At Sat, 17 Aug 2002, Lori wrote:
>
>Hi Tami,
>
>Thank you for responding. Sometimes it just helps to know
>that I am not alone in this fight. But that has been hard
>for me when I havent been able to get out of bed, let alone
>sit in a chair to come here.
>
>No I havent been to a pain doctor. The state insurance doesnt
>think I need it. They are going by what my last doctor said,
>which was that all of this pain is in my head and I need
>a shrink.
>
>I have hounded the doctors and the insurance company daily,
>only to be told that I am either making it up, or that
>things take time, and I just need to be patient and DEAL
>with it. That it cant be as bad as I say it is since nothing
>is showing up on the hundreds of tests I have had done.
>Even though when I was under private insurance, I have
>been diagnosed with SEVERE adhesions and pain.
>
>I usually go running to the ER when the pain gets soo bad
>that all I can do is lay there and cry, and my family cant
>take seeing me like that anymore. I had to even change ER's
>that I go to, because the one that is closest to my house..
>would have me wait in the waiting room anywhere from 3-9 hours
>only to tell me once I was in a room that there is nothing
>they could do for me, and send me home with tynelol after 10 min.
>
>So now I have to go to an ER that is about 30 min drive from
>my house. And then I wait until the pain is soo bad I cant
>take it anymore because the drive kills me. And even then
>I have about a 2-6 hour wait to go in and see them.
>
>My faith in God is very strong, but being in this severe of
>pain now for 7 months straight, to where I cant even walk to
>the bathroom by myself now...And my husband losing his job
>because he has to take care of me, I am afraid to say it is weakening.
>I try to keep my faith strong, and believe that God doesnt give
>us anymore suffering then we can handle. But right now, he
>has more faith in me if that is true, then I do in myself.
>
>I have not completely lost my faith, especially when I see stories
>here about Germany and the success that some have had going there.
>Even though I am not fiancially able to go there myself, I do have
>faith that somewhere, SOMEONE will help me and get me out of this
>hell that I live on a day to day basis.
>
>Most nights I go to sleep just hoping that I wake up and the pain
>will be gone, and some nights, and I hate to say it, I hope that
>God will just let me rest, and not have me wake up in the morning.
>
>Thank you again for replying. It does help me tremendously
>Love, Lori
>
>At Sat, 17 Aug 2002, Tami wrote:
>>
>>Dear Lori,
>>I am so sorry to hear about your abuse by doctors. I say abuse because
>>that is what it is. What is happening to you is not right. I wish
>>there was something more I could do for you besides just being here for
>>emotional support. Have you been able to see a pain doctor at all? You
>>should call the insurance company and the doctor every damn day and stay
>>on their case until you get some type of relief. Maybe try going to the
>>emergency room screaming your head off might get you some type of
>>attention. Any attention at all is better than what you are getting.
>>Please turn to God also Lori if you haven't already, there is power in
>>prayer. I know how tough it is, along with alot of others here on the
>>board. Just keep us posted on your condition, and remember you are
>>never, never alone in this fight...
>>Your friend,
>>Tami
>>
>>At Fri, 16 Aug 2002, Lori wrote:
>>>
>>>Hi everyone,
>>>
>>>I just wanted to let you know what has been going on
>>>with me. Sorry I havent been in here, but it has been
>>>horrific pain for me to sit upright to sit at the puter.
>>>
>>>After I had my doctor tell me that the pain was in my
>>>head and that I was making it up, and that the only thing
>>>there was left for me to do was to go see a shrink..
>>>I fired him.
>>>
>>>I called my HMO, unfortunately I am stuck with a state
>>>insurance since I am unable to work, and my husband
>>>has lost his job because I can no longer care for myself
>>>or our two kids. So we are both unemployed now, and have
>>>to deal with the state insurance.
>>>
>>>Well after I fired that doctor. I called the insurance
>>>and told them I wanted another doctor. This was around
>>>July 4 or so. The insurance company told me that I had
>>>to wait until Aug 1 before they could send me to another
>>>doctor and switch my insurance card to that doctor.
>>>
>>>So of course I had to go back to the ER because I had
>>>nothing for pain. And told them I had an appt with a
>>>new doctor for Aug 7th.
>>>
>>>They gave me I think a perscription of 20 pills to last
>>>me a month, which you guys know doesnt last all that long.
>>>
>>>I was bed ridden for the whole month, like I said I could
>>>not do nothing for myself, or my family..and my husband
>>>lost his job so he could stay home and take care of me.
>>>
>>>I went to go see this new primary doctor Aug 7th..and
>>>after all that waiting and pain, and 5 min in the doctors
>>>office, he told me he was referring me to yet another doctor
>>>An obgyn. Now in the past I was turned away from an OBGYN
>>>because they said there was nothing they could do for me
>>>since I dont have any woman parts left. I tried to tell this
>>>new doctor this and he told me, sorry there is nothing I can
>>>do for you, but to refer you to this obgyn...
>>>
>>>I call the OB and they tell me that the soonest they can
>>>see me is Sept 9th. So now I have more waiting...He gave
>>>me a perscription for pain meds, but only a weeks worth.
>>>They are gone, and I am in terrible pain once again. I cant
>>>get out of bed, sit in a chair, and I have to crawl to
>>>the bathroom.
>>>
>>>I am sooo jealous of some of you that have wonderful
>>>doctors that understand that you are in pain. I have to
>>>BEG for relief, and then when they finally give me some
>>>medication...Its only a weeks worth
>>>
>>>I am at my wits end, I dont know how long I can do this.
>>>I cant find a doctor to help me, with medication, or even
>>>with surgery. I dont know if this is
>>>just California doctors, or if this is because I am on
>>>state insurance. But what am I suppose to do???
>>>We are on state insurance BECAUSE of the pain, i cant
>>>work of course, now my husband cant work either because
>>>someone has to take care of me.
>>>
>>>Sorry guess I just needed to rant. I'm just soo damn
>>>frustrated!!! I feel like there is NEVER going to be
>>>an end to this. And there is only soo much a persons
>>>body can take. Its pretty bad when your 10 yr old daughter
>>>looks at you in the morning and says
>>>Mommy will you be able to get out of bed today?
>>>And ofcourse I have to tell her no...Mommy will be in bed
>>>all day again. I know everyone here says no surgery...
>>>but I cant find any type of relief, not with rest, medication
>>>nothing. My history has been after my surgeries, I have at least
>>>a year and a half worth of pain free life before it starts again
>>>and since I have been in excrutiating pain for 7months now...I am
>>>ready for surgery. But I cant get a doctor to give me meds let
>>>alone surgery... So what now?? (shrug)
>>>
>>>My thoughts and prayers are with you all!
>>>Lori