Re: Update-Pain To Lin

From: Bonnie L. (babyblu030@aol.com)
Wed Dec 5 10:16:43 2001


At Wed, 5 Dec 2001, J&L VERMEY wrote: >
>Oh Bonnie!
>
>My heart goes out to you! I know EXACTLY how you feel. I hate the hospital
>too, so often I feel that the staff in A & E (Accident and Emergency - as it
>is called here in New Zealand) look down their noses at me. Many times it
>took hours before I am allowed to lie down (regardless of how bad I say the
>pain is!), and then once I'd be finally lying down it would take over an
>hour before a nurse would come and take all my details. Usually I have been
>admitted to the surgical ward it has taken somewhere between 6 and 12 hours
>before I even got to the ward! (And there have been so many occasions when
>things have been bad and I'd go into hospital only to find out that my
>surgeon, whom I am always under, was away on leave!)
>
>Now I try stay at home - regardless of how bad it gets - but there have been
>at least half a dozen times in the last month when I said to John "should I
>go to A & A?" - but John always leaves it up to me. And then I get to
>thinking - I can't sleep in hospital - I hate being away from home - I don't
>want to be away from John - I don't want to leave my animals, several are
>still young and need me (at least I think they do - but maybe it's more that
>I need them) - I'm afraid of how my Pain Specialist will react when he finds
>out I'm now regularly taking pain relief, when he plainly told me that he
>wouldn't prescribe the morphine sulphate as he wanted me off all the
>narcotics and I am sure he'll blow up when he discovers that my house doctor
>has prescribed it anyhow - regardless of how he feels! - the nurses, if I am
>admitted, take away my rights of taking my own meds, and I have to wait
>until they 'get around to it' before I get my pain relief; sometimes it has
>taken longer than an hour after asking for pain relief before I end up
>getting it - they treat me like I don't know what I'm talking about when I
>say "I take the stuff at home, why can't I have it in my draw? Why can't I
>be responsible for taking it when it is time?" - AND also very time I have
>been admitted in the last couple of years when I've been reassured that I
>would only have to stay for a few days it would end up being weeks before I
>could go home!
>
>So, you see, I do understand how you feel.
>
>But Bonnie, I'm really worried about you, you say you haven't eaten anything
>for three days! Are you drinking enough? Please just be careful that you
>don't get too dehydrated, hu?
>
>I just talked to my husband, and told him what you'd written - I hope you
>don't mind - but he could also understand how you feel, as he's seen me
>struggle with the same question! He suggested that you go to your house
>doctor, or ring him / her and tell them how bad things are, and ask what you
>should do. Maybe they could help, I don't know how you get on with your
>doctor, I am lucky as mine is so supportive and caring. Is there anybody who
>could look after your little one for awhile? Remember Bonnie - you pain is
>NOT in you head! It is real and you've got nothing to be ashamed off, try to
>stand up for yourself - tell your health professionals what you need - lay a
>complaint if they don't take you serious! I know that at this time of the
>year it is no fun to be in hospital - it's December, in a few weeks it's
>Christmas - I know all too well how that feels as I have spend the last two
>years in hospital during Christmas, New Year as well as 3 Easters in a row!
>But you need to think of yourself, it sounds like you need help.
>
>I'm thinking and praying for you Bonnie, I hope you will come to a decision.
>I wish I didn't live so far away so that I could help you! But I hope
>knowing that you're not alone comforts you.
>
>Hugs and my love, I'm hear if you want to talk, take care
>
>Lin from New Zealand.
>
>Lin,

Thank you so much for taking the time to answer me. I think what I might do is if I don't get anything down today, then I will go directly to ER. I am starting to get a little scared here. Pain is still , out of one to ten , it is about a 8 to 9. So, instead of putting myself through all this worry, it is best that I get checked, even if it is the medicine at least (maybe) they can give me something so I can have a couple of pain free hours and sleep. Haven't slept since Monday. If they don't do anything than I will file a complaint. I am so sick of worrying what the ER docs going to think of me and my situation. I am a human being and deserve the right to proper medical care regaurdless. You know I cannot wait till there is a day that all of us who suffer with this dreadfull disease ( and that is exactly what it is a disease ) will be treated seriously and with the proper respect that we all deserve. It is not our fault that we are in this situation and we should not be made to feel that it is. Well, I will keep you posted, and again thank you so much for responding. Your a sweetie! ((((hugs)))) With Love, Bonnie

>>>----- Original Message -----
>From: Bonnie L. <babyblu030@aol.com>
>To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
>Sent: Wednesday, 5 December 2001 09:08
>Subject: Update-Pain
>
>> Well, I have contacted my Doctors office and he is on vacation. So,now
>> I am left with the same problem. Last night it was so bad that I wanted
>> to go to the E.R, however I remember how they treated me in the past,
>> which was very hard. I haven't eaten anything in three days,and the
>> pain is still there. If I go to the ER what is it that they can do for
>> Chronic Pain caused by Adhesions? I am so afraid that I am going to be
>> admitted ( I have a five year old so it is quite hard to get help when I
>> need it) or I am afraid that they will look at me like I am crazy and
>> then label me ( again ) What should I do?? I'm sorry I know this seems
>> so simple and I feel like a complete idiot because I cannot decide what
>> to do. But I have been treated very badly by doctors in the past.
>> Thanks, and again I am sorry to keep bugging you all with these dumb
>> questions.
>> Always,
>> Bonnie
>>


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