Re: adhesions suck and I am fed up!!!

From: Sally Grigg (LostCst@mcn.org)
Wed Dec 18 15:09:38 2002


At Tue, 17 Dec 2002, Tonya Fleming wrote: >
>I am new to this forum. Until yesterday, I thought I was the only one
>that suffered from adhesions. I live in Idaho and the doctors here are
>"small time" so they seem to not know anything about them. I have seen
>many doctors and they all seem to think that the pain is either in my
>head or I'm "drug-seeking". I'm tired of not being taken serious and
>not being diagnosed correctly. I've finally moved to the biggest city
>in Idaho and finally I'm gaining some ground on them believing me and
>running tests. But now I've been referred to a chronic pain center and
>told that there is nothing that can be done for me. I'm scared because
>I need a partial hysterectomy and am scared to death that the surgery
>will screw me up even more. I've already had 4 surgeries to remove the
>adhesions to my liver, bowels and ovaries. Now, one more surgery could
>put me even in more chronic pain. Has anyone out there got any
>suggestions on this? I am desperate to find help. I appreciate this
>site so much because until yesterday, I suffered in chronic pain alone.
>I don't know another sole in this world that has my problems. Thank God
>for you all.
>
>Merry Christmas to all
>Tonya
>
>Dear Tonya, No, my dear, you are defintely not alone. I was so happy when I found this site, Still in agony but at least I wasn't alone. And there is help. I went to Dr. Daniel Kruchinski in Germany near Frankfurt. Yes, it costs money. But I had no adhesions with his operating skill, his no carbon dioxide method, plus spray gel which is not allowed in this country, yet.

Unfortunately, my appendix burst- evidently just about when I got off the plane and I didn't think that pain was anything so I didn't go to the hospital for three days. To make a long story shorter, they opened me up, I was filled with UCK and I wound up in hospital for a little over a month. But my adhesions (I think and hope) are still gone. I've had a surgery a year in the U>S>A> and could always feel them within a week. This last time I was near death according to the doctor. Not now. I feel weak, but great. So there is hope. Take care and don't be afraid to say how you feel. We all do. We also know that all of us have suffered, so gentle, gentle. Please read some stories from the quilt. It will give you a better understanding and a feel for how many women are in pain due to adhesions and how long its been going on. Good luck, my new friend. Love, Sally Grigg >--
>Tonya Fleming
>


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