Re: OK Everybody - Group Post time
From: debsiwministry@carolina.rr.com ("debsiwministry@carolina.rr.com")
Thu May 9 21:05:28 2002
Sorry...typo. It's MPS...myofascial pain syndrome.I will send medical info
on both of them.Deb
-------Original Message-------
From: adhesions@adhesions.org
Date: Thursday, May 09, 2002 18:03:45
To: Multiple recipients of list ADHESIONS
Subject: Re: OK Everybody - Group Post time
Hi Deb:
--
Thanks for the reply. What are RSD and MPS please? I think I've read
something on RSD, but I've never heard of MSP (or have I?) LOL!!
Wishing you pain free moments, hours and days,
Clare
At Thu, 9 May 2002, debsiwministry@carolina.rr.com wrote:
>
>Your not weird...the vessels including lymph vessels and also nerves are
>being compressed from the adhesions. When you move in certain positions t
>is making it worse. Mine are also worse when I sleep. Also sitting pulls on
>the adhesions causing the symptoms to worsen. Swelling in my lower legs
>keeps getting worse each day. RSD and MPS can come from even surgery not
>including the adhesions. Deb
>
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Thursday, May 09, 2002 14:37:13
>To: Multiple recipients of list ADHESIONS
>Subject: Re: OK Everybody - Group Post time
>
>Hi Nancy:
>
>--
>
>Thanks for the reply. I'm not sure whether or not my Dr would give me
>anything or not, but I'll ask if this doesn't settle down! I'll probably
>work on lowering the coffee intake first....
>
>I too have problems with loosing the feeling in my right leg and both
>hands. My little problem began a couple of months before the tumor was
>removed, and has stayed with me the two plus years since the laparotomy.
>My right leg swells quite noticeably most days, and no reason was ever
>found. I did see a neurologist, and he could touch my elbows and knees
>and reproduce the loss of feeling perfectly! He said that he was very
>sure that the surgery and the tumor had both dammaged the nerves, but
>that to operate would not solve this problem. For some strange reason I
>wake up about one night a week with no feeling at all, and I have to
>move around to get the feeling back. It's almost like my blood isn't
>flowing right or something.(I'm weird, I know)LOL That said, Nancy, your
>problem with your legs seems to be quite serious - have you seen a
>neurologist?
>
>Maybe there's something they could do to help you?
>
>Hugs,
>
>Clare
>
>At Wed, 08 May 2002, Nancy E. Hale wrote:
>>
>>Hi Girls:
>>
>>LESIA: My best suggestion to you would be to search the IAS message boa d
>>archives for "Ashermans Syndrome". I know there have been some posts
>>referring to this in the past, but I have no experience with it myself. We
>>have all found that adhesions should only be tackled by surgeons traine in
>>the least invasive techniques possible to try to avoid new adhesions
>>forming after surgery. It isn't easy to find such a surgeon. Where are
>>you located? Some of our posters have had successful pregnancies with
>>adhesions as well as after adhesiolysis. It is possible. My personal
>>opinon is to educate yourself about adhesions, what they are, what the
>>symptoms can be, what the complications can be, and you have found the est
>>place on the web to do that - right here at http://www.adhesions.org . ood
>luck,
>>and feel free to ask any questions.
>>
>>BRENDA: I know some of the people on this board have been unsuccessful n
>>getting disability the first time they try. I am Canadian, so I'm not s re
>>what the rules and regulations are in the US. Search back through the I S
>>message board archives for posts relating to this. As I told Lesia, the
>>archives hold a wealth of information, and can answer most any
>>questions. Good luck, and hang in there kid.
>>
>>CLARE: You are not the only one to have this problem - I often wake wit a
>>stiff neck and tension headache after a bad pain night. I don't have an
>>solutions. What about a mild tranquilizer/anti-depressant? Just somethi g
>>to relax you a little? Chronic pain patients are prone to depression du
>>to having to deal with the constant pain and the changes to their
>>lives. Could be that is what is causing your tension problems, which is
>>causing your sleeping problems, which is adding to the tension
>>problems. Vicious circle, and one most doctors are familiar with. As fo
>>Mary Pomroy, the last I heard was Helen D's post regarding Mary's inter
iew
>>after surgery. Sorry I can't help further.
>>
>>COLETTE: I was being totally selfish in posting your story and forwardi g
>>all the replies to you - I wanted you back here ;) I'm glad you continu
>>to feel good, and hope to catch you on MSN or ICQ real soon.
>>
>>DEB: Thank you for posting your problems with your legs. I have also be n
>>having problems losing the feeling in my legs and falling, and I was
>>blaming these on adhesions, but thought I was over-reacting. Brain fart
>>here - could you refresh my memory on what MPS and RDA stand for? I don t
>>have a weight problem - at 5'2" I weigh 110 maximum. And I have never h d
>>problems with ovarian cysts, thank God. My adhesion problems stem from
>>surgery and seat belts.
>>
>>HELL-YUN: You know my hand is always out to support you Sweetie! Don't
>>ever hesitate to ask, I'll always be there for you. Did you make that
>>phone call? I need to write a letter, can't afford to call much. Hope y u
>>are feeling a bit better anyway.
>>
>>JAN: With the love and support you are showing the ladies here on the
>>site, I know you are earning your special place in Heaven. Way to go
>>girl! Keep up the good fight.
>>
>>JO: It makes me smile to see you posting again. It will make me laugh t
>>be able to chat with you real-time. I'll e-mail you personally on that
>>other topic you wrote me about. Huggles around the world ;)
>>
>>ROSIE: Welcome to the best support group for your problems. Most of us
>>here have found that over-the-counter products do not help much when it
>>comes to relieving the pain of adhesions. You might want to try to
>>convince your doctor to send you to a pain management clinic to help yo
>>get the pain under control. Good luck.
>>
>>SALLY: So good to see your posts. Will catch up with you on MSN in just a
>>little bit. Love you, Sweetie.
>>
>>ANGIE: You may be new to the group, but you have caught on really quick y
>>to what it is all about - sharing with the rest what has and hasn't wor ed
>>for you. Welcome, and I hope you are having a pain-free day.
>>
>>SHAWNNA: I don't think I've welcomed you to the group either. My only
>>excuse is that I've been having a bad stretch and haven't had much ener y
>>to support the rest of the group. My apologies, and welcome.
>>
>>TISH: Congratulations on finding a doctor to help. Your positive attitu e
>>is a real bonus to the rest of us, and I'm glad you found this wonderfu
>>place. Good luck.
>>
>>TONI: Glad you got through the wedding OK, and good to see you posting
>>again. I keep missing you on MSN - seems when I'm on, you're away
>>:( Catch up with you soon.
>>
>>And enough is enough. Time to get away from the computer for a while an
>>rest. I went out Monday to do some gardening in my flower beds, and got
>>carried away. Two days later, I'm still paying the price. Gentle
>>pain-free hugs to all.
>>
>>Nancy in NB
>>
>>ICQ 9683431
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