Re: HOME FROM GERMANY

From: chiggerkat@futura.net
Tue May 27 00:10:48 2003

GLAD TO HEAR FROM YOU! QUESS I'M NOT THE ONLY ONE UP AT MIDNIGHT WITH PAIN SO BAD THAT YOU CAN'T SLEEP. I'M GLAD I FOUND THIS SITE. I THOUGHT I WAS GOING CRAZY-THE PAIN IN INTOLERABLE. MY PROBLEM STARTED IN 99 WITH GALLBLADDER SURGERY, THEN 1 MONTH LATER THEY FOUND A "ABCESS" ON MY RIGHT OVARY. WHEN THEY WENT IN THEY FOUND IT HAD SPREAD TO THE OTHER ORGANS-BLADDER,COLON, YOU NAME IT. THEY SAID IT WAS LIKE PEELING WALLPAPER. AND IF THEY MISSED ANY IT WOULD GROW BACK BECAUSE IT CONTAINED HORMONES THAT MADE IT GROW. THEY USED THE WORD "OVARIAN REMNANT SYDROME" ANYONE HEARD OF THIS? 2 MONTHS LATER THEY HAD TO TAKE THE LEFT OVARY. WENT 9 MONTHS IN PAIN BECAUSE THEY DIDN'T WANT TO OPERATE BECAUSE OF "SCAR TISSUE". THEY WENT IN AND REMOVED A "MASS" OR "CYST". SEVERAL MONTHS LATER WOKE UP WITH PAIN IN THE BACK. THE MASS HAD COME BACK AND BLOCKED THE URETER. THEY REMOVED IT AGAIN AND PUT A STENT IN. THIS HAS HAPPENED 7 OR 8 TIME-I KEEP FORGETTING HOW MANY. LAST YEAR I DEVELOPED A HERNIA FROM ALL THE INCISIONS. THEY REPAIRED IT BUT 3 MONTHS LATER I DEVELOPED ANOTHER ONE. THIS PAST MARCH I WENT IN FOR REPAIR -OUTPATIENT SURGERY TURNED OUT TO BE 5 HOURS LONG. I HAD 7 HERNIAS AND HAD TO STAY 5 DAYS. WORST SURGERY I EVER HAD. THIS WAS A NEW INCISION. 3 DAYS AFTER BEING HOME I RETURNED TO E.R. IN GREAT PAIN. MY URETER HAD SHUT DOWN AGAIN DUE TO SCAR TISSUE.THEY PUT A STENT IN FOR 6 WEEKS THEN REMOVED IT. I AM IN SO MUCH PAIN. THE UROLOGIST MAKES ME THINK ALL I WANT IS PAIN PILLS! WELL, HE"S RIGHT! ANYTHING TO STOP THE PAIN. MY BOWEL MOVEMENTS ARE SOOO BAD! DOES ANYONE ELSE HAVE THIS PROBLEM? I CAN'T SEEM TO PASS "GAS" EITHER. THE WORSE PART IS I CAN'T STAND UP STRAIGHT SINCE THE SURGERY.I WALK BENT OVER. IF I TRY TO STRAIGHTEN UP IT PULLS AND I HURT IN THE GALLBLADDER AREA-ONLY I DON'T HAVE ONE. THE UROLOGIST SENT ME BACK TO THE SURGEON WHO SAID THERE WAS SOME FLUID BUILDUP BUT IT SHOULD GO AWAY-ITS BEEN ALMOST 3 MONTHS! AND ONCE AGAIN-I HAVE ANOTHER HERNIA! YOU KNOW WHAT THE BAD PART IS-I HAVE NO INSURANCE. MY ALCOHOLIC HUSBAND BEAT THE CRAP OUT OF ME BEFORE ONE OF THE SURGERIES SO I LEFT HIM. AND HE DROPPED ME FROM THE INSURANCE OVER A YEAR AGO. I CAN'T WORK AND HAVE APPLIED FOR MEDICAID BUT THEY SAID I WAS "DISABLED". SO I AM LOOKING INTO DISABILITY BUT WAS TOLD I'D BE TURNED DOWN THEN I'D HAVE TO GET A LAWYER. I TRIED TO WORK AT CHRISTMAS SO I'D HAVE THE MONEY TO BUY MY SON SOME PRESENTS. I MADE IT 6 WEEKS BEFORE I HAD TO QUIT.I'M A CASHEIR AND CAN'T BE ON MY FEET VERY LONG. I'VE HAD TO MOVE IN WITH MY SISTER AND HER FAMILY-THANKFULLY THEY HAD A BASEMENT AND WE FINISHED THAT AND ME AND MY SON AND OUR 3 CATS CALL THAT HOME. I HAVE NO CAR. MY SON HAS ONE BUT YOU KNOW HOW KIDS ARE-THEY HAVE A LIFE OF THEIR OWN. HE'S WONDERFUL,THOUGH. WELL, I QUESS I RAMBLED ON LONG ENOUGH. DIDN'T MEAN TO BURN A HOLE THRU YOUR EAR-JUST NEEDED TO VENT MY FRUSTRATION. KEEP THE FAITH SHERRY

-----Original Message----- From: "Karen Steward" <kann@charter.net> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Date: Monday, May 26, 2003 11:35 PM Subject: Re: HOME FROM GERMANY

Hey Sherry!

Glad to hear you are working in Arkansas! However, I am sorry to hear you suffer from adhesions.......my heart goes out to you. Keep up the good work. We desperately need ARD recognized for the debilitating illness that it is! Our heath insurance companies also need to take notice and provide out of country payments for ARD patients seeking help in Germany.......since we cannot get the help here! If we all pull together, we will succeed in bringing change!

Karen

-------Original Message-------

From: adhesions@adhesions.org Date: Monday, May 26, 2003 10:35:35 PM To: Multiple recipients of list ADHESIONS Subject: Re: HOME FROM GERMANY

MY NAME IS SHERRY AND I TOO SUFFER FROM ADHESIONS. I THINK IDEA ABOUT SENDING THIS INFO TO OPRAH AND OTHER SHOWS IS A GREAT IDEA! I'VE SENT SOME INFO TO MY LEGISLATORS AND CONGRESSMEN HERE IN ARKANSAS AND HOPE THEY FIND THE INFO USEFUL! KEEP UP THE GOOD WORK-ITS NICE KNOWING WE ARE NOT SUFFERING ALONE! -----Original Message----- From: "Karen Steward" <kann@charter.net> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Date: Monday, May 26, 2003 9:34 PM Subject: Re: HOME FROM GERMANY

Hi Sue,

Well, it seems it is just you and me tonight--so will answer you again!

You can e mail Dr. Kruschinski directly and ask him anything.........no it is not tasteless to ask him--all of us that have been there have e mailed him at one time or another. He will need your operative reports if you have had prior surgeries and also give him a run down of your current issues.

I am smiling over your question concerning Oprah. What a splendid idea!

Many of us have contacted Oprah........we are only waiting for Oprah now to contact us! You are correct, there is power in numbers!

Sincerely, Karen

-------Original Message-------

From: adhesions@adhesions.org Date: Monday, May 26, 2003 09:15:08 PM To: Multiple recipients of list ADHESIONS Subject: Re: HOME FROM GERMANY

Hi Everyone, I'm glad things are going well in Europe! (I don't mean that sarcastically) I found the list of surgeries, but am wondering if you folks who have been there think it to tasteless for me to come right out and ask on the Good Dr.'s website what an estimated price would be? What info do they all need prior to going over? Plane fare isn't a big deal, for I have several friends in airline industry, but the actually surgery and after care.. . . . I'm a single Mom on disability in Grad school and things are tight the way it is. Also, has anyone ever tried to get the word out about adhesions out thru a major show like Oprah? or even the Today Show? Maybe if we flooded their sites. There's power in numbers. I'm going thru a colonoscopy tomorrow-Memorial Day in the park and I could only smell the food , but I'll live. Strange as it is, after drinking the Nylyte drink and spending 5 hours in the bathroom I think my abs actually feel better. Has anyone else ever experienced this weird happening? They think my adhesions may have plastered part of my intestines against my hip wall like they did last time, but are doing this just to make sure-I'm almost thinking they're doing it for fun or because they don't know what else to do and are looking for something they know about. I'm so glad I accidentally ran into this site! Thanks Everyone, for just being here. Sue Z

en Steward <kann@charter.net> wrote: Kathy,

Oh I am so very happy for you!!! See you are singing our song! You write the words Melissa spoke so many times, "No one can help me, I will always be sick"...............thank God and again thanks to Dr. Kruschinski--another gold medal!! Hooray!!

Kathy, I know how you feel--there is no way to express your gratitude to Dr. Kruschinski. I told him one thing I could promise, he will never lack for work, as I will continually tell the story...... and I do so every single day! I know there are so many people that are living a diagnosis that is incorrect and many others that know they have adhesions, but they submit to repeated surgeries (many unknowingly) that make them worse.........we must shout it from the rooftops......

I get sooooo excited reading your e mail--it is victory all over again.....I've never met you---but I share your joy!!

It is a good day!! So happy for you!!

Karen

-------Original Message-------

From: adhesions@adhesions.org Date: Monday, May 26, 2003 06:20:10 PM To: Multiple recipients of list ADHESIONS Subject: HOME FROM GERMANY

I am very happy to report that I am home from Seligenstadt Germany and that I am adhesion free!!! Dr. Kruschinski makes miracles happen or maybe God has made miracles happen through him. In either case, I am so happy I went to Germany. It was a wonderful trip and a successful surgery. I found his nurses and the staff at the Emma Klinik to be highly skilled and very compassionate. Everyone cared so much and wanted us to be comfortable. The setting is perfect. The tree lined Main River moves past the balcony window and provides a soothing experience for your recovery. We watched every ship that pasted wondering what their story was. The time went so quickly. The town is charming and there were different activities most days in the town square..ie antique show, farmers market, international singers. It rained often but that made the area a beautiful shade of green. This was my 9th and 10th(second look)surgery. The constant! pain that I have had since my hysterectomy in 1997 is gone. I still have some surgery pain but I expect it to be gone soon. The gasless surgery, SprayGel and Dr. Kruschinski are the answer. He is so committed to his patients ....he checked on me daily. This was unbelievable to me! I have never had that kind of attention. A big "thank you" to my cousin Margaret, who went with me. It was so great to be waited on at every turn. I want to thank Lisa for pioneering these trips and for writing a very helpful summary, Karen for taking the time to answer so many questions when she was dealing with a death in the family, Dawn for mentioning the words "nerve entrapment" in her post(and answering questions)and Pat C. for inspiring me to rethink my position on having another surgery. The person I am most grateful to is Dr. Kruschinski! He is so kind, dedicated, compassionate, intelligent and most of all skillful. His surgery has given me bac! k my life ...something I didn't think was possible. I had come to the conclusion that I would always be sick and that no one could help me. How do you thank someone for the best gift you have ever received? Dr. Kruschinski is making people well!!! I pray everyone will have this opportunity. Sincerely, Kathy

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