Tami,
Oh my Gosh, that's exactly what my son said after my
first surgery. At least you don't have cancer, Mom! I
feel like you, I wish the medical (& regular)
community would take us seriously. Being in pain day
after day is really a grind, especially when you can't
get adequate pain relief. I try not to feel sorry for
myself because my father-in-law has terminal cancer,
but some days I just can't help it. I'm fighting to
stay on disability because I just can't function well
enough to put in an eight hour day & do my job right.
The pain just overwhelms me at times. I tried it for
15 months after my first surgery but I just about lost
my mind! No more being a martyr. My employer has a
2yr. long term disability plan that I have been on for
almost 11 mos., now. If it weren't for one of my
fellow employee's(& friend) I wouldn't have known
anything about it. They did not come to me when I ran
out of sick pay, I had to ask the benefits coordinator
if we had a short/long term disability plan. Than I
had to convince my Dr. that I was in pain & I could
not function at work anymore, boy, was that a chore.
Check with your human resource or benefits office to
see if they offer any kind of disability plan, they
will not come to you. It's worth a shot. I'm still
fighting to stay on mine after my last surgery July
29, I'm not feeling any better than I was before the
surgery. I have to go to Phoenix on Mon. to see my
surgeon & convince him the surgery did NOT work,
something I'm sure he does not want to hear. I wish
you luck!
Take Care,
Rita in AZ
--- Tami <tamitorres@hotmail.com> wrote:
> Dear Tish, > Hi honey, thanks for the reply. I've been worried > about you too. Do > you ever find your self saying at least "I don't > have Cancer". Because > at least they have some treatments for cancer, not > always with success, > but at least people are taken seriously. And then I > tell myself to snap > out of it, it could be so much worse. I get tired > of feeling sorry for > myself. I just wish that for once we could all be > taken seriously and > they would find a cure for us all.... > I just wish that with as many of us in this world > that suffer everyday > that just once we could hear that they are really > working on a cure and > that people would really understand our pain....I > just want my life > back, as with everyone else on this message board, > we all deserve our > lives back !!! okay enough whinning....... > I may end up losing my job over all this. And it's > because the HMO's > are taking there time getting me approved for all > the tests I've had and > surgery... > I am really scared. I have used up all of my FMLA > leave and don't have > any sick leave left at work. I don't have anything > to protect me from > losing my job now. I have wondered if I can even > qualify for > disability. I wouldn't even know where to start. > Anyway thanks for > caring about me. I see the Surgeon tomorrow and > hopefully he can answer > some questions for me. The gastro told me that he > was worried about > food getting stuck in this "hole" and that it would > cause me alot of > pain if it did. I've lost over 25 pounds, because I > have been eating > very soft food. There is just no telling how long I > have been like > this, I can honestly tell you that I have been > having right-sided pain > for probably 10 years. After every surgery the pain > is always still > there. I think my appendix was taken out about 17 > years ago. I will > keep you posted. > I hope you had a good day, and that you are feeling > alittle better. How > is your mom doing ? I am so sorry for all this > stress you are under > while feeling so crappy...it really sucks...I wish > you painfree days my > friend. > Take care and keep in touch Tish, > Love your friend, > Tami > > PS email me your phone number again.... > > At Sun, 18 Aug 2002, Tish wrote: > > > >Dearest Tami..I am so glad to have finally heard > from you..and so sorry > >to hear thaat you are still in tons of pain even > with the meds..im > >hoping and praying that you get some relief very > soon.. > >I am doing ok..still in some pain myself and trying > to adjust to an > >increase on my meds..and just getting back to OK > from Tx where i saw the > >Pain Dr..etc. > >Today was my grand babys 4th B-Day party so im kind > of worn out.. > >Tami i am a little concerned about what you said > about the Drs saying > >you have a large hole in your intestines...Tami if > this is correct..it > >is a life threatening problem you have there...and > not something you or > >your Drs should be waiting on...Do they at the very > least have you on > >antibiotics? If this is correct Tami i would be > screaming to my Drs to > >do something about it...and not wait one more > second..because this is > >such a terrible thing..it could ruin your insides > forever..if you have > >all of that mess..draining in to your body.. > >I am just a nurse..Tami..not a Dr but i do know > that even a very tiny > >hole could really reak havoc on your body.. > >Tami PLEASE PLEASE PLEASE whatever you do please > call your Dr ASAP and > >get some clarification of this diagnosis..ok. > > I emailed you my phone number one time..if you > want to give me a call.. > >But whatever you do girl..get a hold of that DR > immedietely ok. > >I hope i have not scared the water out of you...but > if this diagnosis is > >correct then this needs to be addressed ASAP,,ok. > >I Love ya Girl..and i want you to be well.. > >God Bless and im sending up some serious prayer for > you ok.. > >Hugs and Love > >Tish, > > http://www.adhesions.org/forums/listcmds.htm