Re: OK Everybody - Group Post time

From: clare (csheedy@netcom.ca)
Thu May 9 12:15:09 2002


Hi Nancy:

Thanks for the reply. I'm not sure whether or not my Dr would give me anything or not, but I'll ask if this doesn't settle down! I'll probably work on lowering the coffee intake first....

I too have problems with loosing the feeling in my right leg and both hands. My little problem began a couple of months before the tumor was removed, and has stayed with me the two plus years since the laparotomy. My right leg swells quite noticeably most days, and no reason was ever found. I did see a neurologist, and he could touch my elbows and knees and reproduce the loss of feeling perfectly! He said that he was very sure that the surgery and the tumor had both dammaged the nerves, but that to operate would not solve this problem. For some strange reason I wake up about one night a week with no feeling at all, and I have to move around to get the feeling back. It's almost like my blood isn't flowing right or something.(I'm weird, I know)LOL That said, Nancy, your problem with your legs seems to be quite serious - have you seen a neurologist?

Maybe there's something they could do to help you?

Hugs,

--
Clare

At Wed, 08 May 2002, Nancy E. Hale wrote: > >Hi Girls: > >LESIA: My best suggestion to you would be to search the IAS message board >archives for "Ashermans Syndrome". I know there have been some posts >referring to this in the past, but I have no experience with it myself. We >have all found that adhesions should only be tackled by surgeons trained in >the least invasive techniques possible to try to avoid new adhesions >forming after surgery. It isn't easy to find such a surgeon. Where are >you located? Some of our posters have had successful pregnancies with >adhesions as well as after adhesiolysis. It is possible. My personal >opinon is to educate yourself about adhesions, what they are, what the >symptoms can be, what the complications can be, and you have found the best >place on the web to do that - right here at http://www.adhesions.org . Good luck, >and feel free to ask any questions. > >BRENDA: I know some of the people on this board have been unsuccessful in >getting disability the first time they try. I am Canadian, so I'm not sure >what the rules and regulations are in the US. Search back through the IAS >message board archives for posts relating to this. As I told Lesia, the >archives hold a wealth of information, and can answer most any >questions. Good luck, and hang in there kid. > >CLARE: You are not the only one to have this problem - I often wake with a >stiff neck and tension headache after a bad pain night. I don't have any >solutions. What about a mild tranquilizer/anti-depressant? Just something >to relax you a little? Chronic pain patients are prone to depression due >to having to deal with the constant pain and the changes to their >lives. Could be that is what is causing your tension problems, which is >causing your sleeping problems, which is adding to the tension >problems. Vicious circle, and one most doctors are familiar with. As for >Mary Pomroy, the last I heard was Helen D's post regarding Mary's interview >after surgery. Sorry I can't help further. > >COLETTE: I was being totally selfish in posting your story and forwarding >all the replies to you - I wanted you back here ;) I'm glad you continue >to feel good, and hope to catch you on MSN or ICQ real soon. > >DEB: Thank you for posting your problems with your legs. I have also been >having problems losing the feeling in my legs and falling, and I was >blaming these on adhesions, but thought I was over-reacting. Brain fart >here - could you refresh my memory on what MPS and RDA stand for? I don't >have a weight problem - at 5'2" I weigh 110 maximum. And I have never had >problems with ovarian cysts, thank God. My adhesion problems stem from >surgery and seat belts. > >HELL-YUN: You know my hand is always out to support you Sweetie! Don't >ever hesitate to ask, I'll always be there for you. Did you make that >phone call? I need to write a letter, can't afford to call much. Hope you >are feeling a bit better anyway. > >JAN: With the love and support you are showing the ladies here on the >site, I know you are earning your special place in Heaven. Way to go >girl! Keep up the good fight. > >JO: It makes me smile to see you posting again. It will make me laugh to >be able to chat with you real-time. I'll e-mail you personally on that >other topic you wrote me about. Huggles around the world ;) > >ROSIE: Welcome to the best support group for your problems. Most of us >here have found that over-the-counter products do not help much when it >comes to relieving the pain of adhesions. You might want to try to >convince your doctor to send you to a pain management clinic to help you >get the pain under control. Good luck. > >SALLY: So good to see your posts. Will catch up with you on MSN in just a >little bit. Love you, Sweetie. > >ANGIE: You may be new to the group, but you have caught on really quickly >to what it is all about - sharing with the rest what has and hasn't worked >for you. Welcome, and I hope you are having a pain-free day. > >SHAWNNA: I don't think I've welcomed you to the group either. My only >excuse is that I've been having a bad stretch and haven't had much energy >to support the rest of the group. My apologies, and welcome. > >TISH: Congratulations on finding a doctor to help. Your positive attitude >is a real bonus to the rest of us, and I'm glad you found this wonderful >place. Good luck. > >TONI: Glad you got through the wedding OK, and good to see you posting >again. I keep missing you on MSN - seems when I'm on, you're away >:( Catch up with you soon. > >And enough is enough. Time to get away from the computer for a while and >rest. I went out Monday to do some gardening in my flower beds, and got >carried away. Two days later, I'm still paying the price. Gentle >pain-free hugs to all. > >Nancy in NB > >ICQ 9683431


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