Re: Newbie - anyone with ureters involved?
From: Karen Steward (kann@charter.net)
Sun Jun 8 10:51:47 2003
Hi Susie Q,
I am sure a lot of adhesion sufferers have had ureter
involvement, as Melissa did, and I have heard others say so as
well. In Melissa's case there wasn't much that WASN'T
involved! I agree with you, thank goodness for a doctor that
stops when unsure of himself or the procedure! Melissa had
all the adhesions in her body removed, becoming adhesion
free with the surgery Dr. Kruschinski performed. She had
2 prior surgeries in the US that left her in pain and within
months she had areas of new adhesion pain. So, for us, there
was no question of what needed to be done.....the only people
reporting success had been to Dr. Kruschinski in Germany.
As far as testing goes......I know of none, as adhesions do not
show up via tests....only by laparscopic surgery.
Are you experiencing problems with urination? Melissa did--
and could not sleep at night for frequent trips to the bathroom.
The second US surgeon told her he removed adhesions from the
ureters, but that her bladder was extremely small......
long story short, her problems continued, along with a host of
other problems......
She now is free of ALL the problems and small bladder or not,
she is sleeping through the night.
Hope this helps some---sorry you have this painful problem.
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Sunday, June 08, 2003 02:20:25 AM
To: Multiple recipients of list ADHESIONS
Subject: Newbie - anyone with ureters involved?
Hello,
--
I have been lurking for a few months, and would like to say "hi". I
have searched the archives, with no specific answer to my question.
During my last lap the surgeon left a dense "polyp" of adhesions behind.
He suspected that my utero-sacral ligament and ureter are both encased
within this "polyp". He did not feel comfortable continuing with the
procedure, he was afraid of lysing the ureter and wrecking my kidney. He
wanted me to see another surgeon to have the polyp removed. Someone
with more experience in nephrology. I appreciate that he didn't
continue the surgery when he was not confident, but now I am in a
dilemna. Surgery or no? I am in pain, but it is not overwhelming. I
should invest in the ibuprofin companies that keep me vertical each day!
But, ibuprofin is also hard on the kidneys. Would anyone please let me
know if you have had ureter involvement, and how your surgeon/physician
treated you? Any tests I should request?
This board and website has been such a wonderful resource, I appreciate
any responses. Thanks.
luck, SusieQ
.