Re: Endo return or Adhesions
From: Renee Petty (pettytara@msn.com)
Tue May 7 20:58:27 2002
At Tue, 26 Sep 2000, Deb Stevens wrote:
>
>Meg,
>I have a question: How dod they decide that you had a return of Endo and
>or adhesions?? I'm going through the thought process of this now with my
>doctors! One says that he's been inside so many times that he's sure
>that all is removed but to be on the safe side let's see what will
>happen when taken off harmones!! Anyone with a clue what is supposed to
>happen (more pain or less and if there's no change how can one know if
>there's not already endo?)Another doctor is agreeing with the first
>stating it's probably not the cavity causing problems but the wall
>lining! And another is suggesting that he sees I'm in pain but soen't
>know what to do for me as he's not sure at all what's causing it!
>I know that we've heard about the wonderful doctors in this group, which
>I'm glad to see that they are available to some of us, but at what point
>does one decide that it is adhesions causing the pain and what to do
>about it?
>Deb
>At Tue, 19 Sep 2000, Meg wrote:
>>
>>Hello
>>New to this site.
>>I had a TAHBSO on 4/00 due to severe endo and adhesions. Today, I was
>>diagnosed with the return of endo. Dr. feels the endo can be controled
>>by hormones, and the adhesions will "go away with time". My pain is in
>>my lower back with intermittent bowel problems. I have done my research
>>and there is nothing about adhesions just going away. Second, I really
>>don't know who to turn to, a surgeon who specializes in adhesions or a
>>local endometriosis center. I think the endo ctr will cut the adhesions
>>but not with the care and barriers recommended.
>>
>>Any advice is appreciated,
>>Meg
Hello,
I am also new to this site and am being told the same thing alot of you
are. I have had previous abdomen surgeries (most recent 1996 abd.
hysterectomy and 1999 Lap. surgery where adhesions were cut loose - by
a dr that specializes in this field). However, yeterday (as well as the
last several visits) was told he doesnt think the adhesions are back. He
said I have "straight back syndrome" and is wanting me to try PT. I
tried PT last year with no relief. I know the adhesions are back and
told him so. I have back pain, abdomen pain, nausea, and problems with
my bowels. I cant travel very far for help. Anyone know of a place
near Rock Hill SC? Dont tell me Univ. of NC at Chapel Hill because that
is where I have been going since 1999. They are wanting to start this
referral business again (dr. to dr. to dr.) and I'm not going to do
it. I do need some relief though!! To your question of how do you know
if the adhesions are back? I know because the pain is the same pain I've
had since 1994. I KNOW when they are back and you probably do to. The
problem is convincing the Dr. they are back and getting someone to do
something about it!!