Re: NEXT STEP: A thanksgiving Promise
From: Paula (pal12559@aol.com)
Tue Nov 27 20:06:48 2001
At Tue, 27 Nov 2001, Ginny Halpern wrote:
>
>My dear Friends:
>
>I am touched and I feel a sense of encouragement from your many
>responses to my promise to try and get us the recognition and the
>medical help we desperately need.
>
>I will be working with Dr Wiseman ,Helen and several other key people to
>put together a survey and send it to all of you for reply.
>
>I hope that once I have enough data on the issues at hand I will be able
>to begin the long, arduous task of petitioning local and regional and
>even state legislators to recognize us as a definitive group of
>sufferers in need of adequate medical attention.
>
>Meanwhile, Please hang tough. Dr Wiseman and I need to make certain
>that anything you fill out or respond to is valid, legal and able to be
>presented to all parties for review.
>
>I know you all have feelings of desperation, frustration and some of you
>feel you are not being taken seriously by family, friends and
>physicians. I hope to be the voice of the many, after I collect your
>feedback and process it.
>
>I wish you all the love and hope for a more comfortable tomorrow. I
>will fight for us for as long as it takes. I am so damn tired of
>feeling this way and I want to be able to validate my pain and your pain
>to the world, one day soon.
>Hugs
>
>ginny
--
ginny please let me know of any info my 17 year old daughter is having a really bad time . her fallopian tubes and ovaries are completly incased and she has realy bad pain she doesn,t take anything for the pain. we are seeing a dr. in boston on monday. please keep in touch. thanks