Re: 2nd PART OF SHAWNA'S LETTER TO PAPERS< MAG> AND SHOWS

From: Lynn Creacy (anonymous@medispecialty.com)
Sun Sep 22 16:53:02 2002


At Sat, 21 Sep 2002, Shawna French wrote: >Shawna,

Thank you for putting into words what I have been unable to do.

Sincerely, Lynn

>Advocating for my own health care is important ( no matter how sick I
>am) and vital so as to provide me with much needed medical attention. In
>my struggle to recieve adequate health care I cannot exspress enough how
>important the mind, body connection is, and what it has done to my
>emotional well being.
>
>The feelings of isolation, frustration, anger, sadness, and constant
>fear that I might die before Drs. educate themselves so as to be able
>to help ARD SUFFERERS.
>
>The research and funds are very limited to make better barriers in the
>U.S. ( as I have read people are having to go to Germany and Australia
>for the one barrier that is working!).
>A limited number of researchers in other countries are battling "ALONE"
>the actual cell research to end total growth of Adhesions. I struggle
>endlessly not to have a totally broken spirit.
>
>It make one wonder, if someone Famous was sick with ARD and went public,
>how many millions of dollars would then become accessable. I'll bet the
>RESULT WOULD BE AMAZING!!
>
>In looking at various research avenues, I came across a group on the Web
>called International Adhesion Society and also bombobeach.com
>
>My isolation and silent suffering fell to the wayside, as the more I
>read story after story I saw there were so many others like me, fighting
>the same fight! I cried as I finally felt validated. I was no longer
>alone and it deeply saddened me to see that people were getting minimal,
>if any, health care or relief, such as I. There are alot of people
>sicker than I am. I soon learned that ARD is a recognized illness in
>only 2 states, New York and Wisconsin.
>
>ARD sufferers have been humiliated, demeaned, turned away, belittled and
>treated with total disrespect and at times have been subjected to
>barbaric measures. We are "DEEPLY HUMBLED" from this illness and I will
>not give up until people " TAKE NOTICE" to ARD and begin to care. It
>doesn't require anything more than simple human compassion.
>
>I remember a Dr. once saying to me " YOU adhesion cases are the most
>frustrating to all us Drs..", with total anxiety in his voice. As my
>tears fell freely I replied " If it is frustrating for Drs., can you
>IMAGINE how the patient must feel?!?" " We live with this EVERY day
>without care or concern from Drs, no validation that our pain is real."
>
>Education and research are the utmost important keys to helping in this
>battle of ARD and I will remain a WARRIER in the battle until ARD is
>widely recognized.
>
>I invite and challenge every person with any human compassion and
>empothy for humanity to visit these 2 web sites, log onto the quilt or
>ARD stories and I will guarentee, you have opened up to " OUR WORLD"
>that of the "INVISIBLE SUFFERER.
>
>Please help lift the VEIL of DARKNESS and SEE THE LIGHT by helping us in
>our fight with ARD.
>
> Sincerely,
>
>--
> Shawna French
>

--
A new friend

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