Re: Hello - It's Been A Long Time

From: Sally Grigg (LostCst@mcn.org)
Tue Jun 10 21:42:47 2003


Dear Lesa, Welcome back, remember me, Sally Grigg from Northern California. http://www.howardcreekranch.com It's good to hear from you, but I'm sorry you are still dealing with such pain. Spray Gel is probably the new barrier you have heard about. Unfortunately while a study was commenced here in the U.S.A., it was withdrawn and is being redesigned. I wish they would hurry up but hopefully the new study will be better designed and relate more towards people with adhesions. In the old study participants needed to have their female organs. The only way at this time to have SprayGel is to go to Europe or Australia. I have been to a wonderful doctor, with many years of experience and incredible hands. He does not use carbon dioxide and uses spray gel. His name is Dr. Kruschinski near Frankfurt, Germany. There are many, many posts about him on this board and you can go to his site here also. If you can't find what you need email me privately at LostCst@mcn.org or ask on the board again. Whatever you do please try to research all the developments in the last few years. However,basically its the same old thing with most American doctors, meaning that they don't believe adhesions cause pain and if they operate, most of them wind up hurting you. There are very few really good adhesions surgeons in the whole world. That's quite a statement I know, but its true. Hope to hear from you again. With kindest regards, Sally Grigg

At Tue, 10 Jun 2003, Lesa wrote: >
>Hello all! It's been a really long time since I've posted a message
>here. Things have been about the same with me. For all of you who
>don't know or remember me, I'm on the quilt, you can read my story
>there. Tonight I was searching the archives to see when I first began
>experiencing my "abscess", sure enough all the emails were there and I
>was able to gather all kinds of dates as to when this all first started.
>I have been taking oxycontin now for over a year and it seems to work
>well except for the past month or so the pain was fierce, nothing seemed
>to help, then all of a sudden....BOOM, my abscess was back with a
>vengeance. It popped on it's own this time and boy was it gross. I
>went to the doctor on monday and he just packed it, told me to go home,
>take it easy and come back tomorrow. I guess he's going to repack it, I
>don't know. I just want to know why after five years is it happening. I
>have an appointment with the surgeon at UCLA next Tuesday. I need your
>help...is the adhesion barrier that they have been using in Germany
>approved for use here in the US yet? I need to be loaded up on info so
>when I see the surgeon, he'll see that I've done my homework. Any info
>will be greatly appreciated. I need statistics, what has helped you?
>Has anyone had the surgery in Germany and can give me any advise/help?
>Has anyone had surgery here and has it been successful? I had the UCLA
>appointment already scheduled to see about doing the lysis of adhesions,
>the flare up of the abcess is just coincidental.
>
>So....any help/advise/etc. will be appreciated. I look forward to
>being a part of this site again.
>
>Love to all,
>Lesa


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