anonymous <anonymous@medispecialty.com> wrote:There are three important things to consider here in my opinion. First, a website has many of the same legal ramifications as any other publication such as a magazine. If you wrote a story and had it published in a magazine, they would own it, and it doesn't necessarily have to involve payment of any kind. Second, why is everyone immediately so angry without finding out the details? Why would this be your initial reaction after all this time? And third--and most important--why would you lash out at David Wiseman of all people? His tireless efforts have brought this site and this illness to the public. No one would be here reading this or any other message without him. And, yet, your first instinct is to criticize him for his efforts. I'm also shocked, but at the response of the members of the board.
At Sun, 17 Nov 2002, kann wrote:
>
>Please go back and read my response "Kann" in reference to
>"about your stories".....
>
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Sunday, November 17, 2002 03:05:09 AM
>To: Multiple recipients of list ADHESIONS
>Subject: Did I Miss Something Here????
>
>I'm trying to make some sense of this question of "who has the right to
>our posted stories on the quilt"...I don't remember seeing a disclosure
>or signing over the rights of my story to any body or COMPANY when I
>posted it....this is way beyond what I thought this site was all
>about...and why isn't Dr Wiseman posting something here to clear up this
>confusion, to make this easier for those trying to make an awareness
>effort, since I guess he OWNS our stories, for what reason DOES he?? Our
>stories can be seen by anyone in the world who accesses this web
>site....nobody OWNS my story!!!! And where is HIS personal support, via
>e-mail or posting here for all the effort and progress we have ALREADY
>made since we started the letters to the editor campaign back in
>September....yes, for all of you who may not be aware of this...there
>has been an on going publicity blitz to the print media all over this
>country AND THE WORLD,of course none of our articles or letters are
>posted on here...BUT this site does OWN our personal story???? There is
>something wrong with this picture...are our stories only good for the
>statistical fact that it shows 600 people are sufferering from ARD?? And
>who is this benefiting and any $$ sent here, where is that going...since
>OUR stories belong to somebody or some company..I sure would like to
>know that too !!!! Feeling used is not for me..I have enough pain right
>from this disease to try and figure out this game....I and many others
>have been busting our butts to get this media campaign running hard,
>have spent countless hours doing it..have posted all about it here in
>the past 2 months..I HAVE NOT RECEIVED ONE PERSONAL E-MAIL FROM DR
>WISEMAN ABOUT THIS..I WAS INSTRUMENTAL IN GETTING A HUGE ARTICLE WRITTEN
>IN THE CLOUMBUS DISPATCH [OHIO] A FULL PAGE ONE, HIGHLIGHTENING THE
>PLIGHT OF A FELLOW SUFFERER, BROKENWING....DR. WISEMAN WAS QUOTED IN
>THIS ARTICLE...[GOOD P.R. FOR HIM]....THINKING, OF COURSE THAT HE WOULD
>BE INTERESTED IN THIS ARTICLE OR WHAT THE POSITIVE RESULTS WERE FROM IT,
>OR A KIND WORD OF CONCERN FOR BROKENWING WHO AT THAT TIME WAS LITERALLY
>IN TOTAL DISPAIR....NOTHING, HEARD NOTHING..LET'S SEE, HE IS SUPPOSE TO
>BE HELPING US BUT HE ONLY OWNS OUR STORIES......OK..ALL DONE...MY STORY
>WILL BE HISTORY HERE...MY GOAL IN LIFE AT THIS POINT IS TO MAKE A
>DIFFERENCE, IN A POSITIVE WAY, WITH POSITIVE SUPPORT AND GUIDANCE..AND
>NO ONE WILL CONTROL MY STORY OF MY OWN PERSONAL SUFFERING....AND TO THE
>WONDERFUL FRIENDS I HAVE MADE HERE...I WON'T BE FAR AWAY, JUST AT
>ANOTHER PLACE WHERE THERE IS SUPPORT AND DIRECTION..ANTHEA
>
>--
>
>.
>
Karla
**Soaring with my angel**
http://www.geocities.com/karlasfamily2001 http://www.geocities.com/princessd82000/BraydensHaven