Another problem is that I can not find a specialist who is covered by my insurance. I call the insurance company and they say they don't have acess to that info. Called every OB on my list and they say they can't release it. How are we supposed to find help?
Final thing is this. I never had any abdominal trauma at all. No ovarian cysyts, no appendectomy, no car crash. I grew up very ill so never had childhood accidents. The only think I can think of is that there is some bizarre connection between all my health problems. I was diagnosed with Celiac Sprue at 9 (gluten intolerance). Have asthma and severe seasonal and food allergies. Had 6 kidney stones in a 5 year time span. Am so sensitive to steroids and any painkiller over tylenol or motrin that I have been hospitalized for dehydration several times. And now this. Am not a hypocondriac contrary to my loving brothers theory. Every single time I have been sick it has turned out to be very real problem. Can a persons body just be that bizarre that it seems to reject everything, even itself?
Thanks for letting me vent.
-- NinaAt Tue, 22 Apr 2003, Joyce wrote: > >I also had adhesions with no previous surgeries. My Gyn was also >expecting endo but when he did the Lap, he found adhesions on my Colon. >He lysed them and they have not come back but I now have pain in my >back, flank area, that started out feeling like kidney infection. >Numerous tests show kidney to be ok. I suspect adhesions on tranverse >colon (have bad pain about 30 minutes after bowel movement) and >diaphragm (am short of breath and when pain gets bad it hurts to >breath). Also at the same time my back pain started I got an asthmatic >cough. I've had back pain and cough now for over 5 years. Cough is >controlled pretty well with asthma meds but this back pain, can't find >any help for it. I got a nerve block with steroids, and though the >doctors do not believe this, I hurt worse after the nerve block. Now it >hurts to touch my side as before it did not. I am receiving physical >therapy to try and strengthen stomach muscles (I had 4 laps in all). I >also had Pelvic Congestion on left side pelvic area before I had a >hysterectomy last year. I'm 38, no kids, but could not take the Pelvic >Congestion anymore. It's horrible. They hyst took care of that thank >goodness, but sometimes I wonder if my back pain has to do with enlarged >veins since I had such large ones in my pelvic area and they caused such >pain. I don't have a clue where we go for answers. I deal with this ok >most of the time. Work 40 hours most weeks, come home and rest. All >the extra doctor appts and physical therapy appts. make it hard to get >40 hours, have to work late a lot of times to make up time, which >doesn't help the fatigue, but we do what we have to do. I'm at a point >where I'm just soooo tired. I understand what you are going through. >It's not easy. I find reading this board helps me to know I'm not going >crazy. The doctors sure make me feel this way. As for the >"spontaneous" adhesions, I think mine may have come from ovarian cysts >rupturing.... I always had ovary pain on left side where my first >adhesions were found. Well didn't mean for this to get so long, just >reading your post and all the others just sounds so familiar and it just >seems like there is nowhere to turn for help.... I hope we can all >found the help we need one day. > >-- >Joyce > >At Tue, 22 Apr 2003, Nina wrote: >> >>Started "getting sick". About 4 years ago. OB tried me on all >>conceivable oral contraceptives in order to control what he anticipaited >>was Endo. Then 20 months ago appetite was so poor and pelvic pain so >>bad went in for Lap. He was surpriesed that instead of Endo it was >>normal scar tissue. He found 3 "massive" adhesions binding my bladder >>to the pelvic floor and wrapping the bowels. Problem is I had never had >>previous surgeries. About 1 month later again started feeling that oh >>so familiar tightness in RLQ. Went in for 3 mo F/U and he told me that >>it was not possible to grow back so quickly. 6 months after Lap went >>into IBS crisis and have been dependent upon Miralax daily ever since in >>order to maintain bolwel function. Around the same time began having >>excrutiating upper back pain that had such a crushing sensation that it >>would make me sick and affect my ability to breathe. Pain would wrap >>around to my chest. During the entire time flipped from one rx to >>another to control growth and symptoms. 2 weeks ago went in for my >>second Lap in 2 months. Results were 2 hand size adhesions that had >>adhered my R and L lower bowels to the abdominal wall, and a 2 handed >>size piece that wrapped from the colon, around the intestines and to the >>ovarian tubules. >> >>It is now 2 weeks post, and I am having RLQ cramping again. The other >>concern is that the back pain has not really subsided since the lap. MD >>at F/U appt said it is because "they had to beat me up inside" to remove >>tissue and tio give it 4-6 weeks. >> >>First question is: Is it possible for adhesions to form further up the >>back where they can not find it with a lap? >> >>Second question is MD has recommended Lupron or Merian (an IUD) or Depro >>to put me into early menopause. I am 30 years old w/ the intention of >>getting pregnant at some point in the future, but do not want to have to >>rush into it just because of adhesions. I have no chidren yet and have >>been dreaming of mine since I was 9 years old. Is artificial menopause >>the common solution to spontaneous and unexplained adhesions? Until we >>make a decision I continue on Miralax and Ortho >> >>Any help would be appreciated >> >>-- >>Nina >> >-- >Joyce (other posts may have been, BJ or KJ) >