Re: adhesions/gallbladder
From: Karen Steward (kann@charter.net)
Tue Jun 10 19:39:34 2003
Rick,
I think everyone here can relate to the blame that doctors tend
to place upon the patient.....more than once we have left in anger,
tears and frustration.......It seems if you don't accept the diagnosis,
then you are a "problem" patient......and God forbid that you should
begin asking too many questions!
Melissa and I went in and out of doctor's offices for a long miserable
13 (almost 14) years......and each time the answers were the same,
they would not put all her symptoms together......but wanted us to go
to a different specialist for EACH symptom.........it was driving me crazy.
No wonder they all say you need an antidepressant--after dealing with
them you need SOMETHING!!
I can't tell you the times I was told I needed to accept her illness---had
we had a positive diagnosis.....I COULD have accepted it---but each
doctor had a different diagnosis than the previous!
Several times Melissa said, "mom, maybe I am crazy, maybe everyone
has this type of pain and I just can't handle it"............(this said
after
bouts of vomiting, migraines, etc.)......she really began questioning
her illness as the years wore and there was NO HELP........
I am so in hopes your daughter is NOT developing problems.............
so glad you are reaching out to others that know what you are dealing
with....
Please keep us posted!
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Tuesday, June 10, 2003 12:10:02 PM
To: Multiple recipients of list ADHESIONS
Subject: Re: adhesions/gallbladder
Dear Karen:
--
Thank you for your kind and encouraging comments. I was especially
moved when you shared of your daughter's experiences. I was 22 when I
first felt ill, but can not imagine the trauma of dealing with this type
of pain at 13. I'm happy to hear she is feeling so much better.
My daughter is 12 and is showing signs of developing inflammatory bowel
disease. We are on a watch and wait system at the present, and it hurts
to see her suffer so.
What bothers me the most is the fact that most Doctors do not fully
understand, or recognize this condition. It is so easy to blame the
patient if the diagnosis is not crystal clear. That is what I am
dealing with the most. I try to take a small dosage of Vicoden each
day, but some Doctors treat me like I am only after drugs. I am seeking
relief and freedom from this chronic pain that so few people understand.
Thanks again for your response.
Rick Zollo
.