Re: anyone have any suggestions?

From: Dawn (dawn@naisp.net)
Wed Jun 4 05:49:38 2003


Dear Ann Marie, Sorry I have not been around for a bit. You had mentioned that you were going to a pain clinic @ Brigham and woman's. This is fantastic news. If you are going there the Dr. I had mentioned... uero/gyn I had mentioned is moving there on June 15th....Since you have cystitis he could be so helpful to you. He also practiced at NE medical center in addition to the hospital I saw him thru....perhaps you even know him. He understands that adhesions cause great pain and a Dr. Brian Walsh is the chief of Gyn surgery and is sensitive to the plight of ARD sufferers. These gentle men could take over your care and certainly help you get the things you need to get to Dr. Gerhart. I know you are anxious to have surgery, and I hate to sound like a bubble buster but surgery may not be the magic wand you expect. You will be with a surgeon who is an adhesion expert but there are no guarantees. Think about it...if you would like to see this doctor...he does not take new patients but has promised he would see any adhesion patient i referred. I can call before you do and ask for them to expect your call. You have a right to a second opinion...you have a right to change Drs. with your health plan. Hope this helps...please email me for the Dr.'s phone number if you'd like to give this a try. Best wishes, Dawn >
>Well, I'm still trying to prusue my pcp to talk to my insurence and let
>me go to Pa to have surgery with Dr. Gerhart. thats all it will take
>is for my pcp to make 1 call and tell my insurence that he thinks it
>will benifit me. The problem: my pcp insist that because we live in
>haverhill mass and i go to boston DR's where there is in fact alot of
>technology that there HAS to be someone who can help me without going
>out of state, but there isnt to my knowledge, me and my mom have tried
>looking.I know most people are going to say go to germany not pa, but i
>cant, first of all my mom cant fly we def. dont have the money, and my
>pcp no way would let me go out of the country. so my next best hope is
>dr gerhart, My pcp told me he doesnt feel comfertable sending me to
>another state to someone he doesnt know, so i offered to give him dr.
>gerharts phone number adress and e-mail and he said he still wouldnt
>feel comfertable, I have found what seems to be a really nice and caring
>pain dr in boston at brigamen womens hospital, she is moving there from
>another hospital, so i cant get an appt. right away, so my pcp has been
>dealing with my pain meds ( oxycontin 40mg 2x a day and max of 2
>percocet a day for breakthrough pain. and he jst added neurontin and
>vioxx) so i would think he would want me to go al least try to get ride
>of the adhesions instead of taking all these meds. Even on all these
>meds i still get a good ( actually bad ) amout of breakthrough pain. he
>mentioned that the next time i run out he might switch me to the
>percocet fast release withput tylynol.) i am very thankful that he is
>some what understanding about my adhesions and pain but i know i repet
>myself alot but i'm just so fusterated, and begining to get depressed,
>I'm 19 have had the same boyfriend for 6 years and am engagged . he is
>in the navy so we will planning a wedding sometime next year, and with
>all the problems i have i would like to start a family young,my mom wnet
>through puburty when she was 12 and started menopuse when she was 30 (
>my aunt 33) and due to purcausious puberty i started puberty when i was
>7! i had to get a shot in my butt every month for 2 years so i wouldnt
>get my period at 7 and at 9 stop the shots and got my period a month
>later, so for all i know i could go through puberty when i'm 27 for
>cryin out loud! Girls I'm so sorry to come on here and write a book
>everytime and bable on but, i just want to stop or at least make the
>pain somewhat better, without having to feel guilty from taking 6 meds
>every night, and i really want to have a family before its too late,
>besides all the hormonale stuff i only have 1 ovary plus massive
>adhesions and have been told by 2 gynos that if i can get pregnant with
>all the adhesions it is going to take tons of fertility drugs. Like i
>said I'm so so sorry, to write so much and complain, i just feel like
>sometimes my mom gets fusterated when i complain to her and everyone on
>here understands what i'm going through and how i feel( which is getting
>to be very depressed)I just want to be able to do even some of the
>things every other 19 year old does instead of lying down in bed because
>i'm in pain I mean how am i suppose to get married whn i cant even have
>intercourse with my fiennce ( when he can come home )because it hurts
>too much(he has been so supporting through all this i just feel that its
>so unfair to him that i cant even go to the movies usually because i
>feel so lousy) I guess i just need to find a way to get my pcp to let me
>go to pa so i will at least have a chance to have a somewhat normal
>life, any suggestions would help so much, thanks SOOOOOOO much for
>listening to me complain and probably bore evryone to death. i dont
>know what i would do with out this site.
> AnnMarie

--
I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.

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