THANK YOU AGAIN.. HUGS AND PRAYERS NICKY
On Fri, 31 Jan 2003 18:13:40 -0600 olddad66@runestone.net (Helen Dynda)
writes:
> Just so you know...
>
> I have sent a lot of information directly to Jess' email address.
> I
> included information about: Adhesions -- SprayGel adhesion barrier
> --
> Dr. Kruschinski -- Kath Findlay's email address and the UK
> Adhesions
> website.
>
> There is HOPE for better days ahead for Jess' brother.
>
> Helen D.
>
> ~ ~ ~ ~
>
> At Fri, 31 Jan 2003, jason h rachal wrote:
> >
> >HELLO JESS,
> >
> >WE ARE SO GLAD YOU FOUND THIS SITE. AND TO WATCH SOMEONE SO SMALL
> SUFFER
> >IS EVEN WORSE.. I AM A SUFFERER FOR ALMOST 8YRS.
> >YOU HAVE COME TO THE RIGHT PLACE FOR HELP. YOU NEED TO GET AS MUCH
> >INFORMATION ON ADHESIONS AND BOWEL OBSTRUCTIONS AND THIS IS THE
> PLACE TO
> >HELP..
> >
> >HELEN PLEASE GIVE JESS ALL THE INFO THAT YOU HAVE GIVEN TO
> EVERYONE
> >INCLUDING ME IN THE PAST TO HELP HER LEARN AS MUCH AS POSSIBLE..
> >
> >YOU AND YOUR BROTHER WILL BE IN MY PRAYERS AND LOTS OF HUGS NICKY
> >On Fri, 31 Jan 2003 05:39:12 -0600 X_GRRL_83@hotmail.com (jess)
> writes:
> >> hi
> >> i feel bad sending you a message because i don't suffer from
> your
> >> condition but my baby brother does.
> >> at the moment he's in a chicldrens hospital and has been there
> for
> >> the
> >> last three months(yeah all over christmas and everything) the
> >> problem is
> >> it just doesn't seem to be getting any better and i was wondering
> if
> >> you
> >> could enlighten me a bit. i really don't understand everything
> >> about
> >> his condition and especially not the problems that have happened
> >> prior
> >> to surgerys!
> >>
> >> to give you a summary on it all basically: dylan was born 17th
> sept
> >> 1999. he's just gone three and so far he's had at least a dozen
> >> major
> >> surgerys and at least two dozen minor.
> >> when he was born they couldn't diagnose what was wrong for 11
> months
> >> and
> >> we only found out then because he got dehydrated while on
> holidays
> >> in
> >> magaluf and a specialist spotted it then. he was given a
> colostomy
> >> bag
> >> and had a large part of his intestines removed as well as part
> of
> >> his
> >> bowel. he was great with the colostomy for a year and then they
> >> tried
> >> to reverse it but that failed so we were back to the colostomy
> >> again. He
> >> was so healthy with the colostomy so the left it for another
> year
> >> to
> >> give him a chance to gain weight and strength etc etc. so that
> >> brings
> >> us up to last november, he was brought back in for a reversal
> and
> >> was
> >> only supposed to be in for 3 or 4 days. but two days after the
> >> surgery
> >> they did a scan on his stomach and discovered the part of the
> >> intestine
> >> they had reattatched to his bowel was affected by the disease as
> >> well so
> >> it hadn't joined properly therefore allowing all the waste in
> his
> >> system
> >> to leak into his stomach giving his septicimia. we nearly lost
> his
> >> that
> >> time but hte doctors tried so hard to give him every chance at a
> >> normal
> >> life but it wasn't to be unfortunatly. they had to give him the
> >> colostomy back but it's just been up and down since then. the
> >> mia damaged his stomach so badly he can't absorb anything he
> >> eats. i'm watching my little brother fade away to nothing day
> after
> >> day
> >> and it's killing my whole family and what makes it so much
> harder
> >> is
> >> that i don't understand why?
> >> apparantly all the problems now are caused by obstructions in
> his
> >> bowel
> >> and intestine from adhesions or scar tissue.
> >> please help me because it feels like we may lose him and i just
> >> can't
> >> seem to find anything positive at all on the net. nearly every
> >> outcome
> >> is either a colostomy for life or the patient suffers from
> vomiting
> >> severe constipation among other things.
> >> Is there any solution to this disease or will it just keep
> eating
> >> away
> >> at him untill theres nothing left?
> >>
> >> --
> >> jess (Dublin, ireland)
> >>
> >> http://www.adhesions.org/forums/listcmds.htm
> >>
>
> http://www.adhesions.org/forums/listcmds.htm
>