I think it's short bowel syndrome - result of resections. Hugs, Clare
At Thu, 4 Apr 2002, Karla N wrote:
>
>What is SBS?
>
>--- "Traci (woman)" <genz@co.dane.wi.us> wrote:
>> I have had the SBS since 8/00 and live in Wisconsin.
>> I feel like I'm
>> the only one that has SBS in Wisconsin. I would
>> love to have a pen pal
>> that I could share my frustrations, problems,
>> etc....I do have great
>> support of my medical staff but sometimes I want to
>> talk to a person
>> that already has SBS.
>> All these adhesion problems occured when I had
>> lapscopy (spell?) in 1993
>> to remove my uterus. Then I developed a bowel
>> obstruction. That was a
>> piece of cake surgery. Then in 1999 I developed a
>> tumor on my ovary and
>> they removed both and saw alot of adhesions and
>> hoped they wouldn't give
>> me trouble. A week later I had 5 resections, 9
>> hours long surgery and 6
>> weeks of hospitalization and plus 3 other short
>> stays in 1999. I was
>> still in pain & vomiting the surgeon I had at that
>> time basically told
>> me there isn't anything wrong w/me, etc...After one
>> & half years living
>> w/that, I saw someone else for a 2nd opinion and
>> this surgeon couldn't
>> believe what she saw. The adhesions was from the
>> upper colon to the
>> rectum. I lost my ileum and only have 4.5 feet of
>> small intestine left.
>> The surgery was a 10.5 marathon. My parents were
>> told I may not survive
>> this surgery. The surgeon told my parents that if I
>> would have would
>> waited another week, I would have died. AFter one
>> week of ICU & 5 weeks
>> of hospitalization, I went home w/TPN, tube feeding,
>> etc...I was on TPN
>> and tube feeding for 5 months.
>>
>> The diet was the hardest thing I had to go through.
>> I have always hated
>> dieting and it was a hard adjustment to it. It took
>> me 6-8 months
>> before I got the hand of it and I had to learn to
>> cook too. I was able
>> to eat cheeseburgers, fries, pizza and everything
>> else I got sick and
>> had this surgery.
>> I used to be very active, going out w/friends,
>> biking, jogging,
>> traveling. I still go out w/friends but as far as
>> exercises, it has
>> been zipped! I tried jogging but I always ended up
>> running home to the
>> bathroom! I'm afraid to be around places that don't
>> have access to the
>> bathroom. I'm having trouble w/my iron and already
>> had two blood
>> transfusions to get up iron up to level.
>> Anyway, it would be nice to talk to someone and
>> share stories or swap
>> ideas/suggestions. Love to hear from you.
>>
>> --
>> Traci
>>
>> http://www.adhesions.org/forums/listcmds.htm
>
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