How kind of you to respond. You are right. I do need to find and endo surgeon. This will only be my second surgery in 12 yrs. Had a lap long ago. I don't even know what a luna is?? The hysterectomy left one ovary (which now has a good sized cyst to boot. I want them to do a lap, take the ovary to stop it's hormonal stimulation, then clean up the endo and adhesions, if they see a way to repair any of the bowel damage, go to a laporotomy and be done with it. I just read my operative report and the cauterized and lazered everything in their path. I did not know it would only make it worse. I am bad off now. I would not be able to get to Atlanta. Have a seven year old. Blessings to you Clare. Helped me with a bit more insight. Just found this sight today. Best to you all.
>Hi Dawn:
>
>I'm sorry that I don't know of a doctor in Boston. However, I know a
>gal who had stage 4 endo and massive adhesions removed successfully by
>Dr. Robert Albee, who is in Atlanta, GA. I know it's a long way to go,
>but my friend swears that by having total excision of the endo performed
>she feels cured, (and I think she had a second look lap that showed no
>endo, but I'm not 100% on that).
>
>This doctor is part of the Center for Endo. Their site is
>http://www.centerforendo.com
>If you are interested in this, I can ask my friend if she would discuss
>her experience with you. I think the key is (if you're sure you want to
>try another surgery) to get one of the most skilled laparoscopic
>surgeons possible. I've read quite a bit about endo, and it seems that
>you need an endo specialist who uses excision rather than laser or
>cautery.
>
>I do shudder inwardly every time I read another post to the forum about
>women having another surgery. Please, be as cautious as you can. I
>just had a laparoscopy for lyses of adhesions, endo and a LUNA, and I'm
>sorry to say that now I am even worse than before. That said, I wish
>you luck, and let me know if I can help you in any way. :o)
>
>Best wishes,
>Clare
>
>At Fri, 3 May 2002, Dawn wrote:
>>
>>Hi all,
>>have had endo for years. Looking for a doc to clean me up after
>>abdominal hysterectomy. I thing my gyn was overwhelmed when she opened
>>me up. Stage 4 again. Organs adherede to everything...you know the
>>story.
>>Well I am getting desparate again. Had bladder nerve damage and my
>>bowels are a mess...
>>I go to BI here in Boston, my docs are wonderful folks but I am just
>>about incapacited at this point.
>>Please help if you know anything.
>>Thank you for your time.
>>Best wishes to all,
>>Dawn