At Sat, 25 Jan 2003, kaths Yahoo wrote:
>
>Hi Sarah and Karen,
>I am from the UK and we are more in line with Europe so I don't know how
>things work with you but if it was me doing the same in the UK, I would
>get my General Practitioner or a Justice of the Peace or a person who is
>a civil servant like a policeman or my local Member of Parliament. This
>is what we do if we need a new passport or a drivers licence, or if we
>were claiming disability benefits etc. We get a photograph and usually
>have some kind of form to attach it too, then we take it to the person
>of our choice and they sign it that we are who we say we are. You could
>get a small piece of paper and stick a passport size picture on it and
>then write below who you are and what is wrong with you and the person
>you choose can write that this is correct and sign it. We have had a
>few people on TV lately on our morning talk shows who have set up
>websites to help them get lifesaving surgery in another country and it
>has been very successful.
>
>I set up a foundation called The-heart-of-hope-foundation 4 years ago
>but I haven't gone on line with it yet, I don't have any money coming in
>from sponsorships or joining fees and the donations that we have
>received don't even cover the web hosting for UKAS never mind another
>website. I set it up more to help them to get on line and not feel so
>isolated rather than send them to other countries for surgery as we have
>some excellent adhesion surgeons here who are very compassionate and
>caring, our success rates have been good and we also have access to the
>latest barriers on the market. We also have our fare share of surgeons
>who are not very compassionate towards adhesion sufferers, but I am glad
>to say that their attitudes are slowly changing in the last couple of
>years but if we had to go to Germany we would get it funded on our NHS
>because we are members of the EEC.
>
>Anyway I'm rabbiting on again, I do hope it all works out for you Sarah
>and I will send your post through the UKAS forum for you and put it on
>the message board.
>
>In Friendship Kath Findlay
>The UK Adhesion Society
>http://www.adhesions.org.uk
>Kath.Findlay@adhesions.org.uk
>
>Please feel free to roam the UKAS website, research all about Adhesions,
>causes, treatment and prevention.
>United we stand Knowledge is power ARD is our fight Surrender never
>
>-----Original Message-----
>From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
>Of Karen Steward
>Sent: 25 January 2003 01:38
>To: Multiple recipients of list ADHESIONS
>Subject: Re: Germany Fundraiser
>
>Sarah,
> Kath has good insight--and so do you. Just thought I would post that
>I also don't know HOW you could go about proving you legitimately
>need help. Anyone could pose as your mother, brother, banker, candle
>stick maker, etc.... I plan to donate to your mission because of the
>misery my daughter has been through. I for one will take you at your
>word
>and give what I feel I am suppose to give. I encourage others to do the
>same. There are others (like you said) saving to get help also. I think
>it
>is a shame that we have not started a fund for helping women. It will
>come.
>In the meantime, Kath or anyone else, how can someone prove their
>genuine
>need? I think it is very hard to come to terms with ASKING for help.
>However,
>had I needed help for my daughter, I would have begged on a street
>corner.
>I think each person needs to decide for themselves. I also understand
>that
>the board can't allow actual solicitation, however, I see nothing wrong
>with
>mentioning you have a web page to share if you are an ARD sufferer.
>karen