Re: HOW MUCH MORE DO I HAVE TO DO????????

From: Sally Grigg (LostCst@mcn.org)
Sat May 24 23:47:12 2003

Dear AnnMarie, I'm sorry you have to go through all of this pain at 19. Since you have to make decisions as an adult you have hereby become an adult. People can not treat you like a child. That's ridiculous. If you are in agony/dreadful pain you need relief. I understand the feeling that you don't want to take medicines which only mask your pain. Once you can get permanent relief you can dispose of the meds. Taking too much tylenol is bad for you so taking the oxycodein would be a good choice for breakthrough pain. Yes, many of us here have taken oxycontin and it works. It helps you bear the awful pain of adhesions. Your doctor who told you that you didn't need to go to a specialist is wrong. You definitely need someone who is a specialist and there are only a few in the U.S., two in Germany, and a few in Australia. "Hometown" doctors can do more harm than good when they operate. Most of them may have treated other people with adhesions, but if you are like the rest of us here your adhesions are nothing like your doctors have dealt with before. Please read the quilt, past emails, and other info on this site. It will really help you. Don't get discouraged. Its hard to wade through a lot of words, but you need to do research. Try searching here for operation, pain, doctors, etc. Whatever you want to know about. I had an operation a year just to keep alive. I went to Scranton, Penn but the adhesions were back within a week. They are excellent doctors but they are not yet allowed to use spraygel, the new barrier. I went to Dr. Kruschinski in Germany and he does not use carbon dioxide, does have incredible hands (very important) and uses spray gel (in my opinion this barrier will revolutionize the treatment of adhesions). You can email me personally at LostCst@mcn.org for more info on him if you want. I know its easy to get depressed and mad because no one seems able to give you answers. But believe it or not there are more answers than there used to be. Stay strong, and please don't beat yourself up just because you have adhesions. You do what you have to do. There was another young woman named Melissa who's mother, Karen Stewart posts on this board. Maybe you could talk to Melissa. Keep in touch. Love, Sally

At Fri, 23 May 2003, AnnMarie wrote: >
>Well alot has happened since I last wrote. First of all my pcp
>increased the dose of the oxy to 30mg 2 times a day and max of 3
>percocet a day for break through pain. and yesterday increased it agian
>to 40mg of oxy 2 times a day and max of 2 percocet a day for break
>through pain. He also started me on vioxx and meurontin today. I
>finially went to my appt. with the pain clinic that i waited forever to
>get into when i got there and explained basiclly everything thats goin
>on, he told me I was really too young for him to deal with and i needed
>to find another pain DR that could help me. The Dr. was extremly nice
>but the fact that they knew my age when i made the appt. and made me
>wait all this time to go there to tell me i was too young , made me want
>to scream, so he gave me the name of 3 adolesnt/child pain Dr.'s so when
>me and my mom got home we called the first 2 and one said 19 isnt really
>a child and another said i 19 isnt considered a young adult. Well what
>the hell am I then?! I'm so fusterated and feel so hopless i dont even
>know what to do anymore. I have to take SO many pills a day its sick,
>and my pcp said that he thinks goin all the way to PA to have the
>surgery with Dr. gerhart would be redicuous, because he doesnt know him
>and he insists that there is someone in my area who will do the
>surgery.I dont even know what to do anymore!!!! I mean if I dont take
>the 100 meds i take a day i have to live my life in agony, and when i do
>take them i feel like i'm not doing anything to help myself, because
>instead of al least trying to fix the problem by taking the meds I'm
>just masking it. If anyone has any advice for me, about anything (
>dealing with this boloney, about the vioxx or neurontin or the 40 mg of
>the oxy) it would help so much.Also one more thing, the pain dr i did go
>to that told me i was too young called my pcp and told him he didnt like
>the idea of taking the percocet for the break through pain everyday even
>if its one or two a day cause of the tylynol so when i run out of my
>meds my pcp mentioned oxycodone (percocet) without the tylynol fast
>relase for break through does anyone know anything about this? or been
>on this? SORRY THIS IS SO LONG AND I'M PROBABLY BORING EVERYONE TO DEATH
>I AM JUST SO FUSTERATED,AND NEEDED TO TALK TO SOMEONE WHO UNDERSTANDS. I
>ALSO HAVE ALOT OF QUESTIONS ABOUT THE MEDS. THANKS SO MUCH FOR
>LISTENING TO ME BABEL ON.
> ANNMARIE

Enter keywords:
Returns per screen: Require all keywords: