Re: Adhesions,Hirschbrungs Disease

From: Bob Knox (
Tue Jan 22 16:20:24 2002

h>From: (Tracey) >Reply-To:
>To: Multiple recipients of list ADHESIONS
>Subject: Re: Adhesions,Hirschbrungs Disease
>Date: Tue, 22 Jan 2002 02:34:27 -0600
>At Thu, 15 Jul 1999, wrote:
> >
> >Iam not real good at this internet thing but I have had so many problems
> >with adhesions and scar tissue I looked you up and decided to write. Iam
> >23 as of July 4th and when i was born I had Hirschbrungs disease. I had
> >8 major surgeries before I was 3. Then I was fine for many years after
> >that. In May of 1998 I started throwing up almost after every meal. I
> >had a group of Doctors that could not do anything but stand around.
> >December of 1998 I found the three doctors that were sure to change my
> >life. They did. In febuary of 1999 they performed another major
> >surgery. Removing a lot of scar tissue and adhesions from all my old
> >surgeries. They also found out I have Polycistic ovaries. so they
> >removed 2 softball size cysts from me during surgery finding out later
> >it was my fillopian tubes. They said surgery as a baby probably damaged
> >them pretty bad. They then cleaned my liver free of scar tissue and
> >adhesions. I guess that is why I had that greenish color for almost a
> >year. Well I guess why I am writing is because in the last month I
> >started throwing up again and I have this bee sting pain near my
> >incision. I was wondering if anyone had any feed back at all on my
> >condition or my situation. Thanks for your time I appriciate it. Megan
> >Kittredge.
>Hello there-I'm not sure what I want to say, but I found this letter
>that you wrote about having hirschbrungs disease, and I needed to write
>to you. My son is 4 months old, and was born with HD, and had surgery,
>and the colostomy bag for 3 months, and a few weeks ago, had the
>reversal surgery. Within 1 week after being home, he went back to the
>hospital, mainly because he was dehydrated, and really wouldn't eat
>much, in fact we just got home from the hospital today, and he did fine
>in the hospital (while he had an I.V in his arm) but now that we are
>home he won't eat again, he hasn't since we left the hospital, and threw
>up tonite, and is looking dehydrated again (sunk in eyes)... Basically
>I guess I am just looking to find out about your experience with HD and
>do what I can to help my son get through this, We feel that we may have
>a long road ahead of us, him only being 4 months old, he really can't
>tell us anything about what he is going through.... after reading your
>letter I could just cry, because I can't picture this happening to our
>baby, especially since the Dr. told us everything should be ok, that
>most kids are very normal after going through this "somewhat common
>procedure" but it seems that your surgery at a young age proved to be a
>mistake for you..why? Please write back with your advice or knowledge
>about this disease, I know that it is passed on from us, but don't know
>about post surgery problems... I will be looking forward to hearing
>from you........Tracey

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