To Robin from Jo

From: Jo Eslick (joanne@bombobeach.com)
Wed Jun 26 08:48:32 2002


Hi Robin!

I just had to write and say “good for you”!!! Don't let those doctors fob you off now... from what you said in your message, you are sick, there IS something wrong, if adhesions haven't been "officially" diagnosed, it's time to start demanding answers.... as I said to you before.

Don't forget, if you need to "chill out", soak up a sea breeze and some soft gentle company, drop by the Aussie support site http://www.bombobeach.com and surf around for a while. There is the BEACH CLUB CHAT room, the NOTE PAD that is a message board like this, just a slightly different set up! You can register as a member and receive site updates and interesting tid pits every once in a while.

There is also an area called "How to Cope" and I invite you and anyone else who happens to read this message.... write to me with your way to cope, and if it isn't already listed somewhere on bombo, then it will get posted and you will get the credit for it! ;-) There is a poetry or short story area. Tell us about a favourite childhood memory, or give us a poem describing your pain or your will to overcome disability and the "stigma" attached to that.

Dr Wiseman has done a fantastic job here.... providing us with great information and links to other sites containing the latest information about adhesions and research. The Adhesions quilt holds a HUGE number of stories about adhesions sufferers around the world. We have a section on bombo called "Our Stories" and you are welcome to record your story on NOTE PAD first, email any art work, photo's etc that you want us to use to decorate your page, and the admin team at bombo will help you.

You aren't alone, and now you are armed with information, you can confidently steer your treatment in the direction that is best for you! Not what the doctor "thinks" you need....

Stay in touch, we are here always, no matter what you decide to do. Don't forget that Wednesday Night from 8pm to 10pm USA Eastern Standard time, is BEACH CLUB CHAT time for US & Canadian adhesions friends and guests. Log into the chat room via bombobeach, as the link here on the IAS isn't working properly... we are working towards fixing the problem... Maybe I will meet you tomorrow night in the BEACH CLUB CHAT room!

--
Love and gentle hugs,
Joanne Eslick
Founder Australian Adhesions Support Group
http://www.bombobeach.com
NSW Australian Co-ordinator of
International Adhesions Society
http://www.adhesions.org

--
I am not a medical person, and all my messages are based
on personal experience.  I am a fellow adhesions sufferer
reaching out to help others.

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