >books of </DIV>
> ><DIV>hope and healing and encouragement. This will help you keep from
>los> >ing your</DIV>
> ><DIV>mind. A special song in your heart will help you and your son
>too.</> >DIV>
> ><DIV> </DIV>
> ><DIV>  I know these are mere words written on a page........they
>don> >'t give you what you</DIV>
> ><DIV>so desperately need...........I wish I could give that to you, as I
>> >know many others </DIV>
> ><DIV>will feel the same as they read about your precious Zac
>boy.........> >......but know</DIV>
> ><DIV>today I shed a tear for you and many for that sweet
>Zac..........fro> >m one mom to another,</DIV>
> ><DIV>I feel your pain and it tears at the soul.</DIV>
> ><DIV> </DIV>
> ><DIV> Blessings to you both,</DIV>
> ><DIV>You will be in my continual prayer.</DIV>
> ><DIV> </DIV>
> ><DIV>Karen</DIV>
> ><DIV> </DIV>
> ><DIV id=IncrediOriginalMessage><I>-------Original
>Message-------</I></D> >IV>
> ><DIV> </DIV>
> ><DIV id=receivestrings>
> ><DIV dir=ltr style="FONT-SIZE: 11pt" <i><B>From:</B></I> <A
>href="m> >ailto:adhesions@adhesions.org">adhesions@adhesions.org</A></DIV>
> ><DIV dir=ltr style="FONT-SIZE: 11pt" <i><B>Date:</B></I> Tuesday,
>Jun> >e 17, 2003 03:40:39 AM</DIV>
> ><DIV dir=ltr style="FONT-SIZE: 11pt" <i><B>To:</B></I> <A
>href="mai> >lto:adhesions@dns.obgyn.net">Multiple recipients of list
>ADHESIONS</A></D> >IV>
> ><DIV dir=ltr style="FONT-SIZE: 11pt" <i><B>Subject:</B></I> up- date
>> >on my 7 year old sufferer</DIV></DIV>
> ><DIV> </DIV>
> ><DIV>    My son Zac and I have not posted nor read for a
>w> >hile</DIV>
> ><DIV>and what alot of changes. Well done to all those concerned.</DIV>
> ><DIV> </DIV>
> ><DIV>    IN brief Zac was born with a malrotation or a
>def> >ormity</DIV>
> ><DIV>in his bowel and surgeon did life saving surgery to seperate</DIV>
> ><DIV>his obstructed mangled bowel. Adhesions formed and at 2 years old
>th> >ey</DIV>
> ><DIV>removed massive adhesions throughout his bowel.</DIV>
> ><DIV> </DIV>
> ><DIV>    After about 1.5 fantastic pain/constipation free
>> >years</DIV>
> ><DIV>his pain/constipation has worsened gradually year by year.</DIV>
> ><DIV>He suffers almost daily from sore backs, neck, legs and</DIV>
> ><DIV>ofcourse sore tummies. With lots of medication he does go</DIV>
> ><DIV>to the toilet everyday but loading is always a problem.</DIV>
> ><DIV> </DIV>
> ><DIV>Right now we are waiting for another battery of tests to commence
>an> >d</DIV>
> ><DIV>way up the options for further surgery.</DIV>
> ><DIV>He has difficulty concentrating and often daydreams at school. He
>is> ></DIV>
> ><DIV>well behind for his age so it puts pressure on us to want to
>improve> > his</DIV>
> ><DIV>current health status now.</DIV>
> ><DIV>We also worry about his pain level 20 years from now and the
>decisio> >ns</DIV>
> ><DIV>we make now will have a major impact on him later.</DIV>
> ><DIV> </DIV>
> ><DIV>    I would love to have some support and feedback
>fr> >om anyone.</DIV>
> ><DIV>We were using lazer treatment for a year but had to stop it as long
>> >term</DIV>
> ><DIV>we did not know how it would affect him.</DIV>
> ><DIV> </DIV>
> ><DIV>    Regards Evelyn</DIV>
> ><DIV>    <A
>href="mailto:watsayyou@xtra.co.nz">watsayyou> >@xtra.co.nz</A></DIV>
> ><DIV> </DIV>
> ><DIV>--</DIV>
> ><DIV>mums the word</DIV>
> ><DIV> </DIV>
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>href="mailto:adhesions@adhesions.or> >g">adhesions@adhesions.org</A> mailing list please go</DIV>
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>href="http://www.adhesions.or> >g/forums/listcmds.htm">http://www.adhesions.org/forums/listcmds.htm</A></> >DIV>
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> >------------------------------
> >
> >------------------------------
> >Date: Tue, 17 Jun 2003 10:38:00 -0500 (Central Daylight Time)
> >------------------------------
> >From: "Karen Steward" <kann@charter.net>
> >To: <adhesions@adhesions.org>
> >Subject: Re: Doctors in Chicago
> >Message-ID: <3EEF35D8.00001E.88241@vaio>
> >MIME-Version: 1.0
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> >
> >Sherry,
> >
> > I agree with the post this morning from Connie. Also, I would LOVE to
>kn> >ow
> >who your
> >US doctor was, as there are people writing me that cannot go to Germany
>d> >ue
> >to the
> >fact that they have no funds and their insurance will not cover the "out
>> >of
> >country".
> >
> > I didn't see that Carolyn claimed her results were any better than
>anyon> >e
> >else's, so I
> >really didn't understand the attack on her post.........she was merely
> >telling HER story.
> >Again, please tell us YOUR story since you have had
>success...........ple> >ase
> >don't rain
> >on Carolyn's parade unwarranted............and leave us hanging on your
> >story.........
> >
> > I can tell an equal story about my own daughter and surgery in the
>US---> >and
> >it will be
> >much the same as Carolyn's.........I spent 13 plus years trying to find
> >Melissa help.
> >She had 2 surgeries in the US and within 4 months of the first surgery,
>s> >he
> >was very
> >ill again--but more importantly, never felt ANY relief after that
>surgery> >...
> >.... in fact, I
> >was bouncing around her living room right after the first surgery, in
> >ecstasy, as I had
> >PROOF finally of her illness,
> >(photos) and PROOF the problems had been removed (photos)...........when
> >Melissa
> >said after many hours of seeing my joy, "Mom, I really hate to tell you
> >this---I still FEEL
> >very, very, sick--just as before".................WHAT???? How could that
> >be?? I was certain she was mistaken, but I said nothing. My mind couldn't
> >comprehend what she was saying....and
> >I KNEW my daughter had held it in as long as she could--------she had
> >watched me for hours, smiling, laughing, rejoicing over the "problem"
>bei> >ng
> >removed!!!!!! She didn't want to tell me
> >her body felt the same..... but only hurt a little more due to the
>surger> >y.
> >
> > A second surgery in California left her in bed for 8 weeks upon our
>ret> >urn
> >home........and as ill as ever. Mind you, the surgeon was "world
>renowned> >",
> >a wonderful person, etc...........BUT, once again..........she still
>hurt> >...
> >........and once again, same pain, with the additional surgery pain.
> >
> > For us, the third time was the charm, as they say............Melissa
>to> >o
> >had surgery with Dr. Kruschinski in Germany. Upon being wheeled down the
> >hall into her room at the Emma Klinik,
> >Melissa looked up at me rather groggily and said, "Mom.......I feel
> >different this time"............
> >within HOURS she was ready to get out of bed (although she was not
>allowe> >d
> >to) and immediately began telling me her breathing felt different (Dr.
> >Kruschinski had already told me "adhesions on diaphragm--she will breathe
> >better now)..........the next day she was walking the hall so fast that I
> >was worried she would hurt herself.........granted, other women that had
>> >had
> >surgery weren't moving like Melissa, but they were not as young either...
> >another American woman said, as they passed in the hall, "you'd better
>sl> >ow
> >down"..............lol..............
> >
> >Melissa was afraid to speak too much that she really felt
>better---------> >as
> >she had been sick for so many years and the 2 prior surgeries that had
>no> >t
> >helped her left her so saddened and angry that she had fought me about
>go> >ing
> >to Germany (convinced it would be a worthless trip)..............THAT IS
>> >HOW
> >THE US SURGERIES AFFECTED MY DAUGHTER!!
> >
> >So, all that said.........whew......this is why Carolyn is
>happy......sam> >e
> >reason we are happy.........she and Melissa FELT DIFFERENT RIGHT AFTER
> >SURGERY.......not something
> >that was achieved after US surgery.
> >
> >Melissa and I were walking downtown, by the river, etc. on the third day
> >after her surgery with Dr. Kruschinski. The next day, we went
>again......> >.
> >and then she began saying her intestines "seemed to be trying to
>work"...> >...
> >.....she had surgery pain, but was not intolerable and she was on very
> >little pain medication (for surgery pain)............Melissa was one of
>t> >he
> >few that had to have more surgery at her second look and that surgery
>was> > a
> >little harder to jump up from.........but, still not as bad as what she
>h> >ad
> >had in the US...........by the time we boarded the plane to fly home she
>> >was
> >opening up a little, talking more, etc........but still rather
>reserved--> >and
> >the suspense was killing me..............
> >during the flight she said, "Mom, I am a little worried.........I can no
> >longer feel my intestines........it makes me think something is
>wrong....> >...
> >.even though I am not hurting in my stomach like I was, I can't feel my
> >intestines...........and it is making me worry...........you feel your
> >intestines, don't you???"
> >
> >I realized then, she had NO recollection of what wellness felt
>like......> >...
> >..and I had to cry........I gently explained to her, "No, you are not
> >SUPPOSE to feel your intestines".................then she began telling
>m> >e
> >that her stomach had felt SO relaxed since surgery that she thought
> >something HAD to be wrong!
> >
> > Dr. Kruschinski said there was not an area of Melissa's large or small
> >bowel that did not have adhesions............loops and loops and loops of
> >adhesions..........and he stated to me after her
> >surgery "food could not pass through"...................
> >
> >I was told in the US surgeries, "her bowel is not
>involved".............
> >
> >So, Sherry, no one is stating anything "for certain"...........as we all
> >know LIFE is uncertain.
> >Carolyn was only stating her experience and how glad she is to be FREE
>fr> >om
> >the pain of adhesions.
> >
> >There was a difference after the surgery with Dr. Kruschinski, a
>differen> >ce
> >that is FELT in the
> >body, a difference that makes you want to share with
>others..............> >..
> >
> >Best Wishes,
> >
> >Karen
> >
> >
> >
> >-------Original Message-------
> >
> >From: adhesions@adhesions.org
> >Date: Monday, June 16, 2003 07:20:30 PM
> >To: Multiple recipients of list ADHESIONS
> >Subject: Re: Doctors in Chicago
> >
> >I don't mean to be a skeptic, but truth is, guess I am. When did you
>hav> >e
> >your surgery in Germany? Is it not true that adhesions can reoccur even
> >years later? How do you know that you are absolutely going to be
>adhesio> >n
> >free?
> >
> >I had an adhesiolysis here in the U.S. in December and am still adhesion
> >free. How do we know for sure your results will be any better than
>mine?> >
> >Again, don't mean this harshly in any way...just don't see how you all
>ca> >n
> >know for certain that your results will be better than mine or anyone
>els> >es.
> >
> >Sherry
> >
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>FONT-F> >AMILY: Arial" width="100%">
> ><DIV>Sherry,</DIV>
> ><DIV> </DIV>
> ><DIV> I agree with the post this morning from Connie. Also, I would
>> >LOVE to know who your</DIV>
> ><DIV>US doctor was, as there are people writing me that cannot go to
>Germ> >any due to the </DIV>
> ><DIV>fact that they have no funds and their insurance will not cover the
>> >"out of country". </DIV>
> ><DIV> </DIV>
> ><DIV> I didn't see that Carolyn claimed her results were any better
>> >than anyone else's, so I</DIV>
> ><DIV>really didn't understand the attack on her post.........she was
>mere> >ly telling HER story.</DIV>
> ><DIV>Again, please tell us YOUR story since you have had
>success....> >.......please don't rain </DIV>
> ><DIV>on Carolyn's parade unwarranted............and leave us hanging on
>y> >our story.........</DIV>
> ><DIV> </DIV>
> ><DIV> I can tell an equal story about my own daughter and surgery
>in> > the US---and it will be</DIV>
> ><DIV>much the same as Carolyn's.........I spent 13 plus years trying
>to&n> >bsp;find Melissa help.</DIV>
> ><DIV>She had 2 surgeries in the US and within 4 months of the first
>surge> >ry, she was very</DIV>
> ><DIV>ill again--but more importantly, never felt
><STRONG>ANY</STRONG> > > <U>relief </U>after that surgery........ in fact, I</DIV>
> ><DIV>was bouncing around her living room right after the first
>surge> >ry, in ecstasy, as I had</DIV>
> ><DIV>PROOF<STRONG> finally</STRONG> of her illness, </DIV>
> ><DIV>(photos) and PROOF the <U>problems had been removed (photos)<IMG
>src> >="cid:71FB15C3-B72E-411D-B6F7-6D54231CF7CD">...........</U>when
>Melissa> > </DIV>
> ><DIV>said after many hours of seeing my joy, "Mom, I really hate to tell
>> >you this---I still <STRONG>FEEL</STRONG></DIV>
> ><DIV>very, very, sick--just as before"<IMG
>src="cid:D3BD9B3D-BEA5-489B-> >AF27-648FB1718CCF">.................WHAT???? How could that be?? I was
>ce> >rtain she was mistaken, but I said nothing. My mind couldn't comprehend
>w> >hat she was saying....and</DIV>
> ><DIV>I KNEW my daughter had held it in as long as she could--------she
>ha> >d watched me for hours, smiling, laughing, rejoicing over the "problem"
>b> >eing removed!!!!!! She didn't want to tell me</DIV>
> ><DIV><U>her body felt the same</U>..... but only hurt a little more due
>t> >o the surgery.</DIV>
> ><DIV> </DIV>
> ><DIV>  A second surgery in California left her in bed for <STRONG>8
>> >weeks</STRONG> upon our return home........and as ill as ever. Mind you,
>> >the surgeon was "world renowned", a wonderful person, etc...........BUT,
>> >once again..........she still hurt............<U>and once again, same
>pai> >n, with the additional surgery pain.</U></DIV>
> ><DIV><U></U> </DIV>
> ><DIV>  For us, the third time was the charm,<IMG
>src="cid:6B09FB2F> >-6373-440B-9459-89862704D36A"> as they say............Melissa too had
>sur> >gery with Dr. Kruschinski in Germany. Upon being wheeled down the hall
>in> >to her room at the Emma Klinik,</DIV>
> ><DIV>Melissa looked up at me rather groggily and said, "Mom.......I feel
>> >different this time"............</DIV>
> ><DIV>within HOURS she was ready to get out of bed (although she was not
>a> >llowed to) and immediately began telling me her breathing felt different
>> >(Dr. Kruschinski had already told me "adhesions on diaphragm--she will
>br> >eathe better now)..........the next day she was walking the hall so fast
>> >that I was worried she would hurt herself<IMG
>src="cid:C531AE66-2027-49> >C2-BCDB-9FF8DD7232E5">.........granted, other women that had had surgery
>> >weren't moving like Melissa, but they were not as young
>either....another> > American woman said, as they passed in the hall, "you'd better slow
>down> >"..............lol..............<IMG
>src="cid:C531AE66-2027-49C2-BCDB-9> >FF8DD7232E5"></DIV>
> ><DIV> </DIV>
> ><DIV>Melissa was <STRONG>afraid</STRONG> to speak too much that she
>reall> >y felt better---------as she had been sick for so many years and the 2
>pr> >ior surgeries that had not helped her left her so saddened and angry
>that> > she had fought me about going to Germany (convinced it would be a
>worthl> >ess trip<U>)..............<STRONG>THAT IS HOW THE US SURGERIES AFFECTED
>M> >Y DAUGHTER!!</STRONG></U></DIV>
> ><DIV> </DIV>
> ><DIV>So, all that said.........whew<IMG
>src="cid:C531AE66-2027-49C2-BCD> >B-9FF8DD7232E5">......this is why Carolyn is happy......same reason we
>ar> >e happy.........she and Melissa <STRONG>FELT DIFFERENT RIGHT AFTER
>SURGER> >Y</STRONG>.......not something</DIV>
> ><DIV>that was achieved after US surgery. </DIV>
> ><DIV> </DIV>
> ><DIV>Melissa and I were walking downtown, by the river, etc. on the
>third> > day after her surgery with Dr. Kruschinski. The next day, we went
>again.> >.......and then she began saying her intestines "seemed to be trying
>to> > work"............she had surgery pain, but was not intolerable and she
>w> >as on very little pain medication (for surgery pain)............Melissa
>w> >as one of the few that had to have more surgery at her second look and
>th> >at surgery was a little harder to jump up from.........but, still not as
>> >bad as what she had had in the US...........by the time we boarded the
>pl> >ane to fly home she was opening up a little, talking more,
>etc........but> > still rather reserved--and the suspense was killing
>me..............</DI> >V>
> ><DIV>during the flight she said, "Mom, I <STRONG>am</STRONG> a little
>wor> >ried.........I can no longer feel my intestines........it makes me think
>> >something is wrong.........<STRONG>even though I am not hurting in my
>sto> >mach like I was</STRONG>, I can't feel my intestines...........and it is
>> >making me worry...........you feel your intestines, don't you???"</DIV>
> ><DIV> </DIV>
> ><DIV>I realized then, she had NO recollection of what wellness felt
>like.> >...........and I had to cry........I gently explained to her, "No, you
>> >are not SUPPOSE to feel your intestines".................then she began
>t> >elling me that her stomach had felt SO relaxed since surgery that she
>tho> >ught something HAD to be wrong!</DIV>
> ><DIV> </DIV>
> ><DIV> Dr. Kruschinski said there was not an area of Melissa's large
>> >or small bowel that did not have adhesions............loops and loops
>and> > loops of adhesions..........and he stated to me after her</DIV>
> ><DIV>surgery "food could not pass through"...................</DIV>
> ><DIV> </DIV>
> ><DIV>I was told in the US surgeries, "her bowel is not
>involved".........> >....</DIV>
> ><DIV> </DIV>
> ><DIV>So, Sherry, no one is stating anything <FONT face="Lucida
>Sans"><S> >TRONG>"<U>for certain</U></STRONG>"...........</FONT><FONT
>face=Arial>a> >s we all know LIFE is uncertain.</FONT></DIV>
> ><DIV>Carolyn was only stating her experience and how glad she is to be
>FR> >EE from the pain of adhesions.</DIV>
> ><DIV> </DIV>
> ><DIV>There was a difference after the surgery with Dr. Kruschinski, a
>dif> >ference that is  FELT in the </DIV>
> ><DIV>body, a difference that makes you want to share with
>others.........> >.......</DIV>
> ><DIV> </DIV>
> ><DIV>Best Wishes,</DIV>
> ><DIV> </DIV>
> ><DIV>Karen</DIV>
> ><DIV> </DIV>
> ><DIV id=IncrediOriginalMessage><I>-------Original
>Message-------</I></D> >IV>
> ><DIV> </DIV>
> ><DIV id=receivestrings>
> ><DIV dir=ltr style="FONT-SIZE: 11pt" <i><B>From:</B></I> <A
>href="m> >ailto:adhesions@adhesions.org">adhesions@adhesions.org</A></DIV>
> ><DIV dir=ltr style="FONT-SIZE: 11pt" <i><B>Date:</B></I> Monday,
>June> > 16, 2003 07:20:30 PM</DIV>
> ><DIV dir=ltr style="FONT-SIZE: 11pt" <i><B>To:</B></I> <A
>href="mai> >lto:adhesions@dns.obgyn.net">Multiple recipients of list
>ADHESIONS</A></D> >IV>
> ><DIV dir=ltr style="FONT-SIZE: 11pt" <i><B>Subject:</B></I> Re:
>Docto> >rs in Chicago</DIV></DIV>
> ><DIV> </DIV><FONT lang=0 size=2 FAMILY="SANSSERIF">I don't
>mea> >n to be a skeptic, but truth is, guess I am.  When did you have
>your> > surgery in Germany?  Is it not true that adhesions can reoccur
>even> > years later?  How do you know that you are absolutely going to be
>a> >dhesion free?  <BR><BR>I had an adhesiolysis here in the U.S. in
>Dec> >ember and am still adhesion free.  How do we know for sure your
>resu> >lts will be any better than mine?<BR><BR>Again, don't mean this harshly
>i> >n any way...just don't see how you all can know <B><I><U>for
>certain</B><> >/I></U> that your results will be better than mine or anyone
>elses.<BR><B> >R>Sherry</FONT>
> ><DIV> </DIV></TD></TR>
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> >
> >------------------------------
> >
> >------------------------------
> >Date: Tue, 17 Jun 2003 14:17:10 -0500
> >------------------------------
> >From: "Helen Dynda" <olddad66@runestone.net>
> >To: <adhesions@adhesions.org>
> >Subject: Adhesions ..&.. Photos of adhesions
> >Message-ID: <013f01c33505$0dfd0460$5f1593ce@olddad66>
> >MIME-Version: 1.0
> >Content-Type: multipart/alternative;
> > boundary="----=_NextPart_000_013C_01C334DB.24220F80"
> >
> >------=_NextPart_000_013C_01C334DB.24220F80
> >Content-Type: text/plain;
> > charset="Windows-1252"
> >Content-Transfer-Encoding: quoted-printable
> >
> >X> Adhesions.....To see photos of adhesions: a.) Click: Filmy > >Adhesions b.) Click: Filmy Adhesions
> >http://www.danmartinmd.com/adhesions.htm
> >
> >"Adhesions and scar are often used interchangeably. Adhesions are often
>> >used to describe thin or stretched scar. This can also be used for > >thick scar. Scar after surgery is similar in both your pelvis and on > >your hand. Scar's purpose is to hold your body together. Scar starts > >forming immediately. On your hand it is usually able to hold skin > >together within a few days. This also happens in the pelvis. This is > >normal."
> >
> >PLEASE GO TO THE ABOVE WEBSITE TO READ THE REST OF THIS ARTICLE.
> >
> >------=_NextPart_000_013C_01C334DB.24220F80
> >Content-Type: text/html;
> > charset="Windows-1252"
> >Content-Transfer-Encoding: quoted-printable
> >
> ><!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
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> ><META content="text/html; charset=windows-1252" > >http-equiv=Content-Type>
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> ><STYLE></STYLE>
> ></HEAD>
> ><BODY bgColor=#ffffff>
> ><DIV><FONT size=2>X> Adhesions.....To see photos of > >adhesions:  a.)
> >Click:  Filmy Adhesions  b.) Click:  Filmy Adhesions
> >            &> >nbsp;         </FONT></DIV>
> ><DIV><FONT size=2>
> ><SCRIPT language=JavaScript></SCRIPT>
> ></FONT><FONT size=2><A
> >href="http://www.danmartinmd.com/adhesions.htm">http://www.danmartinmd.> >com/adhesions.htm</A></FONT><FONT
> >size=2></FONT></DIV>
> ><DIV><FONT size=2></FONT> </DIV>
> ><DIV><FONT size=2>"Adhesions and scar are often used > >interchangeably. 
> >Adhesions are often used to describe </FONT><A
> >href="http://www.danmartinmd.com/filmy_adhesions.htm"><FONT > >color=#800000
> >size=2>thin or stretched scar</FONT></A><FONT size=2>.  This > >can also be
> >used for </FONT><A > >href="http://www.danmartinmd.com/dense_adhesions.htm"><FONT
> >color=#800000 size=2>thick scar</FONT></A><FONT size=2>.  > >Scar after
> >surgery is similar in both your pelvis and on your hand.  Scar's > >purpose is
> >to hold your body together.  Scar starts forming immediately. 
>> >On your
> >hand it is usually able to hold skin together within a few days.  > >This also
> >happens in the pelvis.  This is normal."</FONT></DIV>
> ><DIV> </DIV>
> ><DIV><FONT size=2>PLEASE GO TO THE ABOVE WEBSITE TO READ THE REST OF > >THIS
> >ARTICLE.</FONT></DIV>
> ><DIV><FONT size=2></FONT> </DIV>
> ><DIV> </DIV>
> ><DIV><FONT size=2></FONT> </DIV></BODY></HTML>
> >
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> >
> >------------------------------
> >
> >------------------------------
> >End of ADHESIONS Digest 2788
> >------------------------------
> >****************************
>
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>End of ADHESIONS Digest 2792
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