Hi,
I am new to this site but so glad that I found it. I recently had a
hysterectomy for chronic abdominal and pelvic pain and stage 4
endometriois. My life has been a nightmare with this for years. I will
be 44 in a few months.
Of course each time they did a surgery there were lots of adhesions and
they had to be cut down. During my second lap for endo they severed the
inferior epigastric artery which caused a lot of bleeding. they were
not able to stop the bleed through the scope so they had to topen me off
and clamp off the bleeder. The clips they used were left intentionally
behind. After that my pain was chronic and worse. Lupron seemed to
help by shutting me down. Three more surgeries were needed after that
botchup because of pain. Ultimately I needed the hysterectomy and I
don't regret doing it. I no longer have horrific ovualtion with ovarian
cysts and terrible menstruation. HRT only made matters worse so I
couldn't take it. For 4 months after the surgery I was actually feeling
better. then.........it all started again. because of other health
problems I was having my dr thought it would be a good idea to take some
hrt.I was reluctant because of past history but finally gave in to their
instance. Immediatley after i started the hrt the swelling and pain
returned! I mean by day 5.I had to stop but a few weeks later my
endocrinologist because of thyroid and other problems wanted to try a
much lower dose and a natural hrt. I figured natural would be
ok...WRONG!! within 5 days the same thing happened byt the pain was
worse and continued for a much longer time. I developed bacterila
vaginosis which felt like i had been hit with a baseball bat and then of
course yeast whcihc was very irritating and could imagine the
iflammation inside. The dr. said this was ll die to the HRT changing
the ph and allowing things to grow....oh well. It's now almost 3 months
and i still have pain. 3 weeks ago my new gyn gave me a shot of Lupron
to try and burn out any endo that may have flared up on the bowel or
intestines.I am still in pain. last night i spoke to him and told him
that i think it maight be adhesions. He said to give the Lupron at
least 3 months. If there is a little endo on the bowel it could cause a
lot of pain. But, yesterday after a bowel movement I felt terrible
tugging and kinking on the right side. The only thing that got it to
calm down was soma. I don't know what to do anymore. The pain is
nightmarish, getting my lwer back and belly area. It is causing
swelling and problems after I eat during digestion and of course pain
and crampin with bowels movements.
If it is adhesions, he said that i might need another surgery. That
would be suregery #6!!! And there is no guarantee that it would help. I
don't know what to do. I'm hoping it is endo flared up by the HRT
because this way I have a shot at relief. It has worked for me in the
past. If not.....then next plan. Has anyone had any success with any
of the barriers they use? MY girlfriend is a nurse in cardiac surgery
and says they use the mesh barrier now around hearts to prevent the
formation of adhesions.I would loveot hear back from anyone who has used
them. Sorry this is so long but I am at the end of my rope anddon't
know anyone with similar problems to talk to about this.
thanks,
mel