-Cindy-Fwd: ADHESIONS =>Bev's answers to 9 questions about adhesions

From: marianne bolding (ojowojo@yahoo.com)
Sun Aug 5 13:32:56 2001

--- Helen Dynda <olddad66@runestone.net> wrote: > Date: Fri, 13 Jul 2001 16:41:58 -0500
> Reply-to: adhesions@adhesions.org
> From: "Helen Dynda" <olddad66@runestone.net>
> To: Multiple recipients of list ADHESIONS
> <adhesions@mail.medispecialty.com>
> Subject: ADHESIONS =>Bev's answers to 9 questions
> about adhesions
> Bev's answers to 8 questions about adhesions:
> 1.) Once adhesions have formed, how rapidly do they
> grow or spread?
> Bev: Adhesions form within 2 to 7 days post
> operatively. The very thin filmy adhesions do not
> create any problems for months to years; and they
> are soft and pliable. Your organs, though attached
> abnormally, can move quite well and freely thus no
> tugging. Over time -- and it's different for each
> adhesion patient -- the adhesions start to get firm,
> like external scar tissue does; and when that
> starts to happen, the organs that are tethered
> together will begin to lose their freedom, thus the
> pulling and tugging starts and the ARD sufferer will
> experience pain and other symptoms. The symptoms
> are very dependent on which organs are attached and
> how tough the adhesions have become. Some adhesions
> form very quickly and are thick, vascular adhesions;
> thus one experiences pain and pulling within a
> couple of days post operatively! Once adhesions are
> formed within that time frame, they DO NOT continue
> to form and they do NOT spread. They get tighter;
> and the tissue toughens thus creating either pulling
> of the organs or constricting of the bowel -- like
> placing a loose rubber band around a balloon and
> gradually wrapping it around more and more, thus
> causing a constriction.
> 2.) Is there a point where the growth stops?
> Bev: Adhesion formation ONLY takes place in the
> time span of two to seven days. That is due to the
> healing process of the internal wounds. After seven
> days NO adhesions form as a result of the invasive
> process of surgery or injury. An inflammed appendix
> though can create inflammation internally; and the
> longer it is undetected, the more adhesion growth
> there is in response to a pending burst within the
> body. The body is encapulating that injury site
> with adhesions so if it does burst, the peritonitis
> is less -- though it is still usually fatal.
> Adhesion tissue does not continue to grow. Your
> pain and symptoms increase due to the toughening of
> the tissue and thus tighter tethering of what should
> be freely moving organs -- and, of course, along
> with that comes pain!
> 3.) How can the extent of their growth or spread be
> determined?
> Bev: As to the extent of the attachments and organ
> involvement from adhesions, only a laparoscopic
> diagnostic test will show that. There is no
> diagnostic test known in medical science today that
> will or can diagnose adhesions. NONE! No matter
> who tells you otherwise, there is none!
> 4.) Should I be concerned that they may be attached
> to other organs?
> Bev: Well, I don't know that. They ARE attached to
> other organs as that is what tethers them from
> moving freely. As to whether you should be
> concerned about that depends on your symptoms. If
> you have no symptoms that bother you, don't worry
> about them; BUT, if your'e suffering from symptoms
> of pain, constipation, heart burn, vomiting,
> etc...then yes, you should have a great concern as
> it will not get better. It only gets worse over
> time.
> 5.) Could they be the cause of abdominal distension
> (when no gas is present and BM's are regular)
> because of the extra tissue that has formed?
> Bev: Abdominal distention is a symptom of ARD; and
> it is not due to extra tissue. It is due to the
> bowel not being able to function properly as it is
> probably being pulled out of normal alignment as
> well as constricted in areas. This all depends on
> what surgeries you have had and what organs may be
> involved. This CAN be pretty well determined by
> looking at your operative reports. They tell a very
> informative story as to what adhesion involvement
> you have.
> 6.( I had a CT scan in December and a spot on the
> liver was detected. I go for another on Friday to
> determine if it has increased.
> Bev: The spot is NOT adhesions.
> 7.) Could this be an indication that there are
> adhesions attached?
> Bev: NO, it cannot be; and it isn't adhesion
> tissue at all there.
> 8.) What is the prognosis for people with abdominal
> adhesions or is there one?
> Bev: There is one. The best case scenario for a
> good prognosis for an ARD sufferer is to secure the
> most qualified adhesiolysis surgeon there is. To
> date there are three of them in the world. The
> difference in frosting a very eye catching wedding
> cake is in the skill of the cake decorator -- as it
> is for a high quality adhesiolysis performed by a
> skilled and very precise surgeon. One will never
> really know what their personal outcome will be
> following an adhesiolysis; but it sure is one's
> best chance of getting as well as they can get if
> they go to the best.
> If you don't, your chances of getting any BETTER
> then when you went in for an adhesiolysis with an
> unskilled surgeon are very poor -- let alone
> thinking of getting well from ARD! It won't happen.
> It hasn't yet!
> 9.) Are there suggestions for living with and
> successfully managing adhesions?
> Bev: That depends on the symptoms. I have about 5%
> pain at times. It is either adhesions or residual
> damage from prior surgeries, which would be normal.
> If one can live with a certain level of pain -- such
> as people do who have back problems, arthritis, lots
> of things that
> cause chronic pain -- one may be able to live with
> ARD and manage it with medication. BUT...taken over
> a long period of time, medication itself will start
> to distruct your organs -- liver and kidney
> toxicity, esophageal eschoriation (GERD)...ncrease
> in dosages if the pain increases. intolerance of
> medication over time...lots of things happen when
> people are on long term medications. This question
> is based on how YOU think you can live with it. If
> you can eat and perform tasks, sit in a car, sit for
> over ten minutes in a chair, walk, bend, have bowel
> movements, not vomiting all the time...maybe you can
> live with it. I would guess some do. I only hear
> from those who suffer terribly; and many are so ill
> they might succumb to ARD...I don't think people,
> who can live with it, actually look for help so we
> at the IAS wouldn't hear of them.
> I tell people with ARD, like myself, one day at a
> time and you will be able to know when you need
> something done for your adhesions...you will know!

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