From: rmasse2333@aol.com (Robin)
It does help to have people that truely understand what we are going through. When I came to this site about 1 1/2 yrs ago, I finally felt validated. I finally felt like it truely wasnt in my head, even though I had the surgical reports to prove I had adhesions.
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Hi Robin!
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You said it! Having a place were we can go and talk about what is happening knowing that the person listening/reading really understands because THEY TOO have had similar experiences to you. It really helps to know that you are not a friek... the only one in the whole world who wasn't cured after a surgery that we understood would solve all our problems. I think we have all been down that road where we question our sanity and wonder just how much of it is coming from our heads! Just having a name helps for a while, but then when we really start to get into the small print so to speak, we discover that our future outlook isn't that hot!
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This site has helped so much!! My surgery in Germany showed I had extensive adhesions & the 2nd lap showed I had 50% reformation in a week, and my last surgery showed that my trip to Germany helped alot because I had a small amount of adhesions, but...they have returned! I am not sure what I will be doing now. Love & hugs to all
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Yes, I agree this site has really helped me a lot too! I have found a team of doctors & physiotherapists that deal specifically in Gyno, endo & adhesions related problems & pain. The relief of having medical people who believe me on the face of what I say and who are happy to work with me let me be activley involved with planning and trying out various treatments has helped me mentally just more than I could possibly explain. Its the hardest time after surgery when we get to the point where we have to admit that the surgery hasn't helped the way we hoped and we then have to decide what to do next!
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Robin, I know how you feel, I am in the same position now really, well perhaps a little further advanced, because I have decided along with some very compassionate and caring specialists that the best thing for me now is finding a suitable pain management plan and finding the right combination and dose of HRT medication to give me the optimum opportunities to enjoy my life to the best of my ability, health and sanity! haha
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I hope you find the right path for you now, it doesn't matter if it is a bit twisty, turny or hilly ... as long as you are happy and comfortable with the direction well, that's all that counts!
love & gentle hugs
Jo(Australia)
>At Tue, 08 Jan 2002, Jo Eslick wrote:
> > > >Hi Robin. > >I am sorry that your pain has slowly returned, it is hard to accept it isn't it.... we get our hopes up possibly a little to high... and then we feel like we have crashed lower than possible when we finally realise it hasn't worked. > >I am glad that you visit with us every day, it really helps to know that there are others around who understand what we are going through. I hope that one day there will be a way to make us all feel so much better than we do now, but in the mean time I believe it is important that we tell as many others about our story as we can, because we don't want others to suffer the way we do.... > >I try to keep myself positive by staying as active as I can...which isn't very some days... but it doesn't mean that I just don't do anything! I use that time to work on my book, write letters (snail mail) or answer my email...just like I am doing now. > >I hope that you have someone who is helping, supporting and loving you Robin, because that really makes a big difference doesn't it. > >I hope you let us know how you are getting on... > >love & gentle hugs > >Jo (Australia) > > > >>From: rmasse2333@aol.com (Robin) > >>Reply-To: adhesions@adhesions.org > >>To: Multiple recipients of list ADHESIONS > >>Subject: I sent my story > >>Date: Mon, 7 Jan 2002 10:41:00 -0600 > >> > >>I have not posted in a while, but I read every day what is going on. It > >>has been 4 1/2 months since my open abdomial surgery with seprafilm & I > >>have a lot of pain. The surgery did help for a while, but the pain has > >>slowly returned. I am a bit frustrated with the pain. I did send my > >>story today Helen. Helen, when are you going back to Germany for more > >>surgery? I can't rember when it is, but I do wish I could go with you, > >>but financially, I can't. Give Elke & Helmute a big hug for me when you > >>get there! My thoughts, love, prayers & wishes for pain free or less > >>pain days to all. > >>love > >>robin > >> >