Re: Trusting our doctors:Sally is RIGHT ON!

From: Kimmi&Dave (kimmi3@mediaone.net)
Wed Nov 21 21:09:04 2001


I will tell you something .Depression is one of the easiest forms to get on disability with. So if you are sending yours in on all this medical problem. Absolutely add that depression factor and what this condition is now doing to you. You are losing your body and mind at the same time. one of them is bound to break down...

I mother is on full disability for Depression/ She is Manic the one I talk to you briefly about the one who told us she was going to commit suicide when my dad dies.. And om this has put so much strain on my health, as well as stress on my brother and sister. ..Getting off track LOL... anyways Depression is the easiest form to get it for.. Hugs Kim

>----- Original Message -----
From: "Karla" <ifirgit@new.rr.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Wednesday, November 21, 2001 6:55 PM Subject: Re: Trusting our doctors:Sally is RIGHT ON!

> for those of you who also have disability claims pending you need to
mention > depression....Dolores is right...we all have to have it. I know I suffer
> with major depression particularly now...but all along.
>
> Love,
>
> Karla
>

>> ----- Original Message -----
> From: "dtouch" <dtouch@bellsouth.net>
> To: "Multiple recipients of list ADHESIONS"
> <adhesions@mail.medispecialty.com>
> Sent: Wednesday, November 21, 2001 5:26 PM
> Subject: Re: Trusting our doctors:Sally is RIGHT ON!
>
> > Kimmi: If anyone with severe chronic pain said they were not depressed
> they
> > cannot possibly not have a certain amount of depression. Eventhough you
> may not
> > need specific treatment for depression, it is still a factor when you
are > in
> > chronic pain and yes it certainly makes ones pain worse.
> > Love to all, Dolores in Louisiana dtouch@bellsouth.net
> >
> > Kimmi&Dave wrote:
> >
> > > Hi,
> > > I have seen so many psychiatrist and you know what they tell me, You
are > > > reasonable depressed. Nice hon.
> > > Primarily though the doctors what you too see psychiatrists because
> living
> > > in chronic pain takes a huge toll on your mental condition. Almost
> everyone
> > > who lives with chronic pain is depressed. Depression causes more pain.
> Pain
> > > causes depression vicious cycle. So for all you are told they should
> meet
> > > with a phych. Most are not questioning if you are a crazy, they are
> > > concerned that you may not mentally be able to handle it. But believe
it > or
> > > not they say that chronic pain patients are very strong. Stronger than
> the
> > > normal person who has a bout of pain.
> > > Living with chronic pain is extremely difficult, I know I suffer with
> > > terrible depression and anxiety. If they got rid of the pain most
likely > my
> > > depression would go away.
> > > I have tried at least 10 different antidepressants to help with the
> > > depression and anxiety none of helped.
> > > Another thing is low dosages of anti depressants suppose to help with
> pain.
> > > Personally have not found this to be true for me, but some say it
> > > helps..Hugs hon
> > > Kimmi

>> > > ----- Original Message -----
> > > From: "Ginny Halpern" <gingin99@home.com>
> > > To: "Multiple recipients of list ADHESIONS"
> > > <adhesions@mail.medispecialty.com>
> > > Sent: Tuesday, November 20, 2001 8:35 PM
> > > Subject: Re: Trusting our doctors:Sally is RIGHT ON!
> > >
> > > > Everyone:
> > > >
> > > > I think Sally has hit the nail on the head. We suffer from a
> > > > debilitating, very stressful medical entity that is so misunderstood
> and
> > > > even neglected by the medical profession that we are subjected to
> > > > extremes.
> > > >
> > > > I have recieved many, many letters from you asking why you are being
> > > > told once you've had a laproscopic exam and been diagnosed with
> > > > adhesions to seek psychiatric assistance. It escapes me as to why
> > > > surgeons are telling women, typically between 25 and 45 that
> "adhesions
> > > > do not cause pain" and therefore, are directing you to seek ongoing
> > > > therapy. (mental "cleansing"!!)In effect, you are being told your
> pain
> > > > doesn't exist in your belly, only in your brain.
> > > >
> > > > We can all sit here on the chat board and talk about the multiple
> > > > surgeries we have had, the various conflicting diagnoses we are
> getting,
> > > > the refusal by some pain management doctors to treat us long term
with > > > > opioids for unmanageable pelvic pain, and the discussion of horror
> > > > stories from ER visits where we have been accused of being drug
> seeking
> > > > junkies, "bored housewives" and people suffering with hypochondria
and > > > > other insipid opinions.
> > > >
> > > > The bottom line remains, we have a valid, debilitating condition
that > > > > has resulted either from too many operations performed by surgeons
> > > > trying to cure the incurable with more cutting or by surgeons
> attempting
> > > > to get us off their backs (we are the bane of the surgeons's world
> > > > because we never go away, never heal completely and always have a
> degree
> > > > of pain)
> > > >
> > > > I have watched this board evolve from a few dozen of us last year to
> > > > hundreds, looking for answers and for help and I have yet to see
> ANYONE
> > > > announce that they are totally free of pain, have been treated like
a > > > > human being with a legitimate illness and have found a resolution to
> > > > their concerns.(Yes, I have seen remarkable responses from a very
> small
> > > > % of you who have had positive results from Dr Redan and others like
> > > > him)But most of us are still floundering for help and for
validation. > > > >
> > > > By the way.............if you try to sign up for Social Security
> > > > benefits based strictly upon your adhesions related disease and the
> > > > subsequent pain and inability to control bladder/bowels, etc, you
may > be
> > > > surprised to learn that we are still not considered a valid disease
> > > > process as far as SSI is concerned. It doesn't matter if you wet
your > > > > pants every few hours and can't work without Morphine.....ARD isn't
a > > > > "known disease" according to Social Security.
> > > >
> > > > If you are an alcoholic or drug abuser you stand a better chance of
> > > > being accepted for Social Security disability benefits than if you
> have
> > > > adhesions! Believe me, I KNOW. I am fighting this right now, for
> > > > myself.
> > > >
> > > > I guess we can all continue to talk about this and share stories,
> which
> > > > is a wonderful chance to release the frustration, and the
> > > > anxiety.....OR...we can start petitioning someone to do something.
> > > >
> > > > I DO NOT know who to petition first, right now,, but I promise you I
> > > > will make this my project if even a few of you offer me your
support. > > > > I only want to know if even some of you are willing to work with me
on > > > > educating doctors, surgeons, pain specialists and all others who are
> > > > treating us like we are freaks, giving them the info they need and
the > > > > resources they need to better educate themselves.
> > > > I've got to tell you folks, over a year I have read the same
concerns > > > > the same questions and the same responses from you and from your
> doctors
> > > > and I have seen very few of you who come back and talk about the
> > > > "excellent, respectful, professional" treatment you have recieved
> every
> > > > time you complain of adhesional pain. Except for the few of you who
> are
> > > > lauding Dr Redan, I am not seeing a shift in the overall response to
> our
> > > > disease.
> > > >
> > > > Sally, you are 100% correct. We ARE AT THE MERCY OF THESE DOCTORS/
> They
> > > > do NOT know what they are doing with us and they are as frustrated
as > we
> > > > are, but now, the most current suggested surgical process is to
remove > > > > all organs from our otherwise healthy bodies and hang bags and
tubes? > > > > GIVE ME A BREAK!!!!!!!
> > > >
> > > > I am willing to petition Washington DC if necessary, and I will go
> there
> > > > alone! But I need your support, your thoughts and your ideas.
> > > >
> > > > You can talk all you want about this ache and that pain and the way
> you
> > > > are being ignored and lambasted but if you refuse to offer me the
data > I
> > > > need, I can only tell you I send my hugs, my best wishes and I sign
> off
> > > > this board for now.
> > > >
> > > > I need to know how you are recieved in ERs when you have a pelvic
pain > > > > crisis. How your family doctor is treating your ongoing pain. How
> the
> > > > surgeons are directing you once they've established that you have
> > > > adhesions. What you are being told as a long term prognosis after
> > > > surgery. If your pain is being managed sufficiently. If you are
> being
> > > > told to (in effect) get lost after your inscision has healed.
> > > > I need data before I can go to bat for you and for me.
> > > > Help me help you?
> > > >
> > > > We can't be cut open every few months, fed pain pills and told to
see > a
> > > > psychiatrist as a final solution. We need to be recognized as
people > > > > with a disease process as valid as diabetes or cancer.
> > > > I need your input......Please.
> > > >
> > > > Ginny
> > > >
> > > > gingin99@home.com
> > > >
> > > > At Tue, 20 Nov 2001, Sally Grigg wrote:
> > > > >
> > > > >Sometimes we trust our doctors too much. We don't really have many
> > > > >choices, but sometimes we can just say NO. And go looking for a
> doctor
> > > > >who isn't so quick to cut. We're in a no win situation with the
> medical
> > > > >care situation as it currently functions. Since they don't really
> know
> > > > >what they are doing, we are at their mercy. And we are in such
pain, > > > > >that we'll say yes to just about anything to alleviate the pain. It
> > > > >would be better most of the time to take pain pills until the
> > > > >researchers find a cure and they will. I have faith. Love to all,
> Sally
> > > >
> http://www.adhesions.org/forums/listcmds.htm
> > >
> > > to the unsubscribe form at

http://www.adhesions.org/forums/listcmds.htm > >
>


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