Feb 2003, D & A wrote:
>
>hi
>i have major adhesions i just had my 15 sergery .when im in the hospital i
>do ask for certain pain meds which i know work for me .for a nurse to pin
>point someone just wanting to get is not right im sure there are some th t
>do but as for the things she pointed out i tell them what works and what don
>t and i know what each pain med is and yes i would get mad too if they g ve
>me something that i know don't stop my pain and why shouldn't we get mad we
>know what works and what don't i came across so real unreal nurses in the
>hospital .some saying o you don't need this pain meds let me tell them i
>know what i need to get my pain lessen and my doc gives it to me cause he
>knows what i can take and what does not work i feel some of these nurses
>should keep quite and do the doctors orders i been in enough times to kn w
>what nurses think and i found that 50 percent of them should not be nurs s
>due to there attitudes about our care .i don't know if anyone had a nurse
>tell them well i think you don't need this pain shot and made you suffer for
>a while before bringing it in i been there and think that a nurse should not
>tell a paients what they are feeling .i tell them if you were in my shoes
>laying here with all the tubes and had all these sergerys you wouldn't s y
>what we need .sorry if this afends anyone they are good nurses out there
>but there are bad ones too .
>
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Tuesday, February 04, 2003 06:19:14 AM
>To: Multiple recipients of list ADHESIONS
>Subject: Re: Ahesions Doctors ignorance!
>
>Hey Charlotte,
>
>--
>
>I am right there with you. I am on Oxycontin, Zanaflex, Sonata (to help
>me sleep) for the pain. I was taking Neurontin and have tried several
>antidepressants, which made me gain weight. I just recently quit the
>Neurontin. It seems to me that doctors only want to take care of their
>little area of specialty and nothing else. That is why I have been
>tossed back and forth between gyn and urologists. Hopefully the new gyn
>I went to last Friday will actually do something, although he doesn't
>believe adhesions cause pain. Jo, from Bombobeach, sent me a brochure
>that she put together about adhesions. I think I am going to take my
>doctor a copy of it. Somebody needs to get through to these people. I
>just wish for once that they could walk in our shoes and feel what we
>feel and have to endure what we do. They would surely think twice about
>whether or not adhesions cause pain. Pain is considered to be the 5th
>vital sign now. In nursing school they told us that "Pain is whatever
>that patient feels it is." Sad thing is, they teach them that in school
>and then some of them change their thinking when they get out. My
>sister is a nurse and she says they know which patients are there just
>to get "high". They will ask for a specific drug, they will say certain
>drugs do not work on them (like Tordol which is a non-narcotic), and
>they get mad if not given the pain medicine they want.
>
>I know you stated that you are on pain killers, anti-depressants, muscle
>relaxers, but are you seeing a pain management doctor for those or just
>a PCP? If you're not seeing a pain management doctor, maybe they can
>send you to one who can better manage your pain. Or maybe your pain
>management doctor can change your medicines to something different that
>might work better for you. My own pain doctor had to increase my meds
>just 2 weeks ago. It has helped a whole lot although now I have more
>than just the adhesions going on, so I am in a lot more pain than I have
>been in the past.
>
>How long ago did you have your appendix removed? I had an ectopic
>pregnancy in 1998 caused from adhesions and endometriosis. In all I
>have had 8 surgeries, 5 laparotomies and 3 laparoscopies. They have
>tried all the barriers that are in use currently in the US, sometimes
>more than one or two at a time, and the adhesions always come back. I
>have tried to be open (to a cetain extent within my beliefs) with what I
>have tried to help relieve my pain: accupressure, deep heat massage, hot
>tubs, heating pads, and of course my medications. My new gyn said that
>I should exercise every day and that would help break the adhesions
>down. But in my own experience, the more I exercise the more pain I am
>in. He says that the increased pain is temporary, but I think
>otherwise. And this comes from the doctor who believes the adhesions
>don't cause pain. How does anyone else feel about this?
>
>Why would you have to wait a year before you could find out about the
>adhesion pad or not? Is this the same as adhesion barriers? Just
>wondering.
>
>I have just recently come back to this site. I had started school and
>did not have time to read the posts every day. But my pain got so bad
>around October that I could no longer sit through class. I finished my
>10 week course and had to drop until I get me taken care of. I have
>been really down and feeling all alone in this although my husband and
>family are a great support. I knew exactly where I needed to go...right
>here. It has been 2 years since I first started posting. These people
>were a wonderful support then, as I sure they still are. That's why I
>am here. I need it! And who better to understand than someone else who
>is going through it too. Anyway, I'm glad you're here (me too!). I
>hope you find comfort among these friends as I have. They are always
>here to answer. And if you need anything, so will I. You should try to
>talk to your doctor though and let him/her know that your pain is not
>being managed. Let me know how you are doing.
>
>Love and hugs,
>jenny
>At Tue, 4 Feb 2003, Charlotte wrote:
>>
>>Hellow,
>>e-mailed a while go..I had my appendix removed. This caused adhesions,
>>I was put through aload of tests to come to this conclusions. My
>>doctors were ignorant to the real pain involved with adhesions.
>>Blah...blah....
>>
>>Well on an UPDATE!
>>
>>Yesterday I was at the consultant following a colonoscopy... Well all
>>the tests were clear and the doctor decides that its ADHESIONS again.
>>Now I am going to have to wait a year before I can even know if their
>>going to use an adhesive pad to stop the adhesions forming again or
>>trying to dissolve them.
>>
>>THE PROBLEM? My pain is getting alot worse! I sit in constant agony, Im
>>on painkillers, ant-depressesants to stop the pain signals going to my
>>head and anti-spasms.......
>>
>>--
>>Charlotte
>>
>.
>
-- cathy :-)