Re: Difficulty getting bladder adhesion diagnosis...
From: D & A (ladybugs@yhti.net)
Sat Feb 1 19:44:42 2003
hi
i understand with out the spray gel from Germany we are lost my doc uses
intergel and this is my 15 sergery and each time it gets worst .i just got
out of the hospital a week ago and its been almost a month when i had my
last sergey and its hurt again the gel they use here in the us does not help
me nor a lot of people i see from here .they always find my colon and
intestest are coveded and blocked with adhesions .now im on ocycotin and
patches i ask to be taken off the demeral and put on the oxy cause the
demeral was giving me the shakes .at this point i don't know were to turn i
do have very good doc handling my case and trying there best but i feel with
out the gel from Germany there is no hope here.i lost 40 pounds in three
months due to everything io try to eat i throw it up i do take finagin for
nausea .i cant move my bowels unless i take a whole bunch of laxatives .as i
stand now i have taken 10 exlax pills a 10 pack of the chocolate bars of
exlaxx fleets and sopoitorys .so the cramp get so bad but the doc said to
take until i go .so what do we do .we suffer day by day hoping that we get
at least a day of pain free .i cant think day i was pain free .this week i
go for a scope down my stomach to see what going on inside why i cant hold
down food .and i will be getting a port cause i have no vain left and every
time i go in its a central line in the neck i rather just put a port in and
save my self from being poke a million and one times .as for a lot of you
say you have fibromylager so do i i have that for almost 10 years and it
seems all to go together .as well as depression who won't be going though
all this at 35 years old .well i hope hat we can get pain free and feel good
at least part of our live to all pain free and hugs
alaina
-------Original Message-------
From: adhesions@adhesions.org
Date: Saturday, February 01, 2003 08:25:05 PM
To: Multiple recipients of list ADHESIONS
Subject: Re: Difficulty getting bladder adhesion diagnosis...
Melissa, I don't have any sure way to get docs to listen to you except just
keep on bugging them nicely until they take you seriously. Get as many
opinions as you need. It certainly sounds like you have bladder adhesions.
I had adhesions on my bladder and the pain you are describing sounds alot
like what I had.
--
Short of surgery I, for one, really don't know what to do except wait until
this new Spray Gel is FDA approved and available here in the U.S. unless you
can afford to go to Germany? That would be a huge leap of faith for me so I
had an adhesiolysis done here in the U.S. via laparotomy and my doc used
Intergel. I am believing for the best.
Good luck!
Sherry