Hi John,
I also have been living with an entrapped nerve or neuroma for 4 years
now. It is the worst pain imaginable. Unfortunately, mine never goes
away. I have had 3 surgeries on in now and each one reduced the pain
50% or more. I am now able to go on one and a half Methadone pills a
day now which gives me total relief of pain. Have you tried neurontin?
This helped me greatly until I got a rash from it. The worst thing that
you can do for a nerve is a block. Injections increase the pain. Only
surgeries relieve them and then you run the chance of having the
numbness. I can not have any more surgeries as it has been completely
removed now and so I pray that with time and proper nutrition and herbal
suppliments that I will someday be pain free. Good luck ot you and feel
free to contact me with any questions. I know very few people who have
had this happen to them and there is almost no information out there on
this subject. Joanne
At Sat, 22 Sep 2001, John wrote:
> >I saw my general surgeon yesterday and he told me the best treatment to >relieve the pain from my adhesions is to totally remove the nerve. I >did not like this idea so I was searching the internet for alternatives >and found your website. > >I had abdominal surgery in 1988 and about three months later developed >severe pain in my right and left abdomen that radiated. I spent years >going to different doctors thinking I had a hernia or that something >else was wrong. One doctor tried a nerve block which did not help much. >None of the doctors wanted to operate and one told me adhesions are good >and that I should learn to live with the pain. Finally in 1997 I >developed a right and left hernia while volunteering as an emergency >medical technician. The day after surgery I did not have any pain in my >left abdomen but had a sharp pain on my right side around the incision >area. It did seem to diminish a bit afterwards but then returned. >Sometimes I go a few days where I am almost pain free and would not >consider surgery. But then I have periods where I suffer severe pain. >It seems that the severest pain occurs at intervals of every two to >three weeks. Fortunately I have only had occasional discomfort on my >left side after the hernia surgery. > >The doctor feels that adhesions have developed near a nerve. The doctor >said that if he removes the nerve (strips it out) I would have a broad >area where I would be totally numb and not have any feeling. He said >the success rate with this is 90 to 95 percent. If he cuts out the >adhesions around the nerve the success rate would be 50 percent or less. >I would like to have feeling so I know if something is wrong but also >want to be pain free. If you have any ideas please let me know. I >thought that not many people had my problem until I found your website.