Hi Marylou,
You need to contact Lisa her email address is,Lilylover555@aol, she is the
patient advocate for Germany.
She sent me alot of info, and I spoke with her on the phone. She is very
helpful and can answer many of your questions.
I am going in two weeks to Germany along with two others. I think there are
two others from the US that have gone. Lisa Graven and Sally (Grigg) , I
think it is. Helen D. has been to Germany with another doc., twice I
believe.
I know when I was first checking into I thought it would be way out of my
ball park, but was not near as expensive and hard to do as I thought. You
will be surprised also the find what highly skilled surgeons can do
laparscopically, I may have a resection done ....you guessed it
laparoscopically, not many surgeons have the skills to do so.
Hope this helps and I encourage to at least get the info.
I am sorry you are in such miserable pain.....do you see anyone for your
pain?
Your friend,
April