Hello Fellow ARD Sufferers,
I would like to give you an update on the
letters-to-the editor and ARD articles campaign that
we started a few weeks ago. As of today, we are
progressing well. Many of you have stepped up to the
plate and I urge you all to continue this important
effort. Our mission is far from being completed.
Joanne Eslick, founder of The Australian
adhesions Support Group, is currently talking to a
journalist from her home town and a national magazine
in Australia is considering a story about her adhesion
experience.Annie Hawksley has done some radio
interviews in Western Australia and another national
magazine there is considering a story about her. In
the USA, we have had 2 letters-to-the-editor published
in Iowa. Many thanks to Shawna French and Marilyn
Vaughan for their excellent letters. If you had
submitted a letter to your paper and it was not
published, please re-submit it. It is possible that it
could be re-considered at another time. We need to
keep the momentum going. The Press Gallery section on
http://www.bombobeach.com has and will post all letters and
articles that get published.If you have a spouse or
adult child that would like to share their experience,
living with an ARD patient, please have them consider
writing a letter and posting it on the family section
of The Austalian Adhesions Support Group. I am
currently working with a reporter to publish an
article in a central Ohio newspaper. I'm also
contacting another newspaper in ohio. I know many of
you have contacted the T.V. media and are frustrated
with the lack of response.That is why we need to start
with the print media to validate our mission.
The Australian Adhesions Support site ,
http://www.bombobeach.com ,works in tandum with the IAS site.
Both offer support in different ways to people.The IAS
site offers statisical information on ARD and support
while http://www.bombobeach.com provides ARD sufferers driven
information and advice.The two message boards and the
Chat Room offer umlimited opportunities for sufferers
to communicate and support each other. In the 8 short
months http://www.bombobeach.com has been in existence, it
has amassed over 8,000 visitors.This shows you the
different needs of all sufferers of this terrible
affliction.
Please continue the effort to help get our
voices heard. And take advantage of the unique support
available to all of us.
Thank You and Comfy Hugs, Anthea