Re: Kidney pain and endometriosis

From: Jo Eslick (wallamara@hotmail.com)
Sun Dec 30 02:38:36 2001


Hi Jill

Welcome to the board!  I am sorry that you have only just been diagnosed with endo, I too have only recently been diagnosed with it after my ovaries had been removed.  I experience severe kidney pain & often have tests to see if I have urine or kidney infections and they come back negative.

I haven't been prescribed lupron, but I have heard that it is a very serious drug and to be honest all the posts I have read about it aren't very positive.  I have just recently had a consultation with an endometriosis specialist and he told me that it required very complicated hormone therapy to keep it under control.  Having surgery to remove it is out of the question for me as my abdominal area is filled with dense adhesions.

I suggest that you do as much research on Endometriosis as possible.  You will find links to some great information on the Adhesions site, as well as help from some of the regulars here on the board.  The most important advice I can give you to start with is not to consider surgery, look at all your options carefully, and if you are still thinking about it you will need to find a surgeon who specialises in this area.

Again, welcome to the board, we are a pretty friendly bunch here and do our best to offer friendship and support.

love & gentle warm hugs

Jo (Australia)

>From: lem4x@hotmail.com (Jill)
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
>Subject: Kidney pain and endometriosis
>Date: Sat, 29 Dec 2001 16:33:48 -0600
>
>Hi I had written a message earlier but see that it was never posted?! I
>must have hit something wrong. Anyway I was diagnosed with stage four
>advanced endometriosis on December 29th. I was told I had scarring and
>sveral deep adhesions. I am starting lupron on January fourth, and was
>wondering what to expect.? I also have had kidney pain in the last 5
>months or so. The doctor doesn't seem to think that it is related, has
>anyone else had pain in the kidneys with endometriosis?
>
>New to this site, JILL :)
>

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