-----Original Message----- From: Jo Kostic [mailto:Jkostic10@yahoo.com] Sent: Wednesday, September 04, 2002 10:46 AM To: Multiple recipients of list ADHESIONS Subject: Re: possible ahesions causing pelvic pain?
At Mon, 9 Oct 2000, Zoe wrote:
>
>Hi,
>Sorry to hear about your trouble. The pain you are describing sounds
>like the pain I have and only after admitting myself at ER 4 times with
>the pain they agreed to do a laparoscopy to have a look again. I have
>very sever adhesions. It does provide some relief to know what is
>causing your pain, so do persist and insist that a laparoscopy is done
>(unfortunately this is the only way of seeing if you've got adhesions).
>All the best
>Zoe
>
>At Wed, 4 Oct 2000, anonymous wrote:
>>
>>In January I went in for a routine laparoscopy to determine whether I
>>had endometrosis. During the scope, I experienced complications when
>>the surgeon accidently rupured the fundus of my uterus with a uterine
>>manipulator. They had to perform a laparotomy to repair the damage.
A
>>fertility specialist was called in to repair it since the damage was
so
>>severe. He descibed my uterus as resembling "cheeseclothe".
Septrafilm
>>was placed over my uterine tear. Two and a half weeks ago I started
>>experiencing a dull ache, sort of a pulling or pressure feeling on my
>>left lower pelvic area. It was uncomfortable to raise my left knee,
to
>>lay on my side, and a full bladder or gas left me in alot of pain.
The
>>pain progressively got worse and I went to see my OB/GYN (I have a new
>>Dr.- not the same one who did the surgery). He did a pelvic exam,
blood
>>work and a transvaginal ultrasound was normal. Although the exam and
US
>>left me extremly miserable and crampy later that evening, everything
>>came back normal. He believed it was not a gyn problem and suggested
I
>>see a GI specialist. The pain got worse and more frequent so I went
to
>>the ER. The did the same thing--ultrasound, pelvic exam, blood work
and
>>sent me home. I then went to see an internal medcine doctor. He
>>believed I had a partial bowel obstruction. He admitted me to the
>>hospital the next morning. I had an abdominal US, a small bowel
series,
>>a colonoscopy, cystoscopy, 2 CT's, abdominal x-rays, and a rectal
>>ultrasound. The only thing they found was a 4 cm ovarain cyst but it
>>was on the right side and my pain is on the left. I was discharged
this
>>evening with no answer. I heard several doctors mention that it may
be
>>adhesions and they may not show up on any of the tests unless they are
>>obstructing an organ. Is it possible that it could me PID despite my
>>normal white blood cell count and normal temp? What about adhesions?
>>Does it sound like it probably is adhesions? I need to find out the
>>source--I have to go on with my life, I have to go to work and that is
>>nearly impossible with the pain. I feel like they just gave up and
>>expect me to just take narcotics the rest of my life. ( which I have
>>built up a tolerane to from all the demorol.) Please if you have any
>>ideas or suggestions let me know. I am desparate for an answer.
>
>--
>Zoe (UK)
>
-- My name is Jo, I have been reading these messages. I have the same problem. I have severe pain on my left side, had three surgeries to remove adhesions and I am now working on a job for the next few months in Alabama. I am losing work due to the pain and vomiting. How do I find a doctor to help me? I have been to GI specialist and emergency rooms several times. No help there. I am willing to travel to get some kind of relief. Ant suggestions pease email me.