I am Kelly and unfortunately I can relate to your pain. I do have a question though. Is there a reason you would not want a hysterectomy? I don't know if you are planning for more children? Believe me I know that a hysterectomy is not the answer. I had mine in 2001 at 31 y/o. I did not get to have any children; but that is ok with me. I just wonder if it would not at least help with all the Cramping and Pain due to your cycle. I know adhesions will just come back...they did with me. I just wonder if a hysterectomy could alleviate some of your pain.
Kim I also had severe problems with my bladder. I asked to be catheterized many times just to drain my bladder; then asked if they could leave it in for a while just to give me a break from the pain. I know that is not a long term answer but it kept me sane till I could figure out what to do next. I ended up with a urologist that dilated my urinary tract. This was one of the most painful procedures I had ever had. That was about a year ago and I have not had any problems. Every now and then I feel that burning spasmy feeling and I just use Estridiol cream to make it go away. (For some reason being low in my estrogen really aggravates my urinary tract.)
Have you thought of a second opinion? It is not a personality thing...or any thing against you OB/GYN. Sometimes fresh eyes and ears are just what you need to get answers.
Take care, Kelly Marlow
-----Original Message----- From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of Kim Sent: Thursday, May 22, 2003 2:02 PM To: Multiple recipients of list ADHESIONS Subject: Adhesions: surgery or not to have surgery
In 1996 I had a c-section. In 2000 during my 2nd c-section, my ob/gyn came upon the problem of my bladder and uterus being completely attached. During pregnancy it is common that the bladder is sensitive as the uterus presses upon it and makes urination (or the need to) uncomfortable. Since the 2nd c-section, I began having abdominal pain and the pain in my bladder has worsened. It hurts to even have our children sit on my lap. During 2002, my monthly cycles began to be extremely heavy, painful and would last 7-14 days. I figured this is what happens once you get closer to age 40. In late December 2002 I had abdominal pain that was worse than normal and went to my gyn. She did an exterior and interior ultrasould and could not locate my ovaries. We opted to do a diagnostic lapraoscopy. She was able to take pictures of adhesions attaching my uterus and bladder together and attaching to the interior body cavity wall. Now, I understand that adhesions are just something you have to accept as a reaction to abdominal surgery, but these adhesions are causing horrible pain. My periods are unbelieveably heavy and painful. I have horrible cramps two weeks before my period and just starting with my last cycle the cramps have continued even after. I have chronic menstral cramps and back cramps, my bladder is so sensitive that I can have just the tiniest amount of urine in my bladder and it will feel to me like my bladder is 100% full. I am also having pain after eating. Not in my stomach, but intestines. From everything I have read and researched, there is nothing to do about adhesions. They can be un-attached or removed, but they come right back - sometimes worse than before. My gyn, during the laprascopy, found an unknown lump in the outer lining of my uterus. We have discussed a hystorectomy, but now I'm not so sure if having a hystorectomy will solve the adhesion problem. How can I get unlimited information on my options? I need some past and current experience stories from those of you that post here. I'm nausiated all the time, cramping all the time, my lower back hurts all the time. CAN anything be done? Is there a "magical" pill?