I can feel the excitement in these postings concerning our plea to the
letters to the editor campaign, thank you to all that are doing this
necessary step. As I mentioned in the SEPT newsletter on bombobeach.com
this is where we need to start for our grassroots effort to be the most
effective. I've been in contact with 2 newspapers about doing actual
stories about this condition. I've also received some excellent advice
from national P.R. consultants, trust me, this is the best way to begin
our mission. Many T.V. media follow the lead of print reporters, that
is why getting this in print is important to validate this.We are a
patient-driven campaign, and we all need to be on the same page to make
this successful. I have volunteered to help this mission for the U.S.,
if you get any print articles published, please send tham to me with the
name of the paper and date it was published. Please take this effort
seriously.....there is POWER in numbers and our voices WILL be heard.
Please e-mail me when you have a published article or letter and I will
give you my address. Thank You All and Bleesings for a pain-free
future. Love and Comfy hugs, ANTHEA