Re: Completely AWFUL doc visit...I'm in a really dark place right now

From: dtouch (dtouch@bellsouth.net)
Tue Nov 6 09:03:52 2001


To Susan: I don't know about other peoples experiences with neurontin but it made my adhesional pain 10 times worse. What state do you live in? I live in Louisiana and it looks like I may have found some real help with my adhesional problem and I am very optomistic about it. Luck to you, Dolores dtouch@bellsouth.net These doctors cannot seem to understand the extreme pain we suffer and tend to just push it aside like go take a tylenol tab. I have been a nurse for 35 years and I have seen both sides of the fence.

cynthia wrote:

> At Mon, 6 Nov 2000, Susan_OR wrote:
> >
> >Hi Everyone...
> >
> >I feel so alone and confused and desperate...I don't even know where to
> >turn or what to do. I have decided that I am done with my doctor and I
> >won't be going back. I don't think I'm going back to my gyn either...so
> >now I get to go thru the fun experience of finding new docs. I went
> >today and my doc prescribed Neurontin (has anyone tried this and what
> >did you think?) and then told me how it would most likely take a long
> >time to work, if it helped at all. So, of course, like anyone in pain
> >would...I asked her to refill my pain meds while we were waiting for
> >this to work. Can you already guess what the answer was? No...that's
> >it...just no. I asked her what I was supposed to do then...just suffer?
> >And she just looked at me like I had 3 heads. Dammit, I'm not a druggie
> >and I'm not crazy....I'm in PAIN! She said I am just too young to be on
> >pain meds all the time and that I have already been on them for 6 months
> >so she couldn't refill it. Like I want to be on them?!? I'm still in
> >pain and if they could offer me any other solution I would gladly stop
> >taking the pain meds, but that is the ONLY thing that helps at all. She
> >said, "honestly, I don't really think anything is going to significantly
> >help you and Dr. Peterson (my gyn) concurs". Ok, so what are they
> >doing? Humoring me? What the heck (not my first choice of words I should
> >say) are they doing and why am I paying them? I'm done with them. I've
> >only got 6 pain pills left so it's going to be getting real tough in the
> >next day or so. If I am too young to be on pain meds then I am too
> >young to just accept that I will be in this awful pain forever....I
> >can't just accept that. I just can't.
> >
> >I have thought about Scranton, but honestly, I don't know how we'd swing
> >the cost. Germany is a thought...but that just scares me to go so far
> >away. So, I'm still trying to grasp onto life savers closer to home.
> >I've been in contact with a Dr. Jerry Perez down in California in the
> >Bay area. I'm hoping he might be able to help. At least with the
> >lymphatic cyst, if not the adhesions. For right now, tomorrow...I've
> >got to find a doctor who will treat this pain. It is getting to the
> >point that I can't stand it one more second....let alone weeks. They
> >are going to find me holed up in some dark, dingy hole playing with
> >voodoo dolls in little white coats. Wouldn't that be fun?!? LOLLOL I'm
> >completely joking, of course! Just had to get that out. I really am
> >getting desperate. There just has to be a way to get relief.
> >
> >I'm praying for everyone who is off on their journey to wellness....
> >
> >Hugs,
> >Susan
>
> --
> Try the Nuerontin, honestly I felt great after 2 days,
> the first day wasnt as painful, second day, I was like my old self.
> I have to stay on schedule with it. I have some nueritis and costochronditis,
> I am much more active and happier, the pain is basically gone with a few exceptions
> every now and then. I was in pain for 2 years before this, and I went through
> hell trying to get the correct diagonisis and treatment. Dont give up now, just try
> it. Cynthia
>


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