Re: A hysterectomy 'will not' cure endometriosis!!
From: Karen Steward (kann@charter.net)
Thu Jun 5 18:48:43 2003
Cindy,
Your story has a familiar ring to it....the one I have lived with my
daughter. Thank God you are trying to find the answers with her!
So many hurting people have no support and many have family
members and friends that do not believe their pain.
You know, as I know, her pain is REAL. Melissa could not work and
was merely existing. Yes, she had endometriosis, but the 2 surgeries
she had in the US only worsened her condition.........I was not told the
adhesions were the debilitating factor of her sad state.
I believe I am correct when I tell you a CT scan will not reveal adhesions.
A laparoscopic procedure must be performed. The only GOOD outcome
of Melissa's first surgery were the photos provided by the surgeon of a
FUSED pelvis..........ADHESIONS.........the surgeon stated
that he was surprised she had lived with such incredible pain!
And to think that many are told that adhesions do not cause pain!!
If organs are FUSED together--how can the body function properly??
It cannot! Thus, PAIN follows!!( I get angry at the doctors't that ignored
Melissa's pain for 13 years)~
Dr. Daniel Kruschinski was the answer to our prayers. Melissa is no
longer in pain and is FINALLY planning her life! Yes, it required a trip
to Germany and no, our insurance did not cover it, but we would do it
all over again tomorrow for the results of that trip. There is nothing like
finally finding the pot of gold at the end of the rainbow!! It seemed it was
unattainable------then suddenly the miserable years fall away and you
are left holding the prize! I am forever grateful to Dr. Kruschinski. He
didn't ignore her pain or my questions. He reviewed her operative reports
and emailed me back telling me he was sure he could help Melissa.
You have asked for input, so I am only sharing our story....others may have
a
different story..............but now you know you are not alone.........many
have searched for the answer to unending pain. I hope you find the answer--
for you and especially for your daughter.
Best Wishes to you both,
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Thursday, June 05, 2003 01:38:54 PM
To: Multiple recipients of list ADHESIONS
Subject: Re: A hysterectomy 'will not' cure endometriosis!!
I have a daughter that will be 30 years old this October and she has had
a tremendous amount of abdominal pain and has already had her gall
bladder removed because they thought that was part of her problem. She
was dignosed with a servere case of endometriosis a couple of years ago,
but the operation has not prevented her pain. She has had a colonoscopy
and other screenings, but still seems to be having the same servere pain
in the same area. I was wandering if I could get your input on her
situation and what you think her next step should be. She was told also
by her OB/GYN doctor that it was likely the endometriosis would return.
She is having a CT scan today to see if they can detect anything
different. Please give me your input on this. Thank you.
--
At Sat, 17 Aug 2002, melissa wrote:
>
>At Thu, 7 Dec 2000, Helen Dynda wrote:
>>
>>Many women are told that a hysterectomy " will cure" endometriosis . This
is incorrect!! A hysterectomy will NOT cure endometriosis!! All a
hysterectomy will do is create more problems -- such as:
>>
>>1.) inability to have children,
>>2.) prolapse ( displacement ) of other body organs -- happens when
reproductive organs are removed.
>>3.) a hysterectomy WILL cause adhesions to form!!!
>>
>>A doctor, who tells a woman that a hysterectomy will cure endometriosis,
does not have up-to-date knowledge about endometriosis!! Just because a
doctor is an Ob/Gyn does NOT make him or her an authority on endometriosis!!
Gynecologist take special training in order to help women, who have
endometriosis. They do not deliver babies! Their practice is limited to
endometriosis!!
>>
>>The best endometriosis specialists ( Dr. Reich is one of the best! ) do
NOT believe in the use of drugs -- such as Lupron, etc. They believe that a
woman has the "best chance" to be helped by perfoming a procedure known as
excision surgery." The best endometriosis specialists believe that "excision
surgery" is the best and most successful way to remove "every trace" --
especially all microscopic traces -- of endometriosis; and they actually
have the endometrial tissue examined by a pathologist - while the patient is
still in the operating room!
>>
>>Excision of every trace of endometriosis gives a woman an excellent chance
to triumph over endometriosis. Unless "every trace" of endometriosis is
removed, there is a good chance that the endometrial implants will return
and...the implants will bleed and cause more scarring!! So nothing has been
gained!!
>
>I just read this and am very concerned. I had a radical hysterectomy
>for endometriosis 1 and a half years ago. I have had a few episodes of
>pain after the hysterectomy and did not attribute it to anything. I
>just spent three days in the hospital with severe abdominal pain for
>which the doctors could not find a single thing to relate it too. I am
>taking estratest. I am looking for as much info as I can because I am
>wondering if the endometriosis has returned on other organs. I did not
>know this was possible. My doctor is an endo specialist and I thought
>he was wonderful...but he did not tell me this. Please tell me if you
>have any info...if the endo can be back even in a small form and what
>other women do about this. Thank you!
.