-- At Fri, 12 Apr 2002, Kelly Murray wrote: > >I don't think a person should go anywhere but I don't see a large amount of >people that are getting"cured" in Scranton or Germany. I know that my p in >is back from the adhesions and not from the incisions. I guess I just fe l >so let down after spending so much money for surgery and feeling the sam . I >was so excited to finally go and have my surgery to end the adhesion >nightmare to only be the same and maybe a little worse. >I don't think the answer is more surgery but I also don't know if these drs >are so much better then others that perform adhesiolis. (sp) I may be wr ng >but.... >I do know though that after reading your posts, that I won't jump into >surgery again. I am trying to hold off but I am afraid that one day I w ll >get blocked. I will probably just end up going somewhere close to home or >this and pray that it will last for awhile. >God Bless You Karla, >Kel > >-------Original Message------- > >From: adhesions@adhesions.org >Date: Wednesday, March 27, 2002 11:06:58 PM >To: Multiple recipients of list ADHESIONS >Subject: NO MORE SURGERY! > >I know many people on here have been through the >process of having to decide whether or not they should >have surgery for their adhesions. Pain is an awful >thing. I would like to explain my opinion and perhaps >people will understand better. > >-- > >There are many, many doctors in this country that feel >that they can perform an adhesiolysis and you know >what? They can. The question is, can they perform it >adequately so that your adhesions are gone permanently >or so that they are at least diminished substantially >and no adhesions reform. There is one doctor who >offers a cure in thirteen surgeries. Do you want to >go through that? Many people are learning, after >trips to the best doctors in the world...both here in >this country and overseas that perhaps their pain >hasn't been from adhesions or that the pain that they >have now isn't from adhesions. We are learning that >many of the people seeking treatment at even the best >places have another pain....pain caused from the >cutting of our tissues. Some people are developing >the most debilitating pain from this. We have had >people have surgery in Scranton and go to Germany only >to learn that they had either very minimal reformation >of adhesions or none at all. They are learning that >their pain is from the incisions. There is no cure >for that. But still, if we feel that we have to have >surgery....that we cannot live with the pain (I am >talking about everyone...people who have not been to >Scranton or Germany) then you are doing yourself a >disservice by having surgery performed by an unskilled >physician. These doctors do think they know what they >are doing....but either they don't or they don't want >to take the time to meticulously take each adhesion >down and remove each little speck of blood or other >matter. This lengthens the surgery time by hours. >Insurance only pays roughly $2500 for an adhesiolysis. >If you were a doctor would you accept that amount if >you stood in the operating room for ten hours? I would >probably try and do as many surgeries as possible >instead of one major procedure that I'm not really >making money on. Its a shame that its about >money....but that's life. Everyone who I know who has >gone to Scranton or New York before the move had a >procedure that lasted a minimum of four hours. One >woman was in excess of ten hours. All of these women >are relatively painfree in comparison to how they were >prior to the surgery. All of them had undergone lysis >of adhesions prior only to have the pain return. > >If you are to go to a surgeon who doesn't use quite >the right procedure your adhesions WILL return worse >than they were before....because you have now given >them another area to form. The pain will be worse and >what will you have gained? Yes, you might have a >couple of months pain free....perhaps even a year or >so (I haven't heard anyone say that it has been that >long when they have had prior surgeries). But, when >it returns and is worse and causes further problems >what have you gained? > >Believe me, I can't tell you enough that I have made >these same mistakes. I am not a doctor...but I am >someone that is going to die because I allowed my >doctor to convince me 27 times that I needed surgery. >Not one of those surgeries was to prevent a life >threatening situation...well I must take that >back....I did have a few procedures to correct some >major errors that they made that would have caused my >death if nothing was done. I am trying to reach out >to you and ask you to educate yourself about >adhesions. Read everything there is to read. Read >every story on the quilt. Unless you are seeking >surgery from one of the very few doctors in this world >who has had any success chances are likely that you >will end up worse off. Is this what you want? Why >bother having the surgery? Please think about this: >I am 45 years old. I have one daughter and two >beautiful granddaughters who I adore so much. My life >could end any day and I will be unable to spend >another day with my family. Do you want to have this >happen to you? What about your family? How would >they feel? If you won't think about yourself, think >about them! Each additional surgery that you go >through brings you that much closer to death. If you >don't have a bowel obstruction or another life >threatening condition you don't need the surgery! Ask >your doctor....will I die tomorrow if I don't have >this surgery? How about next week or next month? I >wish that I had looked at each surgery this way. I >wish that I could take it all back. But I can't. The >only thing that I can do is try and prevent each of >you from making the same mistake. I never thought >that I could live with my pain. But I have done so >for three years now. Yes, I am now on morphine, but I >am for the most part pretty comfortable. I would >rather take the narcotics then die because I had one >too many surgeries. I have had 28 since 1991...over >50 in my life...but that doesn't mean that you could >have that many. It doesn't mean that you won't die on >your fifth procedure. I have actually almost died >three times...because of things like my heart stopping >on the operating table. Not to mention the times when >I became critically ill following some of the >surgeries. The only thing I can say is that I don't >want this to happen to even one of you. Please >understand, it isn't about knowing it all...its about >caring and loving. > >God Bless, > >Karla > >http://movies.yahoo.com/ > >. > .