Thank you so much for your post! I was "fuming" when I read the post directed towards me. That was a message I posted back in November, when I was merely trying to let others be aware of how potentially dangerous that drug is. You don't have to have an addictive personality to become addicted to this highly potent drug. The doctor that prescribed this for me, has become under much scrutiny for his malicous behavior as far as giving out any type of opiates to anyone. He has been in our local paper several times. I just thank God that I am no longer in adhesion pain and that I no longer take any type of pain medication. Thanks for backing me up! I still read the posts as often as possible, to stay educated on the disease of Adhesions.
God Bless you, and let's keep the roar down to a minimum please. Karen Carter
17 Jan 2003, Dawn wrote:
>
>Hello Dear Anon,
>I hope to stop an uproar regarding your post and to my fellow sufferers,
>I beg you to ignore this as we all know people in pain can lash out in
>their
>misery. Lets keep to business as usual. LET IT STOP HERE! Anon, we are
>not
>in some kind of candy shop...attitudes like this keep many in pain and
>isolation
>and in the 21st century no one should suffer when help to them is
>available. that
>is why these meds have been created. To help chronic pain sufferers
>gain some
>relief and functionality lost to the most horrific types of pain.
>Please understand, it is legit to fear taking these type of meds and
>talk and
>support and education offered thru this site helps people with a
>dicission no one
>in their right mind would enter lightly. I agree that drug seekers are
>making it
>harder to get relief to real pain patients. If you are angry because
>you are in pain
>and suffer the indignity of being denied relief, please let us help you.
>I can say
>with honesty and true belief that no one comes to this site looking for
>angles to
>get meds. We all know why we are here. The lollipop thing may have been
>posted in anecdotal spirit. Getting use to these drugs as they are
>introduced to
>ones system can certainly cause one to doze off. Most people just are
>looking
>for a bit of their life back and constantly have their meds adjusted
>accordingly.
>They try this or that and find perhaps a motility problem or some such
>thing. It
>takes some tweaking to get it right.
>I urge you to stay with us and to post as you see fit but please have
>compassion
>in mind and not anger when you do so. Please try not to hurt anyone and
>retool
>any post you have with a positive outlook. This is no place for flames.
>God bless and take good care,
>Love, Dawn
>
>At Fri, 17 Jan 2003, anonymous wrote:
>>
>>Some people are apparently desparately in need of education regarding
>>addiction vs. tolerance. Tolerance to a medication is an expected and
>>workable outcome of being on effective opiate pain medicines. Addiction
>>is for people who have many other issues beyond pain. If you are no
>>longer in pain or not in pain at all and seek this type of medication,
>>you probably do have an addiction problem and therefore you are behaving
>>criminally by lying to get medicine. You are ensuring that other
>>patients will be discriminated against in the future and that your
>>doctor will be suspect because of your irresponsible actions and selfish
>>wants. They are wants, not needs. Pain patients need their medicine.
>>This makes you exceedingly selfish and rather ignorant, and you should
>>feel ashamed. I have it on authority that the laws regarding pain are
>>changing so that people in this society are responsible for their OWN
>>ACTIONS, doctors will not be punished for misuse of medications, but
>>anyone lying about pain in order to obtain medicines will be subject to
>>criminal investigation and face jail time, among other things so I'd
>>watch that type of dubious behavior if I were you. At the very least,
>>get yourself some package information on the medication. Most opiate
>>pain medications state that it has the potential to be abused. That
>>means you are abusing, not taking. I am amazed that you have the nerve
>>to get online and talk about it as if it's the medication's fault. You
>>own your behavior, honey. Get some treatment, and fast. Did you ever
>>stop to think that if you are ever again in need of this medicine that
>>nobody but nobody would write you a script?
>>If you do have a legitimate,
>>verifiable medical condition
>>which causes you intractable pain,
>>you have very little to fear concerning opiate pain medications!!
>>Incase you weren't aware, most honest, legitimate patients without a
>>history of substance abuse have virtually NO problems taking this life
>>saving medicine that allows them to function at levels that would
>>otherwise be impossible or near so.
>>It's people who are not legitimate and are obviously very confused who
>>are causing all the problems that we have in our society regarding pain
>>management, wake up.
>>To anyone who takes this form of medication (appropriately for real
>>physical pain)be careful of falling asleep with it in your mouth if you
>>have children, pets because it could unfortunately be a fatal mistake.
>>Also, surround yourself with people you trust and ask them to monitor
>>you so that you don't let the pop get into the hands of someone it
>>shouldn't, or for that matter, in your hair : ). There is no shame in
>>being a pain patient for whatever reason. If you are in pain, remember
>>you did not ask for it and you don't deserve it, you are worthy of the
>>relief you have, that's precisely what it's there for. As long as you
>>act with dignity and honesty, none of this 'oh Im an addict' talk. It's
>>nonsense.
>>
>>At Sun, 17 Nov 2002, Tami wrote:
>>>
>>>Dear Karen,
>>>I'm on the Duragesic patch and the Actiq 400mcg suckers, 1 every 12
>>>hours. It does help with my breakthrough pain, but it only works for a
>>>couple of hours and then I am not supposed to have another for 12 hours.
>>>I read on the Actiq web site that the strength goes up to 1600mcg. I
>>>have only been on them for about 3 weeks now, and I hope I don't get
>>>addicted to them. I haven't had any addiction problems with any of my
>>>medications as of yet. My pain management Dr keeps assuring me that
>>>people become addicted to pain medication when they don't have any real
>>>pain and take the medication, that all my pain receptors actually absorb
>>>the medication which won't really allow me be become addicted. These
>>>probably weren't his actual words, but close. I've always been afraid
>>>of becoming addicted to the pain meds, and he keeps assuring me it won't
>>>happen, and he's been right so far!!! I know anything can happen. You
>>>said you were taking them 4 times a day ?? Maybe my Dr can increase my
>>>them for me as how many a day I can have. I feel that if I could have
>>>one every 6 hours or so I would probably be better than I am now. How
>>>long did you take the suckers ? Were you on the Duragesic patches as
>>>well??? I had to laugh when you said that you fell asleep and got them
>>>stuck in your hair, thats exactly what happened to me yesterday
>>>morning!! HA! But I had only dozed off for about 45 minutes...guess I
>>>won't suck on them while I am laying down anymore!!! That's too funny !!
>>>Take care Karen and I hope you have a good day,
>>>Your friend,
>>>Tami
>>>
>>>At Sun, 17 Nov 2002, Karen Carter wrote:
>>>>
>>>>Suckers and such!!
>>>>
>>>>I all, and welcome to all the newbies! I don't post too much, but I read
>>>>almost everyday. I am not in pain like I used to be, but darn it all if
>>>>those
>>>>nasty adhesion pain hasn't started to creep back into my life just a
>>>>tad. On the subject of those suckers that I see some of you talk about,
>>>>are you talking about "Actiq" or shall I say Fentanyl on a stick?? lol !
>>>>I too had my share of those over a year ago. I started taking them
>>>>March of 2001, and stayed on them through the summer of 2001. They sure
>>>>helped with the pain, but oh boy, extremely addictive, if you have that
>>>>type of personality and are prone to addiction. I can say, they really
>>>>did help with the pain..but I do remember falling asleep with them in my
>>>>mouth sometimes and then waking up with them stuck all in my hair, to my
>>>>face, my pillow and even to hubby's face. LOL, what a sight that was!
>>>>If you need them, go for it..but I don't think many doctor's will
>>>>prescribe them. I may be wrong. Of course, I got my mine through pain
>>>>management. I was on 400 mcg. (micrograms, that is!) I was getting
>>>>about 120 per month, I do think the recommendation was about 4 per day.
>>>>They are great for breakthrough pain. Let me know how it works for you
>>>>if you do go on them. Good Luck with them. Pain Free Days, Karen
>>>>Carter
>>>>
>>>>At Sat, 16 Nov 2002, Tish wrote:
>>>>>
>>>>>Hiya Sweet Tami and Dear Chrissy..i havent ever had trouble with the
>>>>>patches sticking to me..i guess i have sticky skin or something ha..but
>>>>>i put flonase the allergy nasal spray under mine to keep the little rash
>>>>>down and i guess that helps the stickiness too...one time my daughter in
>>>>>law was giving me a massage on my shoulders and she was rubbing rubbing
>>>>>the patch..and voila i passed out and slept for 6 hours..ha and i never
>>>>>sleep...so i guess she rubbed a bunch of medicine in to me..hehe
>>>>>Tami on the Duragesic website there is a number you can call..and they
>>>>>will send you some little cover patches for free..to use with the
>>>>>patches i have heard that they work really well...too..so you might want
>>>>>to think about that...How about those suckers Tami do they work..??
>>>>>Im about to start screaming for something..the pain has been so bad i
>>>>>cannot hardly stand it..lately..ugggh..
>>>>>Hoping yall are at least comfy tonight...
>>>>>Chrissy it was so good to see you posting again..hoping you are really
>>>>>doing well..but we miss ya..
>>>>>Hugs and Love
>>>>>Tish
>
>--
>I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.
>