Update on Megan

From: Amy (adkramer@mediaone.net)
Mon Jul 9 14:17:50 2001


Megan has been admitted to the hospital. She's scheduled for an UGI/SBFT with "enteroclysis" tomorrow.. which means that instead of swallowing the barium, they will insert a catheter down through her esophagus and into her duodenum, inflate it and put in the contrast that way. It will be more uncomfortable/painful for her, but the surgeon and GI feel that they will get a better picture of what is going on in her insestines that way vs. the standard barium swallow.

Surgeon is still reluctant to do surgery *just* for adhesions, and is basially looking for a clear reason to operate. He also needs to know, if he does go in there, exactly what area of intestine he will be targeting, rather than having to manipulate and look at all of it and thus increasing the chance of adhesions throughout the intestine as before. Laproscopy is NOT an option for her due to the extent of her adhesions, he wouldn't even be able to get the scope through. Long term, they are talking giving her a port-o-cath for better IV access, especially if she won't be eating for awhile. She's pretty down but is being a trooper. Still on only Ultram for pain, again, reluctant to give narcotics due to the narcotic bowel syndrome she developed before. Still, he paints a pretty grim picture of the future for her... says it is likely she will have to live with pain from adhesions most of her life, and will have to learn to deal with it. Plan is to create a team of pain management specialist, gi, surgeon, and nutritionist to coordinate her care, long-term.

Damn this disease (crohns) and adhesions.


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