Re: Need information

From: Shali (Shali9@icdc.com)
Fri May 10 21:34:45 2002


Thanx Karla. No, I do not hide my pain/discomfort. It is impossible. It has me to where I cant go out sometimes and what I experience no one can hide. It's too bad we received so many messages growing up that do nothing but set us back in situations like this. Illness is not weakness; quite the contrary. I think I'd rather be shallow and happy to tell you the truth, rather than the contrary but in fact, I believe all is for SOME reason and most of the people around me who have never been ill for a month, let alone 8 years lack quite a bit of substance, not to mention the real [as in genuine] feeling of compassion. Those are the ones I havent a desire to get close to [the relationship would lack SOOOO much!]. Now, I wonder if anyone can relate to the 'thickness' feeling of what I will term the tissue inside the intestines.

--
Shali

At Fri, 10 May 2002, Karla N wrote: > > Shali, >Many people have adhesions and have no symptoms or problems whatsoever. Then there are others that have problems and pain. I believe there are also those that have adhesions, have problems from the adhesions but do not experience pain from the adhesions. To be honest, I believe that I am one of those people. I am not saying that I don't have pain....oh yes, I have very severe pain. But, I believe that my pain is from my other problems...my hernias, my kidneys...my urostomy. I think that if they were to correct those problems I might be able to live a decent life and not have to live with that awful pain that so many people live with. I say this because I don't have a lot of the same pain that others do. I don't know if I am right or not...its just something I suspect. But, maybe I am in denial. I met with Bev yesterday and she commented to me that she doesn't think that I know how sick I am. I have had moments where it sinks in...a little. But, I was raised to hide my weak >nesses and in my family I think illness was considered a weakness. I try to do everything.....whether I feel awful or not. Because that is how I was raised....along with a belief that if I stopped doing things I would die. But she's right. I try not to think about it. I try to minimize things. I don't know if you are like that. Maybe not, but it could be that its just not something you want to think about. It is possible to block pain too. I'd prefer to think though that just once there was someone that had something good with adhesions. Just some random thoughts. >Karla > Shali <Shali9@icdc.com> wrote: Hello Everyone - > >Two questions - >Seems all the messages I read, you all describe PAIN. I would like to >know if anyone has had adhesions without pain, per se. I have had four >laparatomies, two emergency for adhesions. On the last surgery, they >had to cut through adhesions to get to the colon. I still have the same >symptoms. I experience mostly bloating and its just not any bloating. >There is what I call 'pressure' in the system, a feeling that I need to >eliminate but the bowels don't function and probably where my problems >originally began. I have to drink 6-8 ozs of prune juice to literally >'flush' waste material past a section that doesnt seem to have function. >I am never asymptomatic - always have the bloating feeling and food >makes it worse. There is gas that doesn't move or FORM enough TO move. >Even if it's manually manipulated. Its also difficult to take in deep >breaths because of the pressure > >1] So I would like to know if anyone has had adhesions or symptoms of >adhesions without the pain. This is sheer discomfort which is more >painful to me than pain itself. I know I have high yeast counts and >wonder just how much they mimic adhesions. > >2] Also the internal intestinal wall feels 'thick'. Does this >description hit a note with anyone? > >Thanx - Shali


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