I write this with the best of intentions....but I know that there is pain and anger behind it. I read this post and it made me want to scream. You make the statement that you would rather take a chance at having something work than living like you do everyday.....Kimmi you have no clue! It can get worse and I guarantee you it will...with each surgery it will get worse and worse. I do the same things you do for pain...they don't help. I have some relief with ms contin and liquid morphine...but not much. But for you to say that you are only 34 and you are tired of not being able to be a mother or wife the way you want to be....it makes me ill. I am sorry to come down on you...but yes it makes me sick. How would you like to be only 45....tired of living your life the way I have to live mine...but know that you won't be able to be a wife or a mother....not for very long. Because when you were 34 and in so much pain that you would do anything to have it end...including more surgery...and then more surgery and then finally need surgery so bad that if you don't have it you will die....but now no surgeon will touch you....even though they know that you will die. Cherish every moment that you have with your husband and your kids...even if they are painfilled and not what you would like to give them....at least they are moments that you can treasure. Don't put yourself at risk for losing those moments any sooner then you have to.
-- Karla
>----- Original Message ----- From: "Kimmi&Dave" <kimmi3@mediaone.net> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Friday, November 23, 2001 11:17 PM Subject: Re: Welcome Kimmi & Dave from Sally
> Sally, > Thanks for the welcome.And no you won't offend me, everyone is entitled to > their opinion. > I have had 12 abdominal surgeries, I don't know for me, I would rather take > a shot at having something work that living like I do everyday. Its a > possibility that nothing will change or things can get worse but there is > also the possibility that at least it might give me a few months or years > without or less pain maybe that's just living on hopes and dreams. I know > the pain management doctor always says people who are chronic pain are > willing to do anything that offers to be out of pain, and I must be careful. > For the most part all the doctors have said no more surgery unless it > becomes life threatening because of the amount of surgeries I have already > had. But 1 doctor my gyn doctor when I see him he says yes and send me to > another surgeon because he wants back up just in case something is in there > that's not his field. and the second surgeon replies no lets try this first, > so for 5 years I have been trying this and that and nothing works. I take so > much medication to ease off this pain and that doesn't work. I go to all > these PT' programs to ease off pain that doesn't work. I get injections that > doesn't work. I just need something to work and have to live on that hope > that something someday work. I am only 34, and I am tired of not being able > to be the mother and wife I want to be.. > Hugs > Kimmi
>> ----- Original Message ----- > From: "Sally Grigg" <lostcst@mcn.org> > To: "Multiple recipients of list ADHESIONS" > <adhesions@mail.medispecialty.com> > Sent: Thursday, November 22, 2001 12:59 AM > Subject: Welcome Kimmi & Dave from Sally > > > Dear Kimmi, Welcome to the board. I'm sorry its taken so long to write > > to you. My computer broke and I was "stranded" here in the wilderness. I > > wish you would go to the adhesions site http://www.adhesions.org and look at > > everything. The quilt and all our stories would be a good place to > > start. And please do not be mad at me for what I am about to say, but > > telling your doctor to do a full big cut and take out what ever he feels > > like ...well, it might not be such a good idea. So many of us here on > > the board have had surgery after surgery and no one would recomment a > > full big cut unless it were life or death. > > > > I know a lot about pain. Even after your surgery you could be in worse > > pain. I'm so sorry to say that, but its true. We get our hopes up, and > > go through the ordeal, but it doesn't necessarily help with adhesions. > > In the last 18 months I've had three laproscopics, one of which became > > a big, full cut because he sliced my bladder. My abdomen was full of > > adhesions and he couldn't see. Now a different doctor with better > > equipment might not have done that. > > > > Anyway, welcome to the board. There's so much information here and great > > love and support. The emails from Helen Dynda are great. All my love and > > any help I can give you are yours for the asking. And I believe you > > when you say it hurts so bad that you don't care what they do, but you > > do care, and it could get worse. > > > > Lots and lots of water is good. It helps flush you out and can't hurt, > > although I must say, and you know this already, I'm sure, I'm not a > > doctor nor do I have medical training just 34 years of experience with > > adhesions. Prayers to you and yours, Sally at http://www.howardcreekranch.com > > > > > Helen,Oh that's right forgot you were not US.. Its possible they carry > > > that drug, you can actually go to an online pharmacy and find that > > > out.You know I sometimes wonder where these doctors heads are someday > > > and its sad we put our lively bodies on the table and let them do what > > > is best. So then it becomes live and learn unfortunately.Now if you > > > need another you will have state take all of what you see that many > > > not be the full cause now but those adhesions are going to grow and > > > attach they need to be cleaned up.With Dr Delise which I need to make > > > an appt myself with him to discuss surgery. He mentioned he would > > > start with lap and then what if that wasn't good enough do you have a > > > problem will full inssision. So I try to tell him like this one we are > > > approaching you go in there and you do everything that needs to be > > > done. If you anything mentions in your brain well this one might > > > suspect to go bad treat it now.I don't care about the Lap or full size > > > cut just do it and do it now.Tonight again my stomach is swollen to > > > the size of a pregnant woman and the pain pressure feels like I could > > > push out a baby.. Its terrible and you try and relate that one to male > > > doctor they have no clue never pregnant don't understand.hopefully > > > together we can all get bits and pieces of treatments and get em all > > > together as one and present this to the doctors and say see > > > FIXME!!! Well hon gotta run.. Happy thanksgiving.Kimmi > > >
>> > > ----- Original Message ----- > > > From: Helen Gibson > > > To: Multiple recipients of list ADHESIONS > > > Sent: Wednesday, November 21, 2001 9:27 PM > > > Subject: Kimmi > > > Dear Kimmi, thanks for the post, I will consult my Drs and > > > see if I can get a referral to a pain management Dr, I don't > > > know how long I will have to wait, but I will get the ball > > > rolling.As far as him not removing all the adhesions, who > > > knows what he was thinking, maybe he was in a hurry?, but at > > > least I know now what some of the pain is being caused by.I > > > will ask my Drs about the neurotin, it may be called another > > > name over here in OZ, and see if I can take some to see if > > > it helps at all.Thanks for caring!!hope your having a good > > > dayLoveHelen G > > > > > >