Re: Need information about the Dr. in Germany
From: Sally Grigg (LostCst@mcn.org)
Fri Jan 3 12:51:56 2003
At Fri, 3 Jan 2003, klischma@foxinternet.com wrote:
>
>Dear Kelly,
>Please could you give us more information about your surgery in Germany.
>What was the procedure, length of stay in the hospital, how you managed
>on the long fight to get there, how long you stayed after your surgery,
>and most importantly, did this surgery that you had in Germany relieve
>you of your adhesion pain? I want to do it or else die, because I cannot
>stand this pain any longer, three years every day, I feel like I am worn
>down to shreds mentally and physically.thanks Mary Lou
>
>At Thu, 2 Jan 2003, K. Murray wrote:
>>
>>Mary Lou,
>>I just had surgery in Germany on December 6th.
>>Kelly
>>
>>-------Original Message-------
>>
>>From: adhesions@adhesions.org
>>Date: Thursday, January 02, 2003 01:38:34 PM
>>To: Multiple recipients of list ADHESIONS
>>Subject: Need information about the Dr. in Germany
>>
>>Please could you tell us new folks all about the DR in Germany? How many
>>people from this message board have gone there? Was it two? Who are
>>they, for those who wish to write to them directly. How much does it
>>cost? Where does the pt. stay (hotel ?) after the surgery. Since it is
>>laporoscopic, I am thinking it would not be appropriate for me since my
>>adhesions are in my torso and are attached to the ribs (I think). I am
>>so exhausted from three years of constant pain, always spreading to a
>>larger area. I think about the risk of terrorism, smallpox, and
>>anthrax, and hope that if something horrible like that is unleashed, I
>>will be among the first victims. I am desperately in need of pain
>>relief; I feel like I am being tortured.
>>thanks, Mary Lou
>>
>>--
>>
>--
>mary lou
>
--
Dear MaryLou, Hi, again, its Sally, Kelly is still feeling poorly
after the surgery and the long flight home. There is a multi-page
narrative answering all of your questions available through Lisa.
But I will try to answer those you have voiced here. Fist, do you
have any pain medication that you can take to relieve some of your
symptoms. Any operation has to be planned, etc. I can't stand to see
people suffering. I flew to Germany to Frankfurt (11 1/2 hours, with
wheelchair arranged in advance for all flights - when I flew home the
flight wasn't full so they "saved" the back row for me to lay down in)
I was there a couple of days while they did tests and I got my bearings.
My surgery was almost six hours and I stayed in the hospital three days.
You will want a German/English dictionary. Dr. Daniel Kruschinski provides
lodging for you and your husband, or a friend or two. Take someone with you.
Its hard enough without being alone. The lodging is very comfortable and
right next to the Mein(sp) River which I really enjoyed with its ducks and
swans. He also gives you a cell phone so he is always available to you. He
really cares. He is not much into opiate pain meds. After a week he does a
second look but I don't know how that would work if your adhesions are in your
torso, I take it that means your chest? I know he's great on abdomens and
takes hours separating the intestines from the adhesions, but we would need to ask
him about chest adhesions. He gives you pictures of before and after and also
a CD of the operation. Four days after the second look I flew home. Unfortunately,
my appendix burst and I didn't know it, probably right after I got home, But
after peritonitis, a month in hospital, I'm fine, weak and depleted, but no
adhesions pain. And I know what it is, believe me. I wanted to end it all, but I'm
so happy I didn't do anything stupid. I'll answer any questions you have, no question
is too personal or stupid, however, I can't answer about the chest because I
just don't know. Good luck, Love, Sally