Re: Welcome A. Trent
From: Karla N (ifirgit@yahoo.com)
Fri May 10 07:10:23 2002
Welcome to this wonderful support group where you will not only find answers to your questions, but love and support as well.
I don't know that I can help much on the doctor referral part...but I am going to try. Normally, since I have lived in Northeast Wisconsin (actually I moved to the Upper Peninsula of Michigan last July, but I don't really claim that) all of my life I wouldn't be able to offer any suggestions, but since I was in California last summer and needed the services of doctors out there I have some ideas for you. I don't know exactly where in Northern California you are, but whereever this could be well worth your trip.
I was visiting my niece at Travis AFB between San Francisco and Sacramento when I became ill. I am a veteran so I went to their VA clinic. Because my blood pressure was so high they were required to send me to the ER at the on-base hospital instead of sending me to the VA hospital in Sacramento. Needless to say, I was admitted and found myself under the wonderful care of physicians who were very much believers in pain management. They believed that my blood pressure was so high because my pain was not being kept under control. (I know you are probably saying that you aren't a veteran or aren't in the military so how is this going to help me?) These doctors were from the University of California at Davis. I am looking at my bottle of liquid morphine and the name on it is T. Lem. I don't know if that is the doctor's name...or just a part of his name. But anyway, this entire team of doctors told me that they believed in pain management and felt there was no need for me to live in the pain that I was living in.
Perhaps it might be possible for you to locate this particular doctor at UC-Davis...or if not him, another doctor willing to treat you appropriately. I would suggest that you go to the ASAP site ( http://www.druglibrary.org/schaffer/asap/ ) and read all the material there. Follow the steps that they suggest printing out all of the information. I followed these steps myself and was able to find pain management...at that point what I got was better than I was receiving which was nothing. If I find myself needing more now I take along my copy of the Patient's Rights...just in case.
You should also research the Adhesions website ( http://www.adhesions.org ) reading everything you can get your hands on. Go into the archives of the message board (searching takes you into the archives) and type in the name Helen Dynda. Doing this will bring up a wealth of information about adhesions, treatment...you name it. Print up this information as well and bring it to your doctor. You may also wish to give it to your family members or any other people that you feel need to be better informed about this disease.
While you are research this website take the time to visit the adhesions quilt. Go through and read the stories there. I am sure that you will find quite a few people who have similar stories to yours. Please take the time to read my story (Karla Nygren). Also take the time to post your's. Each person's story helps to educate the growing number of people who are learning that they suffer with Adhesion Related Disorder.
Hugs and Love to you!
Karla
"A. Trent" <atrent9@hotmail.com> wrote: >From: "debsiwministry@carolina.rr.com" Reply-To: adhesions@adhesions.org >To: Multiple recipients of list ADHESIONS Subject: Re: OK Everybody - Group Post time >Date: Thu, 9 May 2002 21:06:08 -0500 >Sorry...typo. It's MPS...myofascial pain syndrome.I will send medical info on both of them.Deb /Dear Deb; I received your kind msgs. to so many who posted, and I wanted to thank you, and everyone, for your kindness and support. I'm new to the group, and am desperately seeking a new Dr. to treat/manage my chronic, intractable pain. Quickly, I've had pelvic pain for the past 20 years (miscarriage complecated by a ruptured & hemorraging ovarian cyst, adhesions, then gangrene!, more adhesions, endometriosis), 10 surgical procedures (before I refused all surgery, as I only became worse each time). I've had a good, caring Dr. for the past 10 years, but now the Dr. no longer feels "the most competent, and concerned about being audited, and liability", and is cutting back my Rx and telling me to find someone else to treat me! I was also told, during the same conversation, with the same Dr., that "you need *higher* doses, or stronger medications, like Methadone, to treat the pain you have". The Dr. has no recommendations or referrals for me. The Dr. also treats me for depression & insomnia. I need a Pain Management Specialist in Northern California. If possible, a Pelvic Pain Specialist. I also need a GYN. I do not have any insurance, am too disabled to work, and have been turned down for SSI Disability (I'm too depressed to try again w/o help). ANY suggestions would be tremendously appreciated. My thoughts and prayers for your help and healing a
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