Hmm what to tell your daughter... I have a 10 yr old daughter and a 13 yr old son. And my husband and I dont hide anything from them. We inform them on everything that is going on. My daughter is a worryer, so I feel if I didnt share with her exactly what was going on, she would definately be freakin.
Like today, she is getting an award at her school, and its something I ABSOLUTELY do NOT want to miss. So I got access to a wheelchair and I asked her first, Do you mind if mom comes in a wheelchair? Will it embarass you? She said of course not mom, I just want you there...I love you
Both of my kids know I'm not going to die from this, but they do know that there is not much I can do physical wise. I am blessed though having a husband in the home that helps tremendously, and that might be why my kids have adjusted to this.
I say be straight with her hun, kids are smarter than we think. Her going to school and talkin bout Germany should prove that. And she will probably like that you share something with her that is a big part of your life.
Huggggz Lori
>From: eatthis@tp.net (Dawn)
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Help me help my daughter
>Date: Thu, 17 Oct 2002 05:10:17 -0500
>
>I was doing so well there for a few weeks. Had come way down on my meds
>as I really don't have a doc till I see a new one on Nov 4th.
>I have not had to wear a diaper and actually vaccumed and went to
>laundomat.
>Out of the clear blue I was visiting a friend with a guest I had from
>out of town and I collapsed in the driveway. The worst pain I had
>encountered yet. Did not black out. My seven yr old daughter was
>witness to this.
>They begged me to go to hospital but I could not go thru another er
>trip.
>Found that to be an exercise in futility.
>I had them call my mother who does not really support me in my illness
>but she's packing optifast and they ask her to come right away. She has
>fybromyalgia. I took the optifast and was up in a few minutes.
>My daughter is such a good girl but she internalizes alot. I ask her
>how she feels about so many things but she gives the standard "fine"
>answer.
>I have had her in counseling for about 6 mos now. She has other issues,
>mainly thet she has never lived with her father. They were allowed to
>see each other through court ordered visitation center. He was
>suspected of being drunk during some visits but last Christmas he was
>totally $%*#faced and had to be taken away by the police. It was done
>as discretly as possible but for a 7 yr old she's no fool.
>She knows to watch out for mommy's tum. She will always get me a drink
>and sometimes make us scrambled eggs for dinner. She will make my bed
>as her way of cherring me up. I tell her I am going to be better soon.
>I can't tell her when though.
>Her teacher called yesterday to my horror. She said don't be alarmed,
>my daughter is a fab student (2nd grade). Always brings home 100's. we
>read alot and can't wait for the next Harry potter book. we work on her
>homework together everynight. I try to keep things as normal as
>possible. I thought I did an excellent job of sucking it up in front of
>her.
>The teacher was wondering how soon we were going to Germany. My
>daughter has been talking to her classmates about this imminant trip.
>I have been discussing and raising funds to get there. Darn she has big
>ears (lesson learned).
>I tried to explain the situation to the teacher. She seems like a great
>lady.
>I did not attend the open house to meet her.
>Well next the school psychologist called and asked if she could help. I
>said yes, anything to help her understand her mom's not gonna die or
>anything.
>Oh God, why can't you spare my baby from this mennace. She is going to
>contact her other counselor and work with her to help.
>My family has chosen to not accept my adhesion story. Where did I ever
>get a crazy notion like that. I show them my last operative report that
>said I have extensive abdominal adhesions. They prefer to think this
>doc is making this up for some error she made during surgery. Maybe
>there is a needle or sponge left in there. They tell me I am not a
>doctor and am a fool to self diagnose my condition. Of course they, not
>being doctors themselves insist I have explortory surgery to find the
>true cause of my "troubles". I have had 5 different surgical opinions
>and none of them will touch me(thank god) No way to exploritory
>surgery.Next time I am opened up it will be to have adhesions lysed,
>bowel resected and endo excised. They could really help us alot.Just a
>simple visit.
>My brothers could give her the man exposure she needs. They could help
>by taking me to the darn grocery store but...They all live but 5 minutes
>away.
>They all love my daughter but am convinced I am a loon and suddenly gone
>lazy.
>Oh god, my poor baby.
>What do you tell your young children????
>
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