Re: germany?????

From: Carolyn J Meadows (
Sat Apr 12 10:08:52 2003

It is very difficult not to be biased when one feels they have come back from such pain and misery as many of us have. Check the doctor's success rate, if they don't know then this is not a good sign. My surgery was Feb. 20, 2003, I am having wonderful days. Takes awhile to get over soreness, swelling and to get energy back. The sun looks brighter, birds sings louder and the days are more beautiful. We who have been wish this for all of you who are suffering. lol Carolyn

>----- Original Message -----
From: "Dawn" <> To: "Multiple recipients of list ADHESIONS" <> Sent: Saturday, April 12, 2003 8:53 AM Subject: Re: germany?????

> Dear Kristiee,
> All the surgeons in the sponsor section of the IAS have been reviewed in
> person during actual surgery by the IAS to ensure that the highest
> quality adhesiolysis can be secured for us, the ARD sufferer. The IAS
> does so much for us behind the scenes that not many are aware of. If at
> all possible we should support the IAS financially as they continue to
> break new ground and advocate for us in so many ways. If anyone has the
> notion that the IAS makes money in anyway and I know some is
> simply not the case. Nuff about that. Right now Germany is considered
> to be your best chance to be adhesion free, pain free. Many are tied to
> the states for insurance reasons and others are just plain scared to
> is hard to accept they would be better off somewhere else than
> the good ol USA but this is the case for now. It is cost effective too.
> Compared to going to the surgeons here who have no effective adhesion
> barrier to work with and the cost involved by going out of your
> insurance parameters for some serious sticker shock procedures that do
> not incorporate all the effective parts of successful adhesiolysis. In
> Germany you have Dr. Kruschinski who I believe has the highest success
> rate of all these doctors at about 99% cure rate and I am a great fan of
> his gassless lap approach. One less thing (no gas) to cause new or
> reformed adhesions and none of that horrible pain from the gas post op.
> He has ample experience with all aspects of adhesiolysis and related
> conditions that may go hand in hand with this disease. Then you have a
> second look lap that can check the effectiveness of the initial surgery
> and see if any new adhesions have formed they can easily be dealt with
> then.( I was adhesion free for my second look surgery) Then of course is
> his experience with spray gel. Spray gel is the only effective barrier
> we know of for now and it still awaits completion of U.S. trials. My
> greatest fear for all is that once spray gel is approved that many will
> seek it's use from general surgeons throughtout the states and spraygel
> alone is not the is a combination of all factors mentioned
> above. I feel many will be worse off and I urge you all not to set
> great stow on it's arrival but to educate yourself on all that makes for
> a successful adhesiolysis. I know Dr. Reich is Dr. Kruschinski's
> partner in Germany and performs adhesiolysis there in addition to a Dr.
> Korell. I was just about on deaths door when I made it to
> Dr.Kruschinski...horrifying pain, fecal incontinance, self catherising
> and walking with a cane. Now I live each day free from all this and
> feel I have passed a point where I would heave felt the return of the
> adhesions based on past surgeries. Dr. K. is my hero but the
> information on the other surgeons are there for you to see as well. I
> urge you to review the information and make your own choice...having my
> life saved has undoubtly made me very biased. I just pray for this
> relief for all no matter how they get there or who they choose. We are
> just starting to see people return from Germany in numbers that are
> letting people see that relief is there right now!
> Please feel free to contact me if I can be of further help. Dr. K.'s
> liason here is Lisa Graven and her email address can be found in the
> Endo/Gyn sponsored ad on this site as well as the adlap surgeons and Dr.
> Lyons...I do my best to not
> let the board turn into a Germany advertisement as many people come to
> the IAS site for immediate help and support, all the information needed
> to make an educated informed discision lies right here in the message
> board archives and thru the sponser ads and their links. I do my best
> to keep my humble opinion to myself as this is a very tough, and
> personal choice but if someone asks me well...
> Love and pain free wishes for all,
> Dawn
> >
> >Hi...I have a question.....Can't some doctor go visit with the Dr K in
> >Germany and learn what he is doing? Seem's to is a no brainer
> >that over 600 people from this quilt would be his patients......just
> >wondering.
> >Kristiee
> >
> >At Sat, 12 Apr 2003, Dawn wrote:
> >>
> >>Dear Heidi,
> >>Boy, I know how you feel. Are you having bowel problems too? Thats
> >>probably why the docs want you off vicodan. Most pain killers given the
> >>ARD sufferer are narcotic and cause bowel motility problems awful
> >>catch 22. I was also put on duragesic patch and wow it made a world of
> >>difference. I also started having problems urinating though...then to
> >>self cathing all the time. Not good! The ureo/gyn said I had nerve
> >>damage. I started to waste to Germany and my hero...Dr.
> >>Daniel Kruschski. When he preformed my adhesiolysis he found my poor
> >>bladder attached to my liver and streched across to my bowels. 36 hours
> >>after surgery I asked to leave to hospital as I felt brand new
> >>again....still having problems peeing...Dr. K. said take off the
> >>patch...well I was terrified to but when I did I had no more problems
> >>peeing anymore. You see if you read the insert of the patch you will
> >>find one of the side effects is urinary retention from my experience it
> >>is big time retention. Before I went to germany I had gone to ER
> >>locally as I could not pee at all...they cathed me and told me to come
> >>off the patch...I did...then tests at the uero/gyn...after it was
> >>decided it was nerve damage they said go back on the patch and well the
> >>next thing I know I was in Germany. Between the distortion of my
> >>bladder internally with the addition of the patch and the side effect of
> >>urinary retention...all the pushing in the world would not produce pee.
> >>As to being addicted to the patch..I know many worry about this...
> >>The first time they told me to take it off it was difficult and I went
> >>thru tollerable but frustrating withdrawl symptoms but the second time I
> >>went off...48 hour after surgery with Dr. Kruschinki I took the patch
> >>off and never looked back, no withdrawl, I was no longer in pain! I am
> >>happy to say that thru the slew of meds I was on I am down to only 3
> >>pills a day total and will soon be weaned off pain meds and others soon.
> >>Sounds like you have a good doc that believes in your pain if you are
> >>given duragesic patch. If this was your surgeon as well then they are
> >>pretty sure I would imagine that you are in pain when they saw the mess
> >>caused by ARD inside you. Dearest Heidi, Please, when you feel well
> >>enough or have someone willing...get your operative report and read
> >>through it. Secure your surgical consent form too while your at
> >>it...always good to have for every one.
> >>You will see better exactly what happened to you during surgery....I
> >>find you get a little chat from your surgeon after you wake up from
> >>surgery...while you are throwing up or whatever post surgical la la
> >>state you are in, they usually tell you how well the operation went and
> >>they'll see you in 6 weeks for a check up....hmmm. Thats usually good
> >>enough for most folks but...
> >>I think you'll be surprised by your op report. If you do find yourself
> >>soon in pain again I would not hesitate to get the best and highest
> >>success rate adhesiolysis from Dr. K. in will see his
> >>information in the sponsor section under Uero/Gyn. Contact Lisa ( his
> >>IAS liason with contact info in the sponsor information) and send your
> >>op reports to him.
> >>He'll tell you if he can help you...most likely he can. I worry so that
> >>many have adhesiolysis here in the states as they are desparate to be
> >>out of pain. We in the states are no where near being able to perform a
> >>proper adhesiolysis and for now all hope for relief lies it
> >>is your best chance to become pain free and adhesion free...for less
> >>that the price of say a hyundai. The highest success rate of all, the
> >>best surgeon who preform adhesiolysis, gassless laparoscapy ( the gas
> >>itself can cause adhesion growth)...I can't say enough about
> >>gas pain after surgery and of course proper application of spray gel.
If > >>I can be of further service to you please do not hesitate to caonact me.
> >>Love,
> >>Dawn
> >>>--
> >>>Heidi
> >>>
> >>--
> >>I'm no doctor, just a fellow sufferer like you but I hope you consider
me a new friend. > >>
> --
> I'm no doctor, just a fellow sufferer like you but I hope you consider me
a new friend. >

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